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Re: pcosFrom: Belle (anonymous@obgyn.net)Thu, 18 Apr 2002 20:43:57 -0500 (CDT)
I have a 15 yr old with PCOS. I am fortunate enough to live in an area where two of the doctors leading the research practice (and are on my insurance list!). What I have been relieved to learn is that when teens are treated correctly for PCOS, the disorder symptoms can be totally eliminated. There has even been some talk about the disorder being totally reversed, but there has not been enough research to support this theory. It is my opinion that if there is a possibility that my daughter can avoid having the problems that I have gone through, I will take it. One reason that you may be getting mixed information is because the research on PCOS is so very new. Anything over 5 years old is probably out of date. Any information that does not include the link between insulin abnormalities and PCOS is definately out of date. http://www.pcosupport.org is a good site to begin with. If you would like others, I can give them to you. At one time, the birth control pill (BCP) was the only option that we had. PCOS was considered to be only a 'female problem' or a cosmetic problem. We have now learned that PCOS is an endocrine problem. For this reason, an endocrinologist has helped for many of us. If your GYN is knowledgable about current research on PCOS, you could stick with him/her. The important thing is not the level of specialty but the level of knowledge about current research in PCOS. It is very important to address the insulin problem that is thought to be the source of PCOS. You should expect the doctor to discuss insulin sensitizers such as Glucophage (metformin - generic), Avandia or Actos. You may see information about a drug called Rezulin while you are searching the web. This drug worked very well but it has been pulled from the U.S. market because of deaths that were associated with it. You should not entertain any thoughts of using the pill as treatment for PCOS in a child this young. This is a link to The American Society of Reproductive Medicine and their committee opinion of the treatment PCOS. http://www.asrm.org/Media/Practice/Insulin_sensitizing_agents.pdf . Of particular interest is the last line of the report: "Based on the clinical evidence to date, the use of novel insulin sensitizers such as the biguanides and thiazolidenediones promise new treatment options for polycystic ovary syndrome for both fertility and long-term disease prevention." You may want to discuss some things with your daughter. I know that my child was concerned about losing her hair and about not being able to have babies when she got older. Let your child know that 1) this is a syndrome and not everyone gets every symptom and 2) with early treatment, she is on track to avoid the problems associated with PCOS. My daughter has been on Glucophage for two years. She had not had any increase in symptoms, she has a full, thick head of hair, she is very thin, and most importantly, she has a period *every* month. We have found that taking Glucophage XR is easier for her. This is a form of Glucophage that you take once a day. This way she does not have to take medication out in public and make herself look any different from other kids her age. Let me know if you need any additional information.
At Thu, 18 Apr 2002, mom wrote:
>
-- Hope this helps,
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