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Re: PCOS by any other name....
From: Isabella (anonymous@obgyn.net)
Wed, 9 Jan 2002 08:08:52 -0600 (CST)
I agree that HMD is a better choice than Diabetes Type III, as its more
accurate and IR is more like the oposite of diabetes, but I do see where
you are coming from. The only problem is, as you pointed out, if you
change the name now, it might become even more confusing. However,
having said that, we've managed (more or less) move on from Stein
Leventhall Syndrome, which has GOT to be a good thing!! :-) So maybe if
we all press for a change now, it will become accepted more quickly.
Anything that helps speed up the correct diagnosis for fellow sufferers
has got to be a good thing. And as a straw poll, none of my friends
have ever known what PCOS is or what the name stands for, so maybe now's
the moment?
At Tue, 8 Jan 2002, Sonnet wrote:
>
>Okay, just because I think we need another debate in here!!! (Note I
>said debate, I really don't intend this to turn into a flame war of any
>sort, I'm just trying to generate some discussion on it.)
>
>We have talked in the past about the need to come up with a new name for
>PCOS, because our understanding of what PCOS is and what causes it has
>changed.
>
>People seem to feel very strongly on the subject (I know I do!) and I am
>wondering what all of you, women who have PCOS, think! Do you think the
>name should be changed? What pluses and minuses do you see to changing
>it? What would you call it? (I have heard everything from "Syndrome O"
>to "Hyperandrogenic Metabolism Disorder" to "Diabetes Type III!")
>
>Personally, I think it desperately needs to be changed. You know how
>many women come on this forum and ask about having their ovaries /
>utuerus removed will help them. And women whose doctors insist they
>don't need treatment because they have no cysts. I think we'd all
>benefit from a name change!
>
>My choice of name used to be "Diabetes Type III" just because I figured
>it would make the medical profession sit up and take more notice of us
>if we linked PCOS to diabetes by name, as well. But today I am leaning
>towards HMD, because it accurately describes what's going on with us. I
>definitely don't want Syndrome O, it's just as nebulous as PCOS, with a
>sort of air around it that makes me not want to take it seriously as an
>illness.
>
>Thoughts?
>
>--
>Sonnet Fitzgerald, PCOS Association, Online Community Liaison. Email: sonnet@pcosupport.org
>
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