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Re: AHHHH! to BCP or not to BCP, to Spiro or not to Spiro, to Gluc or not to Gluc, to struggle or to give up- these are my questions

From: Mel (anonymous@obgyn.net)
Wed, 22 May 2002 08:37:43 -0500 (CDT)


Hi Valerie

It does get better, honestly. I have found sopeaking to a councillor really helpfull and taking gaviscon has really helped the erm, gastric side effects of met. Try i know it is hard, to acccept you. Saying that i have moments of 'i am such a big fat cow and i dont know why my dh loves me or want to lurve me' but i know that he loves me not thin me or pcos me, just me. i have fouind that yoga hes helped me feel far less 'mad' and it really helps to tone you up.

TTC is not the only baby route, although i know plenty of women who conceve with pcos on met, we are choosig to adopt but that is our choice. Please please dont give up on yourself, you are a beautiful and unique person with insight and hopr to offer the world.

Please do not hesitate to mail me direct. Keep well and takje great care

--
Mel

At Wed, 22 May 2002, Valerie wrote: > >AHHHHHHHHH! I can't take it anymore!!!! 12 years post diagnosis and I am >still going nowhere fast and I am angry and I am crying and I am >depressed and I am beyond explainable! Someone help me please! I AM SO >FED UP I COULD SCREAM... I HAVE NO ONE WHO REALLY UNDERSTANDS WHAT IS >HAPPENING TO ME... I AM SO DAMN TIRED OF ALL OF THIS... I WISH I COULD >TRADE MY BODY IN UNDER THE LEMON LAW LIKE A CAR THAT GOES BAD >PREMATURELY DUE TO MANUFACTURERS ERROR!!!!! > >OK, I was diagnosed 12 yrs ago and had no real "treatment" until mid >March. Endo Rx'd Gluc, 1000mg per day... I struggled to get there... >not there yet... I was at 375 with breakfast and 500 with dinner... >lately my health seems to be in the toilet (more so than just the Gluc >side effects) I started getting kidney pains 3 weeks ago and they gave >me antibiotics for a massive kidney infection... I still test positive >for infection, but at least the kidney pain is down to a dull roar that >I can suffer through. I spotted for the first time in ages at about the >same time- got excited, thought it was a period- NOPE! Braved the OB-GYN >for the first time in a long time and he tried to talk me into BCP- I >did BCP's for 7 yrs and stopped 3 yrs ago because they are awful... he >Rx'd Provera because I refused to even consider BCP's (been so sick, >haven't been brave enough to start the Provera yet) Went to the Endo for >a follow-up, with 875 Gluc a day I have had little change in my >insulin/glucose, my testosterone dropped a bit while my free >testosterone almost doubled!!! (Which accounts for the new bald spot the >size of half a dime and the fact that my lasered face now bears a dozen >or so black hairs- the laser tech did tell me to keep my testosterone >under control if I wanted permanent results... easier said than done >ay!) My endo says she feels it is in my best interest to begin taking >Yasmin BCP for a while to get my androgens back in line... if not >Yasmin, then Spiro with condoms as my birth control method. Furthermore, >she said my side effects of Gluc were really abnormally bad and that it >is my decision how long I want to battle with Gluc, she said for as much >as I am suffering I can respectably give up at any time and since I >would be using some method of birth control then I could take something >other than Gluc though I will need to stop when I get the nerve up to >TTC again. I AM SO ANGRY WITH MY BODY RIGHT NOW! My husband and I have >been TTC for 3 yrs and now I am not even serious about it anymore... my >new approach is that I will get brave one day and do the whole 9 yards >with the fertility drugs, but frankly I feel I can't now... my body is >in awful shape... I get excrutiating daily headaches, I have had to >drop my Gluc down to fluxuating between 375 and 750 per day because my >stomach is in awful shape, my anus can bear little more of this, I am >going bald fast, I have no real great friends around and DH is >supportive but its just not enough to bear the pressure that is welling >up inside me... a couple of months ago newborn babies made me sick with >envy- now I get sick with envy if someone isn't pill popping all the day >away... is it possible to be addicted to Immodium Advanced (the >anti-gas kind?) because its the only thing that stops the cramping... I >am petrified to give up the Gluc completely but I am petrified to stay >on it... I have no choice but to lower my androgen level with something >and the question is WHAT??? What won't make my system more screwy... I >am so fatigued that I put in my work week scarcely able to concentrate >even 75% of the time, I come home and veg out every evening and sleep my >weekends away. I don't feel I have the brains for these decisions >anymore! Yasmin is a BCP- does it truly have an anti-androgen component >or am I just pumping a stupid BCP with all kinds of chemicals into my >personal chemical disaster of a body to further screw me??? > >Yasmin or Spiro...or Saw Palmetto or??? > >Gluc or Gluc+Actos or Gluc+something or Actos or??? > >I am sorry for the length of this, but I am at my wits end and I swear I >am nearing nervous breakdown... I can't help but wonder WHY IS THIS ALL >HAPPENING TO ME?!?!?!?!?! I am 22!!! I swear my quality of life is >running in the negative numbers right now... and I almost wonder is I >am imaging that it seems I felt alot better before I did any of this!!! >I have like NO APPETITE until 4pm and cannot even force it or I puke... >I puke pure bile like its a sport lately... I am crying and I cannot >take anymore!!! > >-- >ValerieC >




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