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Re: AHHHH! to BCP or not to BCP, to Spiro or not to Spiro, to Gluc or not to Gluc, to struggle or to give up- these are my questions

From: anonymous (anonymous@obgyn.net)
Wed, 22 May 2002 09:17:01 -0500 (CDT)


Valerie,

Hi! One thing my endo did for me was to take me off everything for 6 weeks, get me feeling "normal" again and then reintroduce meds one by one, individually-- so I'd know which made me feel this way and which that, etc. It's not a perfect method, but the 6 weeks were a relief.

By the way, if you can take the Yasmin, it really does have an anti-androgen in it... but BCPs really aren't for everyone!

Good luck!

>
>At Wed, 22 May 2002, Valerie wrote:
>>
>>AHHHHHHHHH! I can't take it anymore!!!! 12 years post diagnosis and I am
>>still going nowhere fast and I am angry and I am crying and I am
>>depressed and I am beyond explainable! Someone help me please! I AM SO
>>FED UP I COULD SCREAM... I HAVE NO ONE WHO REALLY UNDERSTANDS WHAT IS
>>HAPPENING TO ME... I AM SO DAMN TIRED OF ALL OF THIS... I WISH I COULD
>>TRADE MY BODY IN UNDER THE LEMON LAW LIKE A CAR THAT GOES BAD
>>PREMATURELY DUE TO MANUFACTURERS ERROR!!!!!
>>
>>OK, I was diagnosed 12 yrs ago and had no real "treatment" until mid
>>March. Endo Rx'd Gluc, 1000mg per day... I struggled to get there...
>>not there yet... I was at 375 with breakfast and 500 with dinner...
>>lately my health seems to be in the toilet (more so than just the Gluc
>>side effects) I started getting kidney pains 3 weeks ago and they gave
>>me antibiotics for a massive kidney infection... I still test positive
>>for infection, but at least the kidney pain is down to a dull roar that
>>I can suffer through. I spotted for the first time in ages at about the
>>same time- got excited, thought it was a period- NOPE! Braved the OB-GYN
>>for the first time in a long time and he tried to talk me into BCP- I
>>did BCP's for 7 yrs and stopped 3 yrs ago because they are awful... he
>>Rx'd Provera because I refused to even consider BCP's (been so sick,
>>haven't been brave enough to start the Provera yet) Went to the Endo for
>>a follow-up, with 875 Gluc a day I have had little change in my
>>insulin/glucose, my testosterone dropped a bit while my free
>>testosterone almost doubled!!! (Which accounts for the new bald spot the
>>size of half a dime and the fact that my lasered face now bears a dozen
>>or so black hairs- the laser tech did tell me to keep my testosterone
>>under control if I wanted permanent results... easier said than done
>>ay!) My endo says she feels it is in my best interest to begin taking
>>Yasmin BCP for a while to get my androgens back in line... if not
>>Yasmin, then Spiro with condoms as my birth control method. Furthermore,
>>she said my side effects of Gluc were really abnormally bad and that it
>>is my decision how long I want to battle with Gluc, she said for as much
>>as I am suffering I can respectably give up at any time and since I
>>would be using some method of birth control then I could take something
>>other than Gluc though I will need to stop when I get the nerve up to
>>TTC again. I AM SO ANGRY WITH MY BODY RIGHT NOW! My husband and I have
>>been TTC for 3 yrs and now I am not even serious about it anymore... my
>>new approach is that I will get brave one day and do the whole 9 yards
>>with the fertility drugs, but frankly I feel I can't now... my body is
>>in awful shape... I get excrutiating daily headaches, I have had to
>>drop my Gluc down to fluxuating between 375 and 750 per day because my
>>stomach is in awful shape, my anus can bear little more of this, I am
>>going bald fast, I have no real great friends around and DH is
>>supportive but its just not enough to bear the pressure that is welling
>>up inside me... a couple of months ago newborn babies made me sick with
>>envy- now I get sick with envy if someone isn't pill popping all the day
>>away... is it possible to be addicted to Immodium Advanced (the
>>anti-gas kind?) because its the only thing that stops the cramping... I
>>am petrified to give up the Gluc completely but I am petrified to stay
>>on it... I have no choice but to lower my androgen level with something
>>and the question is WHAT??? What won't make my system more screwy... I
>>am so fatigued that I put in my work week scarcely able to concentrate
>>even 75% of the time, I come home and veg out every evening and sleep my
>>weekends away. I don't feel I have the brains for these decisions
>>anymore! Yasmin is a BCP- does it truly have an anti-androgen component
>>or am I just pumping a stupid BCP with all kinds of chemicals into my
>>personal chemical disaster of a body to further screw me???
>>
>>Yasmin or Spiro...or Saw Palmetto or???
>>
>>Gluc or Gluc+Actos or Gluc+something or Actos or???
>>
>>I am sorry for the length of this, but I am at my wits end and I swear I
>>am nearing nervous breakdown... I can't help but wonder WHY IS THIS ALL
>>HAPPENING TO ME?!?!?!?!?! I am 22!!! I swear my quality of life is
>>running in the negative numbers right now... and I almost wonder is I
>>am imaging that it seems I felt alot better before I did any of this!!!
>>I have like NO APPETITE until 4pm and cannot even force it or I puke...
>>I puke pure bile like its a sport lately... I am crying and I cannot
>>take anymore!!!
>>
>>--
>>ValerieC
>>




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