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Re: Noticing Other Women With PCOS...

From: Sonnet (anonymous@obgyn.net)
Fri, 25 Jan 2002 01:37:25 -0600 (CST)


This post DOES raise some very valid points, as I'm sure we'll all agree! Just to counter a bit of it though, remember that sooo many of us went for years WITH doctors who never told us about PCOS or who told us and never treated us. The vast majority of women who suffer from PCOS remain undiagnosed. Also remember that last time we talked about this, the general feeling was "You know, I wish someone had come and talked to me years ago, it would have saved me so much suffering." Of course people don't want to be told "Hey I noticed you're really bald and fat!" But on the other hand, we also have an opportunity to prevent others from going through the years of hell we all went through pre-diagnosis. It all depends on how it is done and if it can be accomplished in a way that treats this other woman with respect and dignity, which she deserves.

At Tue, 22 Jan 2002, anonymous wrote: >
>At Mon, 21 Jan 2002, Chris wrote:
>
>You aren't a specialist,and you are not in any postition to selectively
>chose someone and inform them that they may have this syndrome.
>
>Just because this woman has thinning hair and is obese and some excess
>hair,does not mean that she has the syndrome.
>Possibly ,she can have some thyroid abnormality,she can have another
>illness.
>So she has some pitting on her face.???//So do alot of people!
>This is getting to be ridiculous.
>Some women now are going to go to shopping malls and pick and chose whom
>to diagnose?Half of the women in my town are obese and have thinning
>hair-do I assume that all have this syndrome?
>
>I would say,'keep your nose out of it'.
>If it were a friend or a collegue,then by all means,it wouldn't hurt to
>suggest the disorder,but we cannot go around and misinform people.
>
>I am certain that this woman has a doctor,and if she looks like the
>poster child for PCOS,then I am certain that her doctor is already
>looking at the causes.
>There is nothing worse that being told you have some syndrome.
>Women with hairloss,obesity,acne,hirtuism-have enough low self esteem.
>To start to go around and tell people that "you noticed that she has
>some hair loss",can be devestating.
>You should know better than that.
>To leave a mysterious print-out on her desk is obsurd.This can cause
>alot of conflict in the office.It is like getting a note saying you have
>body odour in a nice way.
>
>I found this message very disturbing-as when I had cancer,the last thing
>I wanted people to ask me about,was my hairloss.
>Just leave her be please!

--
Email always welcome: sonnet@pcosupport.org



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