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My Little Sister (Long - Sorry)From: anonymous@obgyn.netWed, 13 Mar 2002 10:10:37 -0600 (CST)
Hi Guys, I guess this is a story to say that we need to do our advocacy close at home as well as with any women who may have PCOS symptoms - and many women with PCOS may not realise how serious it is. I only see my little sister once a year or less. She was diagnosed with PCOS about 7 years ago and never went back after the first time.... though the doc did ask her to see an endocrinologist, she never did. I tried to encourage her to do something (ie see a doc)through our internet communications... but she didn't seem interested - probably just thought I was up to the big sister nag thing..... I saw her two days ago (and now I am very aware of PCOS after research, etc, after self and then medical diagnosis about 6 mo. ago). What a shock! She used to be 'chubby' when we were at uni, last time I saw her she was slim, but now is rail thin. She says now she can eat anything and not gain an ounce (that is not normal for women in our family). Suffers from 'vaguing out', polyuria and excessive thirst (man oh man how scary - like this is almost diabetic), very irregular periods and does not ovulate regularly, not excessive hair like me, but male patern hair loss (worse and more noticeable than mine). She is also totally scatterbrained, vague, forgetful, suffers anxiety.... etc. She has seen a GP who was concerned with her diabetic like symptoms but, apparently (my sis is not sure) only tested for glucose in urine and fasting insulin which were normal. So my sis figured this was just something she had to live with and didn't consider doing anything further. Anyway, I discussed all this with her and about PCOS and she is like ' Wow -I didn't realise all this could be explained and it may not be a 'personality fault'. She didn't realise how serious this is and how it may be able to be treated -probably quite easily. My poor little sis. I am now so worried for her. But I directed her to this and the australian support site and discussed with her what her treatment should be and how to find a good doctor (my doc is overseas). Her PCOS is so much worse than mine - and I was feeling so bad - how much worse must she be feeling. She also has thyroid symptoms (I have hypothryoid) so told her all about that as well. Then she told me she has another friend, also rail thin with similar sytoms, also diagnosed with PCOS but untreated and unmonitored..... Makes me wonder how many women are in such a bad condition. She will now get on her friend's case. Anyway, moral is, there may be women even in our own families who don't realise and may not be treated. We need to be proactive to help others. As someone who has just gotten her life back (after thinking I was absolutely nuts) I cannot say how strongly I feel about this. And our reaching out to one woman may have a ripple effect to others. So I will be following and monitoring my little sis progress very closely and encouraging her every step of the way. Sorry this is long, but I really wanted to get this out. Sally
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