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Re: Are dizzy spells (vertigo) with PCOS common?

From: Jon (anonymous@obgyn.net)
Thu, 19 Sep 2002 17:04:37 -0500 (CDT)


At Fri, 19 Oct 2001, Helen wrote: >
>WOW! I am absolutely intrigued with this thread of conversation... and
>let me tell you why... While no serious attacks over the last several
>years, I was diagnosed with vertigo in the mid 80s after rigorous
>evaluation. The way you described the attacks, is exactly what I had. I
>would be fine, and then without ANY notice the world would begin to spin
>and be topsy turvey. I ended up in the emergency room several times.
>The speed of the spinning is nausiating, and after a while, I typically
>would get ill. When the attacks occurred (and I never could predict
>them or associate them with any triggering behavior)I was completely
>unable to focus and had no balance ability. Some times I would be just
>sitting on a chair and it would happen.. other times I would be in a
>shopping center... other times I would be just lying down in bed.... I
>went through all types of testing for Minears (sp?) disease, TMJ
>possibilities, migraine evaluations, CT Scans, etc. It was ultimately
>diagnosed as vertigo, and I was given a RX for Antivert along with
>valium. The valium was needed as I would get so frightened when an
>attack occurred, and then even when they eventually stopped (duration
>would last between 30 minutes and 3 hours) I would be too scared to
>venture out, fearing it would occur again. This went on for years, and
>eventually subsided. No one ever linked this at the time to PCOS, which
>I had been diagnosed with (known then as Stein Leventhal) way back when
>I was 16. The Vertigo attacks started when I was in my mid twenties --
>and stopped after about ten years. To this day I carry Antivert around
>with me. I never thought about a possible connection to PCOS.... I
>wonder.... Keep us posted on what you may learn. I know how
>frightening these attacks are, and they can psycologically imobilize you
>because you become too paranoid to do normal things fearing an attack
>(travel, drive, etc.). I hope that they stop for you very soon.
>Regards, Helen
>
>At Fri, 19 Oct 2001, Terri wrote:
>>
>>At Thu, 18 Oct 2001, Renee wrote:
>>I've had this problem for several years now. I've seen doctor after
>>doctor, and finally found the a doctor who specializes in diagnosing and
>>treating vertigo and dizziness. We did the special PT treatments both
>>in the office with the therapist and home exercises. I still get flare
>>ups a couple of times a year, and back to the office I go for more
>>treatments. Surgery is the last resort - something I'm not ready for.
>>You are not alone! I hate this vertigo/dizziness- which the doctor has
>>attributed to a viral ear infection which went untreated. The whole
>>world is topsy turvey and other people cannot understand it if they've
>>never felt it. I understand what you are going through!
>>Terri>
>>
>>>This could be true vertigo. That usually comes from the inner ear. There is
>>>actually some treatment that can be done for it. There's medication
>>>(antivert), even better, because it may get to the cause, would be to go to a
>>>PT with extra training in vertigo (most don't have it--look for a vestibular
>>>clinic). It's just some positional changes and movement therapy that moves
>>>the loose calcium bits out of the way to clear them out.
>>>
>>>Talk to your doctor and see what he/she thinks it is.
>>>Renee
>>>
>>>LaDawna wrote:
>>>>
>>>> At Wed, 17 Oct 2001, LaDawna wrote:
>>>> Actually, I've been thinking about this, and these dizzy spells are
>>>> different from when I feel hypoglycemic. These dizzy spells occur in
>>>> all circumstances (i.e., lying down, standing up, sitting still,
>>>> etc...), but usually I'm feeling fine and all of a sudden the room
>>>> moves. With hypoglycemia, I usually feel "ucky" - lethargic, headaches,
>>>> cranky - that's when I'll feel light-headed. This is a different kind
>>>> of dizzy. This is like when you have the flu and stand up to go to the
>>>> bathroom and the floor moves out from under you, only this happens when
>>>> I'm sitting still.
>>>> I'm not ruling out low blood sugar, but it worries me that it might be
>>>> something else.
>>>> >
>>>> >At Thu, 30 Mar 2000, Anonymous wrote:
>>>> >>
>>>> >>Are dizzy spells common with PCOS. Dizzy like in vertigo? Someone please
>>>> >>advise - desperate for answers. Had all kinds of expensive, sophisticated
>>>> >>tests for the vertigo to be told I am ok, it is probably a genetic inherited
>>>> >>tendencies, exaggerated by my allergies and (here comes the common line we
>>>> >>women ALWAYS hear...) nerves!
>>>> >>Toni
>>>> >
>>>> >I am newly diagonosed with PCOS, but have known this was the problem for
>>>> >the last three years. I have had dizzy spells ever since I started
>>>> >having the symptoms of PCOS. My current doctor thinks that I'm
>>>> >retaining water in my brain and that is what is causing the dizziness.
>>>> >The cool thing about the vertigo is that it's severity is cyclical with
>>>> >my periods. I always have dizzy spells, but right before my period they
>>>> >get so bad that I can't sleep at night because the room is spinning.
>>>> >When I do sleep, I wake up nauseaous. In addition to the dizziness, I
>>>> >am very clumsy - running into walls, dropping things, etc... this also
>>>> >seems to get worse with my period. Again, my doctor thinks I'm just
>>>> >retaining water. I'm not on Met or Spiro (Spiro caused the left side of
>>>> >my body to seize for no apparent reason, kinda' like a stroke, so I went
>>>> >off it).
>>>>
>>>--
>>>Renee Cordrey, MSPT, MPH, CWS
>>>
>>>---
>>>
>>>Don't follow in the footsteps of the masters. Seek what they sought.
>>> --Zen saying
>>>

--
I have been experiencing random vertigo attacks and neck pain for the past couple of years.  The first attack happened on a camping trip, where I was so affected that I could not bring my eyes into focus, and the nausea lasted for several days afterwards...I found this site at http://earfoundation.org/guest/coping.html that has a lot of folks with similar experiences.  While I don't have anything to offer for a cure, some of the experiences spelled out there might help.



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