Re: PCOS by any other name....
From: SusieQ (anonymous@obgyn.net)
Fri, 11 Jan 2002 00:23:38 -0600 (CST)
Hi Sonnet,
I tell people that I have Stein-Leventhal Disease, and that is what I
think this disorder should be called. I think that the original
scientists who discovered the published research about the disorder
should be given credit - it was called Stein-Leventhal Disease until the
1980's when someone else decided it was pcos.
Another doctor has decided the whole disorder should be called Syndrome
O, you can read his remarks here:
http://www.reproductiveassociates.org/syndromeo.html
Stein and Leventhal made the first discovery and did the first research,
they get my vote for first name.
Just MVVHO - SusieQ
>
>Okay, just because I think we need another debate in here!!! (Note I
>said debate, I really don't intend this to turn into a flame war of any
>sort, I'm just trying to generate some discussion on it.)
>
>We have talked in the past about the need to come up with a new name for
>PCOS, because our understanding of what PCOS is and what causes it has
>changed.
>
>People seem to feel very strongly on the subject (I know I do!) and I am
>wondering what all of you, women who have PCOS, think! Do you think the
>name should be changed? What pluses and minuses do you see to changing
>it? What would you call it? (I have heard everything from "Syndrome O"
>to "Hyperandrogenic Metabolism Disorder" to "Diabetes Type III!")
>
>Personally, I think it desperately needs to be changed. You know how
>many women come on this forum and ask about having their ovaries /
>utuerus removed will help them. And women whose doctors insist they
>don't need treatment because they have no cysts. I think we'd all
>benefit from a name change!
>
>My choice of name used to be "Diabetes Type III" just because I figured
>it would make the medical profession sit up and take more notice of us
>if we linked PCOS to diabetes by name, as well. But today I am leaning
>towards HMD, because it accurately describes what's going on with us. I
>definitely don't want Syndrome O, it's just as nebulous as PCOS, with a
>sort of air around it that makes me not want to take it seriously as an
>illness.
>
>Thoughts?
>
>--
>Sonnet Fitzgerald, PCOS Association, Online Community Liaison. Email: sonnet@pcosupport.org
>
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