PCOS Messages for July, 2002: Re: A Great Book (to Barb C)

Re: A Great Book (to Barb C)

From: Barb (anonymous@obgyn.net)
Mon, 1 Jul 2002 03:49:43 -0500 (CDT)

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Thanks CW! I've had so many tests performed the last week that I am totally exhausted and very confused with my myriad of symptoms and my diagnosis's.I keep thinking that I am the only one going through this,but the specialist assured me that there are so many women that go undiagnosed or misdiagnosed for years and years..or get the wrong treatment to further compound the problems,as has been in my case.I feel like a total wreck,and I can't see how he can suddenly diagnose me when ten other doctors could only say PCOS/IR/Lupus and other problems that somehow corrected themselves mysteriously.The problem now is that I don't know what to believe.My story is like a jigsaw puzzle.

I often wonder how someone as myself can have SO many problems,when in fact,it may be just one underlying disorder causing all my problems. However,it does seem apparant to my specialist that whatever the perpetuating factor in all of this-my heart is taking the beating.(no pun inteneded).He is looking for some underlying cause. Does this book mention if fibromyalgia can cause problems with the heart?I doubt it,but thought it was worth a try.

I find this terribly strange,as my ANA has not tested positive the last two rounds of tests.This is indicative for my lupus.The doctor said that so many times there are problems with the tec's who take the blood..sometimes there are errors made etc.Again-misdiagnosed,undiagnosed,diagnoesed.I can't take it.

I find this hard to swallow,as this makes me wonder how correct they've been with jumping the gun to give me a diagnosis.

I just don't know anymore.My Fasting IGTT were abnormal.I never felt so terrible since that test.

I've lost considerable amount of faith in all the doctors here who have tried to play god by diagnosing me and medicating me for wrong illness's.

Now this new specialist is always shooting me with two needles in my neck every time I see him and I don't have pain there..just tender spots. I believe it's called dexamethasone or something.He says from narrowed discs. Geez...my whole body is falling apart If anything,we need to be as informed as possible.I will look at buying the book. If you can give me any pointers from the book on drastic five to six pound weight changes in one given day..I would appreciate it. For now,I do need to read something to take my mind of the worst. I need to be as informed as I can be.

As usual,I apologize for the length of the message,but I am up in PAIN! SCREAM! Keep me posted.

>
>Barb (and whoever else is interested):
>
>I am currently reading a book I bought on Amazon.com that is terrific
>and I highly recommend. It is called "Fibromyalgia & Chronic Myofascial
>Pain" by Devin Starlanyl and Mary Ellen Copeland. It discusses in major
>detail Fibromyalgia, Chronic Myofascial Pain Syndrome, and even has some
>paragraphs and chapters on edema and water retention, neuropathy, etc.
>It gives details, causes, treatments, and info on a number of
>perpetuating factors (such as IR and Reactive Hypoglycemia). I thought
>you'd be interested in reading this due to the many difficulties you
>have encountered lately, and may be able to learn something and have
>some insight on what is going on.
>
>I discussed some issues I learned from this book with my Physical
>Therapist, will discuss them with my Neurologist when I see him again in
>a few weeks, and as soon as I am finished reading it, will make an appt.
>with a Rhematologist to get to the bottom of things once and for all (I
>hope).
>
>Take care,
>CW

--
Sincerely,
Barb C.

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