Re: cent diagnosis
From: Maeghan (anonymous@obgyn.net)
Wed, 29 Jan 2003 20:37:39 -0600 (CST)
Sorry about that. I guess I'm kind've worried about everything. Finally
having somewhere to vent is a little hectic. I don't think I can decide
what to talk about first!
Kids are a concern for me, as is having a place where people understand.
I think the reason I talked about kids first is because they seem to be
foremost on my mind. But the reassurance was helpful. Whenever a
doctor says it, I find it kind've hard to believe, almost like they're
placating me.
Thanks for the quick responses, though. It's nice to have somewhere
where I fit in.
At Wed, 29 Jan 2003, Sonnet wrote:
>
>It does make sense!! Thanks for clarifying what you were worried about.
>I just wanted to reassure you that having children was a possibility!
>
>I think a lot of people here would identify with you too. I find it SO
>hard to believe that this affects 10% of women and each one of us feels
>like such an alien, like such a freak. I hate that the most, not
>feeling just NORMAL like a normal human being!! It's impossible to
>explain to a lot of people. Especially if they've never gone through
>anything like it themselves, they just have no idea. And often make
>asinine comments like you describe, because they don't understand that
>this is HURTFUL! (I admit myself, I have ended long standing and
>wonderful friendships over comments like that about my PCOS /
>infertility.)
>
>Here, on this support forum, you're among friends at least - you fit in
>here! (One of the comments I enjoyed hearing most about the PCOS
>conference last year was that we took over this hotel - and EERYONE was
>fat, hairy, spotty, and bald! No one looked "different" or attracted any
>attention because of their PCOS! Can you even imagine??) Whatever the
>PCOS issue, there are others here dealing with it also. Plese know that
>this is at least one little spot in life where you can find friends to
>talk to who really understand. Again you're very welcome here!
>
>At Wed, 29 Jan 2003, Maeghan wrote:
>>
>>I was referred to a local OBGYN, who is also in charge of the local
>>fertility clinic. I've been put on Tricyclene to regulate the hormones
>>and Metformin recently to try and sort other stuff out. I made it clear
>>to the OBGYN that I want kids at some point, so he said the Metformin
>>works, as it will start to get my body on a regular ovulation cycle.
>>
>>I think one of the hardest parts for me is the lack of friends who
>>understand. One of my best friends and I have been attached at the hip
>>for nearly 9 years, and she's been wonderful. The ones that hurt were
>>the people who said, "well it's nothing to worry about" or "it's no big
>>deal" or "it wouldn't bother me if I couldn't have kids". I find it so
>>heartless. None of them have any idea, and they all try to brush it off
>>like it's no big deal. I have trouble talking to my parents, who are
>>wonderful supports, about this. And I find myself crying for what seems
>>like no reason.
>>
>>I'm not sure if this makes any sense, but hopefully you know what I
>>mean.
>>
>>At Wed, 29 Jan 2003, Sonnet wrote:
>>>
>>>Hi and welcome -
>>>
>>>A lot of people go through this, and is sooo unfortunate because it's so
>>>unnecessary!
>>>
>>>Women with PCOS almost always CAN have children. If you use the
>>>technical diagnosis of infertile (meaning: you could have sex for a year
>>>without birth control and not get pregnant, not counting any fertility
>>>drugs) then yes, some of us are "infertile." I myself am. But that
>>>doesn't mean not able to ever have children! It is also true that
>>>"infertility" is common in women with untreated PCOS, but once the PCOS
>>>is addressed many women go on to have children without intervention. The
>>>majority of the rest will only need an intervention as simple as
>>>Clomiphene (a cheap, safe, common oral ovulation inducer) to get
>>>pregnant.
>>>
>>>It sucks that your doctor diagnosed you, scared you so needlessly, and
>>>then sort of dropped you with no further information or treament!! Can
>>>you find someone else to manage this chronic condition for you?
>>>
>>>At Wed, 29 Jan 2003, Maeghan wrote:
>>>>
>>>>I'm just about to turn 21, and I was diagnosed with PCOS about three
>>>>months ago with PCOS. My first words were, "will this screw up my
>>>>chances to have kids." The response was, "it could leave you infertile."
>>>>I'm a nursing student, and I find it shocking to find no information in
>>>>my text books about this condition. Since the diagnosis, I've found it
>>>>difficult to concentrate, and my stress levels are through the roof.
>>>>I've wanted children since I was little, and I find myself suddenly in a
>>>>panic. I have no one in my life, but I can't help but wonder if I'll
>>>>ever have children.
>>>>
>>>>Can anyone tell me if this is normal? Has anyone else gone through this?
>>>>I feel so completely alone, and it's as if no one understands me.
>>>
>>>--
>>>email always welcome: sonnet_fitz@hotmail.com
>>>
>>--
>>Maeghan
>>
>--
>email always welcome: sonnet_fitz@hotmail.com
>
--
Maeghan
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