PCOS Messages for February, 2002: Re: newly diagnosed

Hi Desiree,

You said you had bulimia and though i don't know much about that i assume it causes the same problems as anorexia. Anorexia can stop your periods and this can continue for many years after you start to eat again. Also i do not know what tablets you are taking for the bipolar disorder and i don't know too much about it but some meds for depression contain hormones that screw up your own natural hormones DO NOT STOP TAKING THE MEDS but when you see your psyc try asking him about it. I have not found any literature that suggests a link between PCOS and pain but i am having severe abdo pain at the moment and the dr thinks it is certainly my ovaries causeing it but not because of the PCOS as such, it may be the high hormone production causing other problems and i am waiting for investigations to find out.

I would continue to tell your dr about your gyne problems and just keep pestering. If you are sure all the symptoms are PCOS then try colloecting info about it including tests that can be done to confirm it and then forward this information to your doctor. Try not to worry about it too much if you keep explaining to the drs they will start to listen if not change drs. You said that members of your mothers family have had cancer, did they get it at a young age?? If not then apparently there isn't such a high chance of you getting it. Also if they did get it young and you are very woried your dr can do genetic testing to see if you are suseptable to it and if you are then there are things they can do to lower your chances of having it and if you do get it it can be picked up quicker. Have a read back on some of the archives and it may give you some ideas of what to try next. Low carbohydrate diets help a lot of women with insulin resistance (me included!!) which is thought to be the cause of PCOS. It is worth a go!!!

Good luck

Lynsey Gilmore

>From: anonymous@obgyn.net (Desiree)

>Reply-To: anonymous@obgyn.net

>To: Multiple recipients of list PCOS

>Subject: newly diagnosed

>Date: Mon, 25 Feb 2002 19:03:34 -0600

>Hi,

>I am new to this forum. I have been reading a lot of the post and I

>wanted to say that I am also in my early 20s and I living in new york. I

>feel like I have been suffering from this for years and am just finding

>out what is wrong with me. My periods have always been irregular, i

>even had a full blown period at the age of 4. I was always a little

>overweight, but then suddenly my junior year of college I gained around

>sixty pounds. I thought I was just eating wrong, at the time I was

>bulimic, so I just got more and more down on myself. But recently I

>noticed my periods were even more irregular. I haven't had a period in

>over a year. I went to my doctor to have a pap smear and she had said

>sge thought i had cystemic ovaries. I tried to look that up and it came

>up polycystic ovaries and I saw a picture of one. She sent me for an

>ultrasound and I saw the same picture on the monitor. When I got home I

>read the symptoms, hairiness, darkened skin on neck and under breast,

>weight gain around the middle, high cholesterol, high prolactin, (i had

>these test when i was in the hospital and they were both elevated), and

>pain in my abdomen. The doctor sent me a letter saying that everything

>was fine and I knew she was wrong so I went to an old gyn. I saw a

>physican's assistant. She didn't even entertain what I told her she

>just gave me provera and birth control pills. ( I read about provera

>that it causes weight gain and depression, I am already very overweight

>and I suffer from Bipolar disorder so bad that in the past two years i

>was hospitalized 7 times.) So I looked for a specialist, I found one but

>needed a referal, back to the internist I went. She was very reluctant

>and two weeks later now I still don't have an appointment set up. She

>said that the cyst were so small the couldn't cause pain and that the

>pain is all in my head. She did the hormone test and found they were

>irregular but didn't see that anything is wrong. So now I am in extreme

>pain, depressed because noone is behind me except my family and worried

>about everything from hairs on my face to cancer. (my grandma and aunt

>died of cancer) Anyway, I just was wondering what i should do next and

>what treatment options there are and which one are the best. Thank you

>--

>Desiree

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