Re: I'm still around...
From: Renee (anonymous@obgyn.net)
Mon, 07 Oct 2002 07:41:27 -0700
Barbara,
Sorry, but you've move outside my areas of expertise, asking about why your
ANA and rheumatoid factor have changed. I don't know. My guess is that since
the lupus was drug induced, if the drug was removed, some of the symptoms
would resolve, possibly allowing your ANA and RF to reduce.
Renee
"Barb C." wrote:
>
> Thanks Renee,
> I have had saliva back now for a few months...remember the vascular doc
> report and the tests saying I don't have SLE lupus ,rather a drug
> induced lupus.?I am sure I sent all reports to you so you could help
> me.I may have missed the one about the sclerodermic changes which were
> no longer consistant with lupus.I don't want to bother you with anymore
> questions and sending reports.You have been more than helpful to me
> through all of this..
> Anyhow...I have never heard of it but will definitely look for it in the
> drug store.Do you know how on earth my ANA and rhematoid factor is now
> normal?
> I am so utterly confused.Do you think this can come back again?I don't
> see rhemie for at least a month.I have to many appointments that I
> cannot keep track already.
>
> I think when I am done..I will most definitely get someone to help me
> write a book on what hell I have gone through with the Canadian health
> care system.
> No-one has had such misdiagnosis and diagnosis and undiagnosis as I have
> had.
> My doctor says I can make some medical journal...I don't know what he
> means..but he says that he NEVER seen such lab result tests change as
> often as mine do.
> Only thing not budging too much are the dhea's sulfate.Testosterone and
> free androgen has gone down somewhat.I am also worried why I don't have
> an appetite again.Doctor said never eat when in an adrenaline surge and
> I get confused,as I know that I need to eat or I get extremely shakey.I
> just don't get this...appetite was sooooo good and now gone and I am
> forcing myself to eat six meals a day..small portions but so hard to get
> it down when not hungry.
> Any advice there?
>
> Thanks so much.
>
> Barb
> >
> >Barb,
> >
> >Here in the states there's a toothpaste called Biotene. It's designed for
> >those with dry mouth and little saliva. It has enzymes that are usually found
> >in saliva that help maintain tooth health. You may want to see if you can
> >find it.
> >
> >Renee
> >
> >"Barb C." wrote:
> >>
> >> Renee,
> >
> >> I always had them cleaned regularily but with the sjogrens...it cause
> >> many problems with all my teeth.Having no natural saliva and using a
> >> substitute saline type solution did a number...especially at night.
> >
> >--
> >--------------
> >Renee Cordrey, MSPT, MPH, CWS
> >
> >---
> >Dwell in Possibility.
> >--Emily Dickenson
> >
>
> --
> Sincerely,
> Barb C.
>
--
--------------
Renee Cordrey, MSPT, MPH, CWS
---
Dwell in Possibility.
--Emily Dickenson
![[ PCOS Discussion Forums ]](../../images/pcos_at_obgyn.gif)