PCOS Messages for May, 2002: Re: AHHHH! to BCP or not to BCP, to Spiro or not to Spiro, to Gluc or not to Gluc, to struggle or to give up- these are my questions

Re: AHHHH! to BCP or not to BCP, to Spiro or not to Spiro, to Gluc or not to Gluc, to struggle or to give up- these are my questions

From: Valerie (anonymous@obgyn.net)
Thu, 23 May 2002 01:36:07 -0500 (CDT)

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In reply to: Valerie: "AHHHH! to BCP or not to BCP, to Spiro or not to Spiro, to Gluc or not to Gluc, to struggle or to give up- these are my questions"

Thank you to all who have replied by email or on the board... thanks for the thyroid reminder! I frequently forget to up my dose in response to burn-out during high stress times (and this synthetic thyroid crap is SOOOO easily burnt by stress!) I guess all I am really searching for at this point is a little friendship from people who understand me... from people who understand that babies don't come easy and that women with scraggly greasy hair might be very neat individuals whose hair has thinned and who sweat like farm animals when they are over worked... so many of the people I met prejudge me like I eat all day, don't shower often enough because otherwise my hair would look healthier and I wouldn't have brown patches, etc! Just frustrated and desperately hoping to compare notes on whats worked for others... I am just a little miffed that my Gluc experience makes me feel like a freak in our little community too! Talking to my doctors is not cutting the mustard and my insurance is not going to let me have pick of the litter... I really think the basic formula for success is here in that I do in fact have doctors who are genuinely good people who are doing the best that they can with all that they are familiar with... anyone have any ideas I should run past them?!?!?!?!? I am desperate for new options... I have done like 15 different kinds of BCP's and hated them, but I keep hearing PRAISE THE YASMIN and so I vascillate on this issue... to be honest I am vascillating on everything because I am floating in chemical oblivion! Please, compare notes and anecdotes... I AM MORE THAN OPEN TO IDEAS because I have "learned" the Met/Gluc/BCPS are not treatment in and of themselves "gab" that we give all the brand new diagnosed Cysters, but now I am looking for more advanced, strange, unusual, etc.

--
ValerieC
>
>AHHHHHHHHH! I can't take it anymore!!!! 12 years post diagnosis and I am
>still going nowhere fast and I am angry and I am crying and I am
>depressed and I am beyond explainable! Someone help me please! I AM SO
>FED UP I COULD SCREAM...  I HAVE NO ONE WHO REALLY UNDERSTANDS WHAT IS
>HAPPENING TO ME...  I AM SO DAMN TIRED OF ALL OF THIS...  I WISH I COULD
>TRADE MY BODY IN UNDER THE LEMON LAW LIKE A CAR THAT GOES BAD
>PREMATURELY DUE TO MANUFACTURERS ERROR!!!!!
>
>OK, I was diagnosed 12 yrs ago and had no real "treatment" until mid
>March.  Endo Rx'd Gluc, 1000mg per day...  I struggled to get there...
>not there yet...  I was at 375 with breakfast and 500 with dinner...
>lately my health seems to be in the toilet (more so than just the Gluc
>side effects) I started getting kidney pains 3 weeks ago and they gave
>me antibiotics for a massive kidney infection...  I still test positive
>for infection, but at least the kidney pain is down to a dull roar that
>I can suffer through.  I spotted for the first time in ages at about the
>same time- got excited, thought it was a period- NOPE! Braved the OB-GYN
>for the first time in a long time and he tried to talk me into BCP- I
>did BCP's for 7 yrs and stopped 3 yrs ago because they are awful...  he
>Rx'd Provera because I refused to even consider BCP's (been so sick,
>haven't been brave enough to start the Provera yet) Went to the Endo for
>a follow-up, with 875 Gluc a day I have had little change in my
>insulin/glucose, my testosterone dropped a bit while my free
>testosterone almost doubled!!! (Which accounts for the new bald spot the
>size of half a dime and the fact that my lasered face now bears a dozen
>or so black hairs- the laser tech did tell me to keep my testosterone
>under control if I wanted permanent results...  easier said than done
>ay!) My endo says she feels it is in my best interest to begin taking
>Yasmin BCP for a while to get my androgens back in line...  if not
>Yasmin, then Spiro with condoms as my birth control method.  Furthermore,
>she said my side effects of Gluc were really abnormally bad and that it
>is my decision how long I want to battle with Gluc, she said for as much
>as I am suffering I can respectably give up at any time and since I
>would be using some method of birth control then I could take something
>other than Gluc though I will need to stop when I get the nerve up to
>TTC again.  I AM SO ANGRY WITH MY BODY RIGHT NOW! My husband and I have
>been TTC for 3 yrs and now I am not even serious about it anymore...  my
>new approach is that I will get brave one day and do the whole 9 yards
>with the fertility drugs, but frankly I feel I can't now...  my body is
>in awful shape...  I get excrutiating daily headaches, I have had to
>drop my Gluc down to fluxuating between 375 and 750 per day because my
>stomach is in awful shape, my anus can bear little more of this, I am
>going bald fast, I have no real great friends around and DH is
>supportive but its just not enough to bear the pressure that is welling
>up inside me...  a couple of months ago newborn babies made me sick with
>envy- now I get sick with envy if someone isn't pill popping all the day
>away...  is it possible to be addicted to Immodium Advanced (the
>anti-gas kind?) because its the only thing that stops the cramping...  I
>am petrified to give up the Gluc completely but I am petrified to stay
>on it...  I have no choice but to lower my androgen level with something
>and the question is WHAT??? What won't make my system more screwy...  I
>am so fatigued that I put in my work week scarcely able to concentrate
>even 75% of the time, I come home and veg out every evening and sleep my
>weekends away.  I don't feel I have the brains for these decisions
>anymore! Yasmin is a BCP- does it truly have an anti-androgen component
>or am I just pumping a stupid BCP with all kinds of chemicals into my
>personal chemical disaster of a body to further screw me???
>
>Yasmin or Spiro...or Saw Palmetto or???
>
>Gluc  or  Gluc+Actos  or  Gluc+something  or  Actos  or???
>
>I am sorry for the length of this, but I am at my wits end and I swear I
>am nearing nervous breakdown...  I can't help but wonder WHY IS THIS ALL
>HAPPENING TO ME?!?!?!?!?! I am 22!!! I swear my quality of life is
>running in the negative numbers right now...  and I almost wonder is I
>am imaging that it seems I felt alot better before I did any of this!!!
>I have like NO APPETITE until 4pm and cannot even force it or I puke...
>I puke pure bile like its a sport lately...  I am crying and I cannot
>take anymore!!!
>
>--
>ValerieC
>

Next message: Kristi: "Re: LH FSH ratio high."
Previous message: paula: "Re: Of course the ZONE diet works.... you don't get to eat anything!"
In reply to: Valerie: "AHHHH! to BCP or not to BCP, to Spiro or not to Spiro, to Gluc or not to Gluc, to struggle or to give up- these are my questions"

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