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Re: Questions?!?!?

From: Sonnet (anonymous@obgyn.net)
Mon, 28 Oct 2002 17:23:19 -0600 (CST)


Oh my gosh, what you've been through, and apparently without any support! My heart goes out to you, and rest assured - you're in the right place now! This board is just full of wonderful women who have all been there and know what it's like.

It's always amazing to me that PCOS isn't more well known than it is. It affects so many women. Personal theory (and only a theory:) I think it's been easier, in the past especially, for doctors to write off this disease as "women's trouble" because of the irregular periods or "fat woman's trouble" more recently. Does it ever feel like they can blame ANYTHING on weight gain? ("I stubbed my toe!" "Well you wouldn't have if you weren't so fat!")

I would say that the best place to start for info is the PCOS Association website, http://www.pcosupport.org. They have a lot of info, and a lot of links, that can help you get your life back. There are email discussion lists for almost every topic imaginable (related to PCOS.) They even have support chapters almost everywhere so you can hook up with what's going on, PCOS-wise, in your own town.

I'm glad you've got a diagnosis but from the sounds of it, your doctor then just dropped you without treating your PCOS! There are medications for PCOS, and they're very effective at controlling the symptoms and getting your body back to healthy. You can try low carb dieting too, which also helps keep our insulin levels nice and low (insulin seems to be at the root of PCOS) and can really help with the weight loss and symptom reduction. Don't give up hope, a lot of women have been in your shoes, and in time and treatment it does get better! You can get your life back.

If your doctor isn't willing to really treat your PCOS, brushes you off with a prescription for birth control or (even worse) just tells you to lose weight, you walk right out that door and don't go back. Obviously they don't have a clue what they're talking about. Many women with PCOS see an endocrinologist to manage their symptoms, this might be a good choice for you. Keep trying until you find a doctor who really knows what's going on.

Good luck, I'm glad you found the forum, and do feel free to email any time if need be. Take care!

At Mon, 28 Oct 2002, Christa wrote: >
>I have just recently as late June been told that I probably suffer from
>something now known as "Syndrome X" or better known as "PCOS." I am not
>doing to well with this information.
>It has taken me around 6 years and quite a few doctors, that told me I
>was imagining things, to find someone who actually believed me and ran
>extensive tests. I was kinda relieved that she had told me that I have
>"something", but again scared to death.
>I had gained over 100 pounds after the birth of my youngest daughter and
>the doctors said it was post partum depression and that I was eating to
>much. They put me on countless diets and it never helped. I have been
>poked and prodded and no-one seem to be able to put two and two
>together.
>Why is this? Why is this "Syndrome" so hard to diagnose? Will I ever be
>able to play in the park with my kids like I want to without having to
>rest every 5 minutes? Will this weight ever come off? Do these pains in
>my chest suggest that I might be having heart problems? Will my marriage
>ever recover from this? My husband is so distant, he is not attracted to
>me anymore and would rather watch football or play video games than to
>touch me. This has been going on for years! Where can I find more
>information about this, and why doesn't my doctor know more than she
>does?
>I just feel so alone, and no-one can answer my questions or make me feel
>at ease.
>If anyone can help I would greatly appreciate it.
>
>Totally OVERWHELMED!!!!!!

--
email always welcome: sonnet_fitz@hotmail.com



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