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Re: argument
From: Koolaide (anonymous@obgyn.net)
Mon, 25 Feb 2002 00:01:25 -0600 (CST)
I'll chime in on this one briefly. I belive this forum is for helping
not preaching. This syndrome is so diverse, you can't help but know the
treatments would be the same. Lets get back to the helping and
supporting each other. We are not here to make people feel bad. No one
here is the sole authority on PCOS, we are merely people who have it and
inform ourselves and help each other. That's it. Thanks Victoria for
bringing it up, as I was about to ! lol
Bonnie
At Sun, 24 Feb 2002, Victoria wrote:
>
>I also have been quite honest in the bias on the pushing Metformin here.
>Metformin is an excellent choice for PCOS. However, I didn't see anywhere that
>said when I joined this list, that this is a 'you must believe that PCOS = IR you must take Metformin or you aren't making the right/correct choice for your
>health' list. That is the impression I'm getting. Maybe obgyn.net should make a
>public statement about the direction of the list, whether only one brand/belief
>or type of treatment for PCOS is welcome or not. If not, then it is fair to ask
>that all attitudes and treatment methods be accepted here. That means that just
>because someone else has a different treatment or method, they aren't told to
>leave, are told don't know what they are talking about, or are wrong because it
>doesn't match up with some elses'.
>
>Other lists do present questions that are off topic and they get answered. The
>diabetic and PCO newsgroups have had NIIDM/PCOS questions posted and answered
>before, no problem. If this isn't a list for diabetic experts, then why are we
>putting so much emphasis on Metformin and prevention of Type II diabetes? Surely
>some ladies on here are NIDDM and have ties in both areas. Kristy could have
>been told up front that that was a question best answered elsewhere. Why not?
>
>In a head to head battle, in a resource I have put across before, diet and
>exercise beat Metformin from 58% to 31% in the prevention of Type II Diabetes.
>So if we all want the best for each person, shouldn't we also include more low
>carb diet information, more support for those trying to manage diet and
>exercise, not just taking a pill? If diet and exercise beat Metformin, then that
>does indicate that there are possibly other factors at work that affect our
>ability to get NIDDM, or that Metformin is not what we originally thought it
>was. I was all fire on for d-chiro-inositol. By the time it came for me to get
>in the study, I couldn't. Why? Because my testosterone levels were not high
>enough, I was told. From the time they started the studies and the data had been
>correlated, it seems that d-chiro-inositol worked best for those with high
>levels. So to get it it approved (or as I was asked, "Don't you want this drug
>to be approved?") the data has to look good, and that means accepting the most
>people that it will work best for.
>
>If you work for or have dealings with any group or person that is associated
>with BMS, or has connections to BMS or any of its companies, please let us know.
>No one wants to say who they are, but are you willing to say this?
>
>On one other list I belong to we have had anonymous posters. I find it
>interesting that the same types of styles in posting and ideas are here also. In
>addition, no one can tell whether or not one person or multiple person's posted
>the different stories going against Kristy's.
>
>It is correct in that we are not sure what the direct cause of PCOS is. Although
>an insulin problem is the most likely explanation at this point, there was
>discussion on another list about the possibilities of two different causes of
>PCOS.
>
>As for the comment on people unwilling to read research papers, please check the
>Mon, 4 Feb 2002 00:40:12 -0600 (CST) posting on Re: BCP (changed subject line).
>Belle wouldn't read my references that did offer a different viewpoint on BCP.
>We all complain about medical healthcare professionals that won't read our
>literature to give us Metformin, however its ok when Belle won't read other
>literature on the safety of BCP, but Kristy got negative comments for not
>reading the articles here. In speaking with some of my health professional
>friends, we all applaud Belle for all the work she's done and the well thought
>advice on a number of issues. So why not read the opposing literature? One of
>the anonymous posters said that "I feel very sorry for close minded people that
>think they know it all." If Kristy has a closed mind for refusing to believe
>this, then what about Belle and the refusal to read my literature?
>
>I also have several medical problems, as does Kristy. Actually she has more. She
>probably has not gone over everything in her medical history to really give
>Belle enough info to make a judgement on her situation. In fairness to both
>Kristy and Belle, if Belle doesn't know the history, Belle can't make a
>recommendation, anymore than a doctor can only getting part of the story. I know
>that my doctor had to take into account several other problems before we
>discussed my taking Metformin, how I took it, etc.
>
>Belle was given high marks from the couple of professionals I know for her
>knowledge. However, the anonymous posters blew a lot of that respect out of the
>water. From what I've seen, Belle has worked hard for what she has. I would say
>she deserves the respect to be proud of being her friend. I am not really a
>close friend of Kristy's, however I've talked with her a few times privately and
>found her to be a decent person. I'm proud to speak on her behalf, mine, and
>also those who I've talked about before: those who are afraid to post on lists
>because of the reactions Kristy has received. If the "standards of this board
>rank about bickering and arguing", then it could have been taken privately as
>Kristy tried to do. Belle does not strike me as someone who will walk away from
>this board, helping people out, because of Kristy or me or anyone else.
>
>--
>Victoria
>
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