Re: cent diagnosis
From: Sonnet (anonymous@obgyn.net)
Wed, 29 Jan 2003 20:10:03 -0600 (CST)
It does make sense!! Thanks for clarifying what you were worried about.
I just wanted to reassure you that having children was a possibility!
I think a lot of people here would identify with you too. I find it SO
hard to believe that this affects 10% of women and each one of us feels
like such an alien, like such a freak. I hate that the most, not
feeling just NORMAL like a normal human being!! It's impossible to
explain to a lot of people. Especially if they've never gone through
anything like it themselves, they just have no idea. And often make
asinine comments like you describe, because they don't understand that
this is HURTFUL! (I admit myself, I have ended long standing and
wonderful friendships over comments like that about my PCOS /
infertility.)
Here, on this support forum, you're among friends at least - you fit in
here! (One of the comments I enjoyed hearing most about the PCOS
conference last year was that we took over this hotel - and EERYONE was
fat, hairy, spotty, and bald! No one looked "different" or attracted any
attention because of their PCOS! Can you even imagine??) Whatever the
PCOS issue, there are others here dealing with it also. Plese know that
this is at least one little spot in life where you can find friends to
talk to who really understand. Again you're very welcome here!
At Wed, 29 Jan 2003, Maeghan wrote:
>
>I was referred to a local OBGYN, who is also in charge of the local
>fertility clinic. I've been put on Tricyclene to regulate the hormones
>and Metformin recently to try and sort other stuff out. I made it clear
>to the OBGYN that I want kids at some point, so he said the Metformin
>works, as it will start to get my body on a regular ovulation cycle.
>
>I think one of the hardest parts for me is the lack of friends who
>understand. One of my best friends and I have been attached at the hip
>for nearly 9 years, and she's been wonderful. The ones that hurt were
>the people who said, "well it's nothing to worry about" or "it's no big
>deal" or "it wouldn't bother me if I couldn't have kids". I find it so
>heartless. None of them have any idea, and they all try to brush it off
>like it's no big deal. I have trouble talking to my parents, who are
>wonderful supports, about this. And I find myself crying for what seems
>like no reason.
>
>I'm not sure if this makes any sense, but hopefully you know what I
>mean.
>
>At Wed, 29 Jan 2003, Sonnet wrote:
>>
>>Hi and welcome -
>>
>>A lot of people go through this, and is sooo unfortunate because it's so
>>unnecessary!
>>
>>Women with PCOS almost always CAN have children. If you use the
>>technical diagnosis of infertile (meaning: you could have sex for a year
>>without birth control and not get pregnant, not counting any fertility
>>drugs) then yes, some of us are "infertile." I myself am. But that
>>doesn't mean not able to ever have children! It is also true that
>>"infertility" is common in women with untreated PCOS, but once the PCOS
>>is addressed many women go on to have children without intervention. The
>>majority of the rest will only need an intervention as simple as
>>Clomiphene (a cheap, safe, common oral ovulation inducer) to get
>>pregnant.
>>
>>It sucks that your doctor diagnosed you, scared you so needlessly, and
>>then sort of dropped you with no further information or treament!! Can
>>you find someone else to manage this chronic condition for you?
>>
>>At Wed, 29 Jan 2003, Maeghan wrote:
>>>
>>>I'm just about to turn 21, and I was diagnosed with PCOS about three
>>>months ago with PCOS. My first words were, "will this screw up my
>>>chances to have kids." The response was, "it could leave you infertile."
>>>I'm a nursing student, and I find it shocking to find no information in
>>>my text books about this condition. Since the diagnosis, I've found it
>>>difficult to concentrate, and my stress levels are through the roof.
>>>I've wanted children since I was little, and I find myself suddenly in a
>>>panic. I have no one in my life, but I can't help but wonder if I'll
>>>ever have children.
>>>
>>>Can anyone tell me if this is normal? Has anyone else gone through this?
>>>I feel so completely alone, and it's as if no one understands me.
>>
>>--
>>email always welcome: sonnet_fitz@hotmail.com
>>
>--
>Maeghan
>
--
email always welcome: sonnet_fitz@hotmail.com
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