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Re: Need to know about retention of water?Thanks ladies but I am scaredFrom: Barb (anonymous@obgyn.net)Thu, 27 Jun 2002 03:38:26 -0500 (CDT)
I know that this is going to make me sound so paranoid,but honestly;my instincts and the way the doctor is talking about a failing heart-leads me to believe that it is happening to me. I had problems with my heart(ejection fraction was 40),and that wasn't good.The doctors didn't know what it was,but that was when I was misdiagnosed at the beginning and suffered with other ailments...the diabetes insipidus...thyroid problems and a myriad of problems,.this is when I was labelled as an anorexic..I won't go in to detail,as most of you know my whole story.Anyways,I was told to eat or else my heart was on the verge of failing.,(they later discovered I was eating,but had some malabsorbtion problems).The nightmare was just beginning for me,although I didn't realize it. My last tests showed the ejection fraction at 70;which is very good)..now;apparantly,my cardiologist said that showed no evidence of any primary heart disease.That echo was done in September of 2001. My new specialist(the one coordinating all my new tests etc),had made it quite clear to me that I am showing symtoms of heart failure despite my ejection fraction and that- YES..this happens with untreated hypertension,IR,Diabetes,obesity...etc.It happens when an overactive thyroid gland goes undiagnosed...it happens from adrenal exhaustion.He said that is what finally kills us. He said that there is NO single test to rule out heart failure,but my body may be compensating in many ways...retaining fluids,.restricting vessels...systolic dysfunction on my BP readings. I get winded doing normal,every day activites...my heart pounds severely after eating and all throughout the day. He told me that since I have been doing the walks ,which can be very good...this may be why I am feeling worse and more symptoms are showing.I seem to have phases.I over do and then I suffer all night.I think I am pushing too hard with the walks and he said to take it really slow and when I feel just the slightest bit of discomfort..to stop.I know how I used to feel when I walked...the way I feel now with a slow stroll is like I am speed running with my heart not going quickly,yet pounding so forcefully.I know that after all the months of my yoga sessions that are all movement and some dance daily ,that by now ..my resting heart beat should have slowed down.It hasn't and I want to give up.Something keeps telling me to plug along. I am not overweight..and I am 41..far too young ,as he said; to be taken seriously by many cardiologists,when in fact,-he was not happy with the results from my previous holtor monitors and cardio-diary which showed tachycardia day and night.My damned heart will actually slow down to less than 40 BPM when I perform a light lift. I think I may have mentioned that I had a function test done where you perform range of motion tests...light lift..walk...stretch..stand..and more.All the time,they are monitoring your heartbeat and the results show what a normal increase should be and what is abnormal.Mine was almost abnormal in all.Rather than it speed up when it should..it went down where I near fainted.When I sat to do some grip tests..my heart beat sped up like a rocket. I don't know anymore..but I may just be one of the very unlucky people to have inherited the gene.Syndrome X runs high on my maternal side of the family. With untreated Ir for so many years and PCOS..I may be the one that it hit in a different way. I am very scared as he told me that some people with heart failure can have an ejection fraction of 20 and have no symptoms,while someone like me can have a good one and be symptomatic. I've always had this floating in my mind as you can tell from all my former posts about heart palps and discoloration in my legs and then the new diagnosis of some chronic orthostatic intolerance. All I want to say is that I suffered all through my adolescent life with plentiful signs of IR-pcos//the hairloss..the acne....just not the weight issues,as I worked my ass off to keep healthy and thin..eating a so called healthy diet of high carbohydrates since I was very athletic.I never binge ate,but I thought I was doing the right thing by eating pasta's,..you know//all the things that we find out now aren't good for us. My cholesteral is 6...I have more bad than good...but don't have the numbers available.I can't keep track anymore. I know my body and have not responded to treatment of any sort for numerous problems and it may just be that I need meds for my heart.He said in the past...they may have had me on the wrong ones...as I was on a beta blocker and then taken off it ,as my heart slowed down too much. How in the heck am I ever going to get helped?He is a wonderful doctor and I trust him..but in all honesty..I am so hesitant to trust any doctor with the luck that I've had in the past. I feel terribly depressed....I think of the years I felt so depressed from hairloss and acne and now I wish I had that all back rather than a heart that could be in failure. I don't know if much of this makes sense to any of you,as I am so brainfogged and worried. I cannot imagine living the life that my relatives did with their history with heart disease. My grandfather died of CHF at a very young age..as did all his siblings and my moms siblings with strokes,heart attacks.It is just me,and my mom from that side left.I see now by their pictures..even the males..all apple shaped with male pattern baldness...diabetes etc. Why didn't anyone ever take note of my history when I always had to write it down? I am terribly afraid of losing more of my freedom.I can't imagine how it would be if these feelings get any worse. He had spoken of ace inhibitors...some other meds that I never heard of,.but first off to see another cardiologist.My god..he is an endocrinologist with great knowledge about the heart. I always had a feeling that the feelings of my heart were unrelated to what I ate...yet was so afraid to ever tell anyone what was on my mind. I trust that you all understand my feelings of being very afraid and I pray that this all soon shall pass. My heart goes out to every one of you suffering with this dreaded disease.It may be more disabling than many think it is.More to it than just hairloss,etc. It's time we take a stand and get the treatment that we require and never,ever give up hope and take one,two,three or even twenty doctor's opinions-diagnosis if you still feel poorly.You own intuition is usually right on.You may not know what you have,but you sure know how to explain the symptoms and that should be addressed. Again-my apologies for this story like post..but I needed to make all aware of the dire consequences that can happen. Thanks for the ears,and if anyone can relate or offer any advice,please contact me by email.
>
-- Sincerely, Barb C.
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