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Re: Anyone with Chronic Pelvic Pain/ Pelvic Congestion???

From: anonymous (anonymous@obgyn.net)
Wed, 18 Dec 2002 14:51:28 -0600 (CST)


At Sun, 8 Dec 2002, Amanda wrote: >
>At Fri, 16 Mar 2001, Joy wrote:
>>
>>My name is Joy. I suffered from chronic pelvic congestion for six
>>years. I had six surgeries is four years, three years of methadone
>>maintainance, and a hysterectomy. I have been pain free for two years.
>>When I was going through surgery after surgery I looked to the inter net
>>and found nothing. I never felt so alone in my life! If my experience
>>can help anyone through the seemingly hopeless pain please feel free to
>>write. I would have done just about anything to hear from some one who
>>had a successful out come with this disease.
>>I've even gone the rounds with the insurance companies who didn't want
>>to believe that pelvic congestion exists; and who didn't want to mess
>>with a seemingly healthy 24 year old's body.
>>Write if you'd like. joynfinn@juno.com
>
>Joy,
>I am 25. I have had three surgeries and am looking at a hysterectomy. I
>am afraid of another let down, but I see few other options. I am so
>glad to hear that someone was "fixed" please let me know what finally
>did it!
>ANewland112@msn.com
>>At Thu, 23 Mar 2000, Kim wrote:
>>>

hi there my name is amy and i thijnk i might ovarian cancer i have been h having problems with my periods for the past two years now. and just recently i hae bad pains inmy pelvic,last month my period was terrible.I feltlikei had a knot on my pelvic on the left side duringmy peirod but after my period it went away and also i had bad cramps and back aches.I also had sharp pains in the right side of my stomache.Now it is almos time for my period againand i'm scredbecause the painhurt so bad. i would like to know more info if anyone has any my grandmother died of ovarian cancer wheni was 4yrs old. akm8812@aol.com amy >>>Hi Micha,
>>>I too am suffering from chronic pelvic pain (right side). I would like
>>>to know more about pelvic congestion syndrome. Is it similar to an
>>>enlarged or ruptured cyst? I am currently working with my R.E. to find
>>>out what is causing my pain. She is having me go in for frequent u/s
>>>when my pain peaks. So far I have a pattern to my pain, so I guess that
>>>I'll be at the Dr's next week. It seems to start mid-cycle thru a few
>>>days after AF. An obgyn friend of mine has also suggested "tubal
>>>syndrome" -which I haven't heard of before, but I think it has to do
>>>with tied tubes (which I have). Please share more about the PCS, I
>>>would be interested in knowing more. Any info. that helps me figure
>>>this out is greatly appreciated. E-mail directly if you wish at:
>>>krm02025@prodigy.net
>>>
>>>Thanks,
>>>Kim M.
>>>
>>>At Thu, 23 Mar 2000, Micha wrote:
>>>>
>>>>I suffer from both PCOS and chronic right-side pelvic pain due to a
>>>>condition called pelvic congestion syndrome (PCS). Several years ago a
>>>>laparoscopy showed that I have pelvic varicose veins, which is pelvic
>>>>congestion syndrome. It's very painful and it's very difficult dealing
>>>>with both this and PCOS.
>>>>
>>>>I'm looking for others suffering with this condition. Please contact me
>>>>here on the board or privately.
>>>>
>>>>I look forward to hearing from you!
>>>>
>>>>Thanks.




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