Re: Long Time Having PCOS, New to Site, Need Answers - Please Help (Long)
From: jodi (anonymous@obgyn.net)
Mon, 25 Nov 2002 13:39:46 -0600 (CST)
Hey Jill
I seem to have a thing for replying to newbies and I always seem to say
the same darn things. Read this last such post of mine, it can probably
help a little:
http://forums.obgyn.net/pcos/PCOS.0211/0522.html
(Hope that link works) (don't know if it will be useful at all, hope it
is a little!)
After (or without) reading that, I will say that a good online link for
reading on this is:
http://www.mja.com.au/public/issues/nov16/kidson/kidson.html#suba0
There used to be a site by a Dr. Charles Glueck that was very good ...
but I can't seem to get it to work today.
As for not being IR, there are women who are not IR who are being
treated with glucophage with success. Some say if PCOS is present, IR
is present... even if the labs don't indicate it. Maybe what's normal
for the lab isn't normal for your body.
Women with PCOS can also have adrenal problems, you need to find out if
that is your cause.
Basically you need to find a good doctor knowledgable in PCOS, and they
can be a challenge to come by. If you are having trouble, you might
want to say where you live and maybe someone here can help you.
As for the sex thing... exactly what sort of pain do you mean? Is it a
dryness pain? Or something else? There's a lot of ways to have pain down
there... and a lot of different reasons!
FInally I would suggest you check out the soulcysters.com site, there
are discussion boards there and... not to dis this place, but there
seems to be a lot more action over there. :-)
Hope to have helped a little... in sumarry, read read read and find a
good doctor!
Yes there is a point in seeing a specialist. More can be done for PCOS
now than at any other point in history, yay!
- jodi
At Sun, 24 Nov 2002, Jill wrote:
>
>Hi! -
>
>I'm hoping for some good advice because I'm at the end of my rope and
>need some answers about pcos. I also need to find out what symptoms
>other people have because I've got some weird ones and I'm frankly
>embarrassed about them.
>
>I'm 31 years old and was diagnosed when I was 15. To be honest with you
>I really didn't give the diagnosis much thought then because being told
>by my doc that I might have difficulty getting pregnant wasn't really
>something I was worried about. I was put on the pill and was told to
>see an endo. Anyhoo, went on the pill but never saw an endo (I thought
>at the time, no need unless I was trying to get pregnant).
>
>Anyhoo, so over the years have had a bunch of odd symptoms which were
>never connected and I suspect are all connected to the pcos: hirtuism
>(unfortunately in a bunch of places) & alopecia, weight gain, cystic
>acne, panic attacks and I'm always shaky even after I eat (although my
>current doc says I'm not IR).
>
>So after years of not seeing an endo - I'm going December 6th. I'd like
>to know why I should go - what can the endo do that my doc can't? I'm
>just asking because I always feel like I'm going to a different doc all
>the time and no one seems to help me.
>
>There is also something that I want to ask but an embarrassed because
>I'm not sure if it has to do with pcos. But oh well here goes - has
>anyone had a problem with pain during intercourse and gyn exams. I have
>terrible pain during intercourse with my husband and we kind of joke
>about the fact that he's just so huge :) and I'm tight so that's a good
>thing.
>
>The last time I was at the doc, she 1) asked me if I was ever abused (I
>wasn't) and 2) suggested I insert a tapered candle to practice relaxing.
>I was a bit put off because it's not an issue of being relaxed - I love
>my husband and am always relaxed around him.
>
>So I'm very confused and depressed because I'm gaining more weight, and
>have all these crappy symptoms, topping off with the last one and I'm
>just so tired feeling bad.
>
>If someone has similar symptoms, please post a message, so I can find
>out some answers.
>
>Thanks!
>
>--
>Jill
>
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