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Re: PCOS by any other name....
From: Renee (anonymous@obgyn.net)
Tue, 08 Jan 2002 19:26:24 -0800
I too like the HMD, since it has metabolism in the name. That is easier to
explain to someone why we have some extra weight-- it's not that we eat potato
chips and chocolate bars all day as a couch potato. However, it is heavy on
the testosterone and light on the insulin, which is the key thing in the
disorder. Maybe a name that has something about hyperinsulinemia in it.
Hyperinsulinemic Metabolism Disorder, perhaps?
Renee
Sonnet wrote:
>
> Okay, just because I think we need another debate in here!!! (Note I
> said debate, I really don't intend this to turn into a flame war of any
> sort, I'm just trying to generate some discussion on it.)
>
> We have talked in the past about the need to come up with a new name for
> PCOS, because our understanding of what PCOS is and what causes it has
> changed.
>
> People seem to feel very strongly on the subject (I know I do!) and I am
> wondering what all of you, women who have PCOS, think! Do you think the
> name should be changed? What pluses and minuses do you see to changing
> it? What would you call it? (I have heard everything from "Syndrome O"
> to "Hyperandrogenic Metabolism Disorder" to "Diabetes Type III!")
>
> Personally, I think it desperately needs to be changed. You know how
> many women come on this forum and ask about having their ovaries /
> utuerus removed will help them. And women whose doctors insist they
> don't need treatment because they have no cysts. I think we'd all
> benefit from a name change!
>
> My choice of name used to be "Diabetes Type III" just because I figured
> it would make the medical profession sit up and take more notice of us
> if we linked PCOS to diabetes by name, as well. But today I am leaning
> towards HMD, because it accurately describes what's going on with us. I
> definitely don't want Syndrome O, it's just as nebulous as PCOS, with a
> sort of air around it that makes me not want to take it seriously as an
> illness.
>
> Thoughts?
>
> --
> Sonnet Fitzgerald, PCOS Association, Online Community Liaison. Email: sonnet@pcosupport.org
>
--
Renee Cordrey, MSPT, MPH, CWS
---
Don't follow in the footsteps of the masters. Seek what they sought.
--Zen saying
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