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Re: Specialist advice in London re. recent diagnosis of PCOSFrom: Dave (anonymous@obgyn.net)Mon, 15 Apr 2002 10:17:01 +0100
When I first went to the doctors it was because I had not been having regular periods. To be honest it did not bother me, but I read in a magazine about all the things it could lead to, so I decided to go. At that time I was about seventeen or eighteen, and I was put on bcp. The first lot made me moody, the second weepy and the third made my hair fall out. I came off the pill because my doctor told me that to be honest having no periods wasn't that bad, and just go back when I wanted to have a baby. A few years later I had an abnormal smear test, and then had to keep going back regularly, my periods had stopped again for over a year, so I went back to the doctor. This time I was actually told that I had PCOS, and again I was put on the pill. We asked to be referred privately, as I had been told by my doctor that the best way to treat pcos was to have surgery! This doctor was rubbish too - a so called specialist, his view was the pill and or losing weight were the only way to control pcos. He made no suggestions as to how to lose weight, and I ended up back on the pill with my hair falling out and a non stop bleed. After that it was a year and a half before I could face yet another doctor, I changed gp, and this guy acknowledged he had limited knowledge, but would do as much as he could to help. He suggested that I try and find a dr I am happy with and then he would refer me. I went to see a dr in Harley Street, we had a half hour chat, he was quite impressed with my knowledge, and closed any loop holes in our questions, then as easy as I'm typing this he prescribed metformin! He did say to diet, but again no suggestions on the best way to do so. By then we were trying for a baby, and we asked how met could help. He said that if nothing had happened within six months to go back to my gp and ask for clomid. So I did that, and then got referred to a gynae. Until this point everything had been covered under private medical insurance, but they don't cover ttc. When I got referred I was talking to a friend whose daughter is in the same situation (except that she is really skinny!) and she had just been to see this same person privately. I asked her about costs - and she said that they had gone through BUPA as they can fix prices in advance, and in some cases you can spread the cost over a year. Anyway, the initial consultation was about £150, and the scan and blood tests cost about £250. We have yet to go back for the results, so not sure how much that will cost. If I remember we were sent the bill for Harley street to forward onto our health insurance people, and that was about £150 also. This final dr is about the best so far, he explains everything clearly, and gives recommendations on diet etc. He is in Essex- not sure how close you are. Feel free to email me with any further questions Cathy
> ----- Original Message ----- Hi I too come from the UK just wanted to know cathy, did u consult for the symptoms of pcos or treatment with a view to pregnancy? It seems that as I have no desire to become pregnant Doctors do not want to treat pcos, was it worth going private (and was it expensive). I am a staff nurse and I am finding it difficult to be taken seriously, too much knowledge and all that. infor would be grately appreciated
> ----- Original Message ----- Hi Caroline, I'm a UK girl too! Waiting on the NHS takes forever. I had a four month wait, so decided to pay privately. Not only do you have to wait for the initial consultation, but you'll have to wait again for the tests. (sorry!) In the meantime gather information, and go armed with it. That way you are less likely to be fobbed off, don't accept going on bcp as the be all and end all, and ask for it to be treated rather than masked. Keep us all posted with how you get on.
> ----- Original Message -----
> I was wondering if anybody could advise me on proper procedures for ------------------------------------------------------------------------------ ------------------------------------------------------------------------- Get more from the Web. FREE MSN Explorer download : = -- -------------------------------------------------------------------------
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