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AGENT OF LACTOS IN HEREDITYFrom: anonymous (anonymous@obgyn.net)Tue, 17 Dec 2002 02:59:05 -0600 (CST)
At Tue, 27 Jun 2000, Lisa wrote: > >Diane, >Thank you so much for your response! And I wouldn't be surprised if my Aunt Ethel >didn't even discuss her childlessness with her doctor. Her child-bearing years >would have been in the '40s. Even if she did, she probably would have been told >that some women just can't get pregnant, or something to that affect. If she were >alive today, I'm sure she'd be astounded to learn that all the "problems" she had >were related. > >anonymous@obgyn.net wrote: > >> Lisa, >> >> It's 5:46 a.m. Sunday morning, June 25. Just so you know you're not >> the only one thinks about things in the wee hours! Several hours ago I >> had my epiphany —when all of the multitude of "puzzle pieces" that is >> the jumbled history of my PCOS case — came crashing together. I have >> never had such a moment of amazing clarity! A few of those "puzzle >> pieces" have to do with my relatives! My great, great Aunt May was >> childless and had almost a full beard at the time of her death. My >> great Aunt Ruth was childless as well; at the end of her life it was >> "whispered" within the elder family members that "she had trouble down >> there." Now, both of these women where more slender than not, but they >> were very tall, large women all the same. My grandmother had children >> (my Dad was her first) but later in life she developed a very large >> abdomen and Type II diabetes. On my mother's side we dont' have as much >> information because my Mom was adopted. Later in her life she was able >> to connect with a few members of her birth family and we know that an >> aunt had uterine cancer and male pattern balding and her mother died >> from heart failure at a relatively young age. I was diagnosed with >> uterine cancer in March '97. Fortunately I caught it early and did not >> have to undergo chemo. It is now three years later and I am still >> dealing with many health problems and symptoms that I now realize are >> PCOS related. In retrospect, I have all the symptons, except two, and >> many of these go back to my teen years. Yes, I believe there is a very >> strong case for heredity being a major factor in PCOS. Relative to your >> question "did they (family members) know about it" — maybe not, but I >> think many other factors played into it. Two factors contributed to a >> "knowledge gap" in my family...the women in my family were taught (or >> thought) that anything like the symptoms of PCOS were a sign of weakness >> or an infirmity and divulging or admitting to anything like that was not >> acceptable. You just didn't discuss things like this! If you did >> discuss them it was only with people you were close to and could trust, >> everything was very secretive. My grandmother was diabetic for 12 years >> before anyone but her children knew it and even then the extent (pills >> vs. shots) was not known until after her death! Hopefully we will be >> able to peel back the cultural stigmas, and give the gift of >> enlightenment and proactive care to ourselves, our daughters, sisters >> and friends. The second factor was that health care was very limited to >> most of my family members in older generations due to cost. You really >> didn't go to the doctor unless you were, well, almost dead! My >> grandmother had all but one of her children at home! Besides, they'd >> never have discussed these types of things with anyone, not even their >> doctors. The little I know about their relationships with their >> doctors, mostly from when they were quite elderly, left me to beleive >> that they didn't think there doctors believed them most of the time >> anyway or what they were describing was dismissed away quickly. That >> experience I can relate to myself. Now that I have a direction to go I >> am looking forward to making improvements in my health. I hope to >> participate in a family history project and to become an active member >> of the PCOS community. >> >> At Fri, 23 Jun 2000, Lisa wrote: >> > >> >Hello Everyone! >> > >> >I have been following the recent discussion about heredity and it got me >> >thinking. It took 18 years and a stroke of luck for me to be diagnosed, >> >I know most of you have dealt with similar situations. Isn't it possible >> >that this IS hereditary and you just don't know it because THEY didn't >> >know it?? >> > >> >My Mom has PCOS, although, since the hysterectomy took care of the >> >hemorrhaging and the electrolysis took care of the facial hair, she is >> >troubled little by it. But, I got to thinking about my grandmother's >> >sister. Aunt Ethel was a wonderful woman, she was so good to us kids I >> >always thought it was a shame she was never able to get pregnant. I can >> >still picture her - thick waist, thinning hair, double chin with long >> >hairs coming out of it. They never knew why she couldn't have kids, it >> >was just a cross she had to bear. I wonder, how many of you have women >> >like Aunt Ethel in your family trees that you don't know about?? >> > >> >Anyway, thanks for listening. I thought about this in the middle of the >> >night last night and had to get it off my chest. >> > >> >Lisa >>
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