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Re: thyroid meds for pcos? - Panacea

From: Anne (anonymous@obgyn.net)
Thu, 9 May 2002 15:10:50 -0500 (CDT)


At Thu, 9 May 2002, Panacea wrote: >
>At Thu, 9 May 2002, Anne wrote:
>>
>>You know telling someone to ignore their TSH numbers is just
>>outrageously irresponsible, one needs to look at the entire picture and
>>not just part of it. Not just T3 and T4 and not just TSH.
>
>Wow, you must have something against me here. I specifically *asked*
>questions pertaining to the whole picture. She didn't give us any real
>numbers here, I was asking for them. I also asked what her symptoms
>were during the "trial".
>

No I don't have anything against you personally, it seems to me that you are a nice person, you've certain evidenced a desire to help others here.

I don't agree with the information that you're giving. I think I have a right to say so. As a lawyer, I've been trained to object when I have an objection so that's what I've done. You said to concentrate on T3 and T4 and forget TSH - not look at the big picture. Look at what you wrote,

--
-------------
"What were your numbers throughout this whole fiasco? As long as your
numbers were never hyper (I'm talking t3 and t4 here, not the TSH) than
you were fine on the meds.  Why did you stop them...? Did they start
making you feel sick? "
--------------

To say that a TSH reflecting hyperthyrodism is not relevant is not responsible, it is part of the picture. There have been plenty of studies showing that suppressing TSH can have deleterious effects. I have had my TSH suppressed and it is absolutely not fun for everyone. I think the cases where there are conversion problems are RARE. If you've been spending time at about.com's thyroid forum you might not realize that it is rare because there you have a subset of individuals who haven't responded well to standard treatments, and it is more common amongst this subset. The fact is, most thyroid patients have no problems once they are medicated. Others of us have difficult situations or more than one endocrine problem.

The orginal poster, Jessica, gained 24 pounds on thyroid medication because it apparently made her hyper. Symptoms of hyper and hypo cross over, you can have weight gain as a result of being hyper - happened to me more than once, I also had depression and plantar fascitis(sp?) when hyper and hypo.

---------- >Most doctors only go by TSH, which is a load of #%%#. Talk to the >EXPERTS on the matter who've been battling hypothyroidism and thyroid >disease for decades (http://forums.about.com/ab-thyroid/ is a good place >to start), >

I have been to the thyroid forum. I found (this was my experience), that there was not much toleration for opposing view points. When people questioned (merely questioned) alternative approaches they were usually flamed out of there. Like many others, I don't go there anymore because I've found that the bulk of the information is not reliable/ I got tired of sifting through the bad info for the good info. I found there was both good and bad info. But I also relied on some info there and regretted it.

--But, yes TSH only is just as bad as T3 or T4 only.

>a) TSH is only a number; there are other degrees of hypothyroidism that >do not show up in TSH; >b) A regular TSH for a HEALTHY adult is between .50 - 1.5; anything >above 2 is suspect for developing hypothyroidism;

actually the American College of Clinical Endocrinologist says 3 not 2.

>d) Symptoms are important to treat, not just numbers. >

Agreed. But there are symptoms that can becaused by other things and treating with thyroid supplementation would be ineffective, and potentially dangerous.

>>Moreover, it sounds like she got into trouble but not looking at any of >>these numbers and gained weight from being made chemically hyper either >>because she didn't need the medication or because she didn't need the >>amount she was "prescribed". > >I believe in the idiocy of some doctors; however, it is more likely for >a doctor to idiot by laughing you out of his office if you suggest >thyroid disease, rather than hand over meds when no signs/symptoms are >present. >

Are you saying its better to give out the medication than not? Isn't testing always appropriate? Not treating an existing disease is just as bad as treating a non-existant disease, isn't it?

I'm sure we both agree that a patient, especially a female patient, should never rely on their doctors, they are all potential idiots as to one issue or another. We must be responsible for our own health, do our own research and make our own decisions along with our doctors.

The woman who posted originally was going to an NP - nurse practioner. I worry about these practioners, one caused my son a great deal of problems for failure to diagnose. It seems to me they should work under closer supervision.

>Someone with Hashimoto's, for example, WILL exhibit signs/symptoms of >hyper AND hypo, and can swing back and forth at any time. Does this >mean they don't need meds? No...

But the test for the thyroid antibodies should be done/ and or an ultrasound, I've had both done to confirm my hashi's and check for cancer/nodules.

I know about swinging back and forth, I do. I am. I am presently hyper and not enjoying it at all.

Peace. Best wishes. Etc.

Anne

(I really don't want to argue with you, I just happen to disagree with some of your information and I want to express my disagreement with your information -- it's not personal at all, okay?)




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