Re: PCOS by any other name....
From: UK (anonymous@obgyn.net)
Wed, 9 Jan 2002 02:25:46 -0600 (CST)
I totally agree.
The cysts on our ovaries are just a symptom of the condition not the
cause so the name should definitely be changed.
It confuses a lot of people by calling it PCOS.
I would prefer not to have it called something to do with Hormones as
that tends to lead people to think that you will be this 'mood swinging'
monster (even though sometimes I am :o) !)
I tend to tell people that I have insulin resistance which leads to
'other problems' at that's all they need to know really. I'm too
embarrassed to explain all the symptoms.
Will be interested to hear other peoples ideas.
Gemma
At Tue, 8 Jan 2002, Sonnet wrote:
>
>Okay, just because I think we need another debate in here!!! (Note I
>said debate, I really don't intend this to turn into a flame war of any
>sort, I'm just trying to generate some discussion on it.)
>
>We have talked in the past about the need to come up with a new name for
>PCOS, because our understanding of what PCOS is and what causes it has
>changed.
>
>People seem to feel very strongly on the subject (I know I do!) and I am
>wondering what all of you, women who have PCOS, think! Do you think the
>name should be changed? What pluses and minuses do you see to changing
>it? What would you call it? (I have heard everything from "Syndrome O"
>to "Hyperandrogenic Metabolism Disorder" to "Diabetes Type III!")
>
>Personally, I think it desperately needs to be changed. You know how
>many women come on this forum and ask about having their ovaries /
>utuerus removed will help them. And women whose doctors insist they
>don't need treatment because they have no cysts. I think we'd all
>benefit from a name change!
>
>My choice of name used to be "Diabetes Type III" just because I figured
>it would make the medical profession sit up and take more notice of us
>if we linked PCOS to diabetes by name, as well. But today I am leaning
>towards HMD, because it accurately describes what's going on with us. I
>definitely don't want Syndrome O, it's just as nebulous as PCOS, with a
>sort of air around it that makes me not want to take it seriously as an
>illness.
>
>Thoughts?
>
>--
>Sonnet Fitzgerald, PCOS Association, Online Community Liaison. Email: sonnet@pcosupport.org
>
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