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Re: Are dizzy spells (vertigo) with PCOS common?From: Jon (anonymous@obgyn.net)Thu, 19 Sep 2002 17:04:37 -0500 (CDT)
At Fri, 19 Oct 2001, Helen wrote: > >WOW! I am absolutely intrigued with this thread of conversation... and >let me tell you why... While no serious attacks over the last several >years, I was diagnosed with vertigo in the mid 80s after rigorous >evaluation. The way you described the attacks, is exactly what I had. I >would be fine, and then without ANY notice the world would begin to spin >and be topsy turvey. I ended up in the emergency room several times. >The speed of the spinning is nausiating, and after a while, I typically >would get ill. When the attacks occurred (and I never could predict >them or associate them with any triggering behavior)I was completely >unable to focus and had no balance ability. Some times I would be just >sitting on a chair and it would happen.. other times I would be in a >shopping center... other times I would be just lying down in bed.... I >went through all types of testing for Minears (sp?) disease, TMJ >possibilities, migraine evaluations, CT Scans, etc. It was ultimately >diagnosed as vertigo, and I was given a RX for Antivert along with >valium. The valium was needed as I would get so frightened when an >attack occurred, and then even when they eventually stopped (duration >would last between 30 minutes and 3 hours) I would be too scared to >venture out, fearing it would occur again. This went on for years, and >eventually subsided. No one ever linked this at the time to PCOS, which >I had been diagnosed with (known then as Stein Leventhal) way back when >I was 16. The Vertigo attacks started when I was in my mid twenties -- >and stopped after about ten years. To this day I carry Antivert around >with me. I never thought about a possible connection to PCOS.... I >wonder.... Keep us posted on what you may learn. I know how >frightening these attacks are, and they can psycologically imobilize you >because you become too paranoid to do normal things fearing an attack >(travel, drive, etc.). I hope that they stop for you very soon. >Regards, Helen > >At Fri, 19 Oct 2001, Terri wrote: >> >>At Thu, 18 Oct 2001, Renee wrote: >>I've had this problem for several years now. I've seen doctor after >>doctor, and finally found the a doctor who specializes in diagnosing and >>treating vertigo and dizziness. We did the special PT treatments both >>in the office with the therapist and home exercises. I still get flare >>ups a couple of times a year, and back to the office I go for more >>treatments. Surgery is the last resort - something I'm not ready for. >>You are not alone! I hate this vertigo/dizziness- which the doctor has >>attributed to a viral ear infection which went untreated. The whole >>world is topsy turvey and other people cannot understand it if they've >>never felt it. I understand what you are going through! >>Terri> >> >>>This could be true vertigo. That usually comes from the inner ear. There is >>>actually some treatment that can be done for it. There's medication >>>(antivert), even better, because it may get to the cause, would be to go to a >>>PT with extra training in vertigo (most don't have it--look for a vestibular >>>clinic). It's just some positional changes and movement therapy that moves >>>the loose calcium bits out of the way to clear them out. >>> >>>Talk to your doctor and see what he/she thinks it is. >>>Renee >>> >>>LaDawna wrote: >>>> >>>> At Wed, 17 Oct 2001, LaDawna wrote: >>>> Actually, I've been thinking about this, and these dizzy spells are >>>> different from when I feel hypoglycemic. These dizzy spells occur in >>>> all circumstances (i.e., lying down, standing up, sitting still, >>>> etc...), but usually I'm feeling fine and all of a sudden the room >>>> moves. With hypoglycemia, I usually feel "ucky" - lethargic, headaches, >>>> cranky - that's when I'll feel light-headed. This is a different kind >>>> of dizzy. This is like when you have the flu and stand up to go to the >>>> bathroom and the floor moves out from under you, only this happens when >>>> I'm sitting still. >>>> I'm not ruling out low blood sugar, but it worries me that it might be >>>> something else. >>>> > >>>> >At Thu, 30 Mar 2000, Anonymous wrote: >>>> >> >>>> >>Are dizzy spells common with PCOS. Dizzy like in vertigo? Someone please >>>> >>advise - desperate for answers. Had all kinds of expensive, sophisticated >>>> >>tests for the vertigo to be told I am ok, it is probably a genetic inherited >>>> >>tendencies, exaggerated by my allergies and (here comes the common line we >>>> >>women ALWAYS hear...) nerves! >>>> >>Toni >>>> > >>>> >I am newly diagonosed with PCOS, but have known this was the problem for >>>> >the last three years. I have had dizzy spells ever since I started >>>> >having the symptoms of PCOS. My current doctor thinks that I'm >>>> >retaining water in my brain and that is what is causing the dizziness. >>>> >The cool thing about the vertigo is that it's severity is cyclical with >>>> >my periods. I always have dizzy spells, but right before my period they >>>> >get so bad that I can't sleep at night because the room is spinning. >>>> >When I do sleep, I wake up nauseaous. In addition to the dizziness, I >>>> >am very clumsy - running into walls, dropping things, etc... this also >>>> >seems to get worse with my period. Again, my doctor thinks I'm just >>>> >retaining water. I'm not on Met or Spiro (Spiro caused the left side of >>>> >my body to seize for no apparent reason, kinda' like a stroke, so I went >>>> >off it). >>>> >>>-- >>>Renee Cordrey, MSPT, MPH, CWS >>> >>>--- >>> >>>Don't follow in the footsteps of the masters. Seek what they sought. >>> --Zen saying >>>
-- I have been experiencing random vertigo attacks and neck pain for the past couple of years. The first attack happened on a camping trip, where I was so affected that I could not bring my eyes into focus, and the nausea lasted for several days afterwards...I found this site at http://earfoundation.org/guest/coping.html that has a lot of folks with similar experiences. While I don't have anything to offer for a cure, some of the experiences spelled out there might help.
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