PCOS Messages for December, 2002: Re: Anyone with Chronic Pelvic Pain/ Pelvic Congestion???

Re: Anyone with Chronic Pelvic Pain/ Pelvic Congestion???

From: Amanda (anonymous@obgyn.net)
Sun, 8 Dec 2002 22:10:02 -0600 (CST)

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At Fri, 16 Mar 2001, Joy wrote: >
>My name is Joy. I suffered from chronic pelvic congestion for six
>years. I had six surgeries is four years, three years of methadone
>maintainance, and a hysterectomy. I have been pain free for two years.
>When I was going through surgery after surgery I looked to the inter net
>and found nothing. I never felt so alone in my life! If my experience
>can help anyone through the seemingly hopeless pain please feel free to
>write. I would have done just about anything to hear from some one who
>had a successful out come with this disease.
>I've even gone the rounds with the insurance companies who didn't want
>to believe that pelvic congestion exists; and who didn't want to mess
>with a seemingly healthy 24 year old's body.
>Write if you'd like. joynfinn@juno.com

Joy, I am 25. I have had three surgeries and am looking at a hysterectomy. I am afraid of another let down, but I see few other options. I am so glad to hear that someone was "fixed" please let me know what finally did it! ANewland112@msn.com >At Thu, 23 Mar 2000, Kim wrote:
>>
>>Hi Micha,
>>I too am suffering from chronic pelvic pain (right side). I would like
>>to know more about pelvic congestion syndrome. Is it similar to an
>>enlarged or ruptured cyst? I am currently working with my R.E. to find
>>out what is causing my pain. She is having me go in for frequent u/s
>>when my pain peaks. So far I have a pattern to my pain, so I guess that
>>I'll be at the Dr's next week. It seems to start mid-cycle thru a few
>>days after AF. An obgyn friend of mine has also suggested "tubal
>>syndrome" -which I haven't heard of before, but I think it has to do
>>with tied tubes (which I have). Please share more about the PCS, I
>>would be interested in knowing more. Any info. that helps me figure
>>this out is greatly appreciated. E-mail directly if you wish at:
>>krm02025@prodigy.net
>>
>>Thanks,
>>Kim M.
>>
>>At Thu, 23 Mar 2000, Micha wrote:
>>>
>>>I suffer from both PCOS and chronic right-side pelvic pain due to a
>>>condition called pelvic congestion syndrome (PCS). Several years ago a
>>>laparoscopy showed that I have pelvic varicose veins, which is pelvic
>>>congestion syndrome. It's very painful and it's very difficult dealing
>>>with both this and PCOS.
>>>
>>>I'm looking for others suffering with this condition. Please contact me
>>>here on the board or privately.
>>>
>>>I look forward to hearing from you!
>>>
>>>Thanks.

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