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Re: Spice Girl Reveals She has PCOS( Look here, Gemma and Anne H)
From: anne (anonymous@obgyn.net)
Tue, 5 Mar 2002 00:17:43 -0600 (CST)
Oh dear, I really didn't mean to offend anyone and did make my comments
in haste. I did this because I was genuinely surprised and was just
kind of like 'hey what is this- can anyone explain?' I admit I don't yet
know all that much about PCOS because there's a lot to know I guess- and
I really hadn't taken in that it was possible to look like Posh Spice
and have PCOS. (Also I had to have a little dig at Posh while I was at
it.)Thinking about it, though, I guess it does sort of make sense, and
it does indeed make me alarmed thinking of all those women out there
with no outward manifestations of PCOS little knowing of their greatly
increased risk of diabetes etc. It also clears up that blurb on the
back of the Collette Harris book that puzzled me about how 'one in ten
women have PCOS but not all of them know it because the symptoms are
often like PMS.' When I read that last month, I was kind of like- what?
PMS! When I was sixteen and started growing hair on my stomach I sure as
hell didn't think I had PMS! But we live and learn. Of course its awful
to think of some doctors only looking for classic PCOS. Incidentally,
Natasha, if you wanted to share I would be interested to know how you
did get diagnosed.
I guess I was and am also thinking- if say someone I know finds out I'm
devastated because I have PCOS- and then they hear all about Posh Spice
etc having PCOS, it kind of sounds like it can't be that big a deal.
Because half of the little girls in the nation want to be her. And that
p.... me off because it is. I suppose that's what I was thinking. But
one thing I will say that I shouldn't probably say, and I don't want to
be ostracised for this. I admit to still being in my angry/despair
stage of living with this, only wanting to feel sorry for women who have
PCOS as bad or worse than me and I know that's nonsense. What I want to
say is I KNOW that I personally- I am just speaking for myself here
obviously- I KNOW that I would be suffering less if I didn't have any of
the classic, outward physical symptoms of PCOS. Yes, I might be
devastated to find out in ten years that I couldn't have a baby,and that
I never knew before, to find out I should have been living far more
healthily for years because of increased risks of diabetes, heart
disease etc, to have thought for many more years I was just a moody
emotional bitch, but I know I would be suffering less. There.
However, it is true this is a wonderful, wonderful support group for
everyone dealing with PCOS, and of course we all need to stick together.
Really, I meant no harm by my initial post, but we can't read each
others minds.
At Mon, 4 Mar 2002, UK wrote:
>
>Well said Christie and I have just posted an apology to Natsha.
>I really wasn't having a go at anyone.
>Just airing an opinion and letting off steam.
>Apologies if anyone took it the wrong way.
>
>Gemma
>
>At Mon, 4 Mar 2002, Christie wrote:
>>
>>I am not thin, I have hair loss, boils, dark hair on my neck, chin, and hest, and skin patches, and I was taken back by the comments made on thi people with PCOS. We all suffer from the same heartbreak no matter what "package" we're in. We can't expect people that don't have PCOS to take his disorder seriously and show support for us if we don't first do it o rselves. Do I feel a twinge of jealousy when I see a thin woman? Of cour e!! However she can't help that she's thin, the same way I can't help th t I'm not. This is a support group for EVERYONE with PCOS, no matter wha they look like and I think we need to be a little more sensitive about hat we say and how we say it. Ladies, I feel your frustration on this po nt, but we do need to keep everyone's feelings in mind when we post on c rtain issues. After all, we're in this together, aren't we? Christie
>>
>>>>>----- Original Message -----
>>From: anonymous@obgyn.net
>>Sent: Monday, March 04, 2002 8:45 AM
>>To: Multiple recipients of list PCOS
>>Subject: Re: Spice Girl Reveals She has PCOS( Look here, Gemma and Anne )
>>
>>At Mon, 4 Mar 2002, UK wrote:
>>>Know what makes me angry? Your comments!
>>I am thin.
>>I do not have skin problems.
>>I don't have hirutism.
>>My hair is still thick.
>>I don't have boils.
>>I don't have skin patches.
>>I look like every other woman out there.
>>And I have PCOS just like the rest of you!
>>No, it doesn't show on the outside.
>>But my insides and self-esteem are just as scarred as yours.
>>I'm still at risk for developing diabetes and cancer.
>>So Gemma, what's so incorrect about the facts?
>>Beacuse she's the model type she could not have PCOS?
>>The fact is that PCOS carries many symptoms and not all of us display
>>them.
>>There is nothing glamourous about it!
>>The truth is, we didn't all get weight problems.
>>We didn't all get skin patches or acne.
>>And I am past offended that this network of supportive women would doubt
>>someone's elses illness because it didn't come in the usual package!
>>As a woman who does not fit the bill of having the disorder, I am upset.
>>I don't know what it's like to battle with the physical aspects of PCOS
>>and I don't pretend to know what it's like. But the emotional aspects
>>are very painful. And Anne, let me tell you remind you: as PCOS deals
>>with hormones, infertility is not a thin woman's only issue: we get to
>>deal with those great symptoms called physical pain, ain, depression,
>>poor self-image, low-self-esteem, horrible PMS, self-loathing,
>>self-doubt, suicidal urges, drug trials and fear of the future.
>>
>>The moral of this story: learn to be inclusive about our disoder, not
>>exclusive to certain symptoms. Where's the love for all women with
>>PCOS? PCOS is not something I would lie about. Who would want to? It's
>>not very glamourous, as a woman, to admit that you can't have children
>>in our society. Look at it this way: this increases public awareness
>>and education. Have you any idea how many thin women do not get
>>diagnosed because they do not show outward signs of the illness? More
>>education means more women diagnosed. More women diagnosed means more
>>medical research. More medical research means a chance for developing a
>>cure. Isn't that what we all want?
>>
>>Now, can we join your party?
>>
>>Natasha
>>
>>>Aaaaarrrrrgggghhhhh !!
>>>This really frustrates me !
>>>I know that a percentage of women with PCOS are lean but the majority do
>>>have a problem with their weight.
>>>I have finally discovered that there is a genuine medical reason for me
>>>being overweight, not just that I am a fat, greedy, lazy pig as I have
>>>always thought and been told.
>>>Then skinny women like Beckham go mouthing off about having PCOS and
>>>make it look all glamourous !!
>>>
>>>I personally think that she could have PCO but not PCOS - do you see any
>>>excess body hair, acne, hair thinning, boils, skin patches etc ?
>>>
>>>It's good to get this condition out there in the media but what's the
>>>point when the facts are not correct ?
>>>
>>>Grrrrrrr
>>>
>>>Gemma
>>>
>>>At Sun, 3 Mar 2002, anne wrote:
>>>>
>>>>This post was great for a bit of light relief, but I mean surely not? I
>>>>suppose PCOS is a spectrum of disorders or whatever, so it might be
>>>>possible, but do you really imagine they actually have PCOS as opposed
>>>>to PCO? And why can't I have the rather subtle type of PCOS that
>>>>involves looking like Victoria Beckham or Jules Oliver- as in thin,
>>>>hairless, full head of hair, normal skin, looking in fact like normal
>>>>women but more attractive than average? I mean I am not by any means
>>>>suggesting that the infertility/difficutly conceiving aspect isn't
>>>>extremely distressing, but this seems to be the only problem they would
>>>>have. And hello, is it really likely PCOS is going to make you thin?
>>>>This sounds like Victoria making up some old nonsense. I know it is
>>>>possible to be very thin and have PCOS, god knows our bodies seem
>>>>capable of any strangeness, but this really doesn't seem very likely. I
>>>>suppose one ought to be glad PCOS is beginning to get some coverage, at
>>>>least. (Darn it, why didn't this happen even just a few years ago? I
>>>>mean it took me months to find out what was wrong, then I was totally
>>>>misinformed and didn't get it treated!)
>>>>
>>>>At Sat, 2 Mar 2002, anonymous wrote:
>>>>>
>>>>>Spice Girl Reveals She has PCOS
>>>>>In a January interview with British Interview Michael Parkinson,
>>>>>Victoria
>>>>>Beckham, also known as Posh Spice, has let the world know that she has
>>>>>PCOS.
>>>>>Since that time, PCOS has received a lot of coverage in the UK. Beckh m,
>>>>>27, was diagnosed last year after she tried to concieve her second
>>>>>child.
>>>>>She is not the first famous British person to admit to having PCOS. n
>>>>>the
>>>>>last year, Jules Oliver, wife of the Naked Chef Jamie Oliver, and Kym
>>>>>Marsh,
>>>>>former singer for Hear'say have also come forward about having the
>>>>>condition.
>>>>>List of Recent PCOS Articles in British Media
>>>>>The Guardian
>>>>>http://www.guardian.co.uk/Archive/Article/0,4273,4364656,00.html
>>>>>Feelingfat.com http://www.feelingfat.net/articles/dietart24.asp
>>>>>BBC Watch Dog
>>>>>http://www.bbc.co.uk/watchdog/reports/reports_hcpolycystic.shtml
>>>>>Spice Girls Asia http://sgasia.tripod.com/spicegirlsoct67.htm
>>>>>Wellbeing Newsletter
>>>>>http://www.wellbeing.org.uk/pdf/newsletterspring2001.pdf
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