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Re: To Barbra re: lupus, immune deficiencies from Mel
From: Melanie (anonymous@obgyn.net)
Tue, 8 Jan 2002 05:38:20 -0600 (CST)
Hi Barbara
M.E was called Yuppi Flu in the early 90's, i dont know the medical name
for it it is knows as Chronic Fatigue Syndrome ( spelling is not a great
strength!) I had some lymphatic drainage treatment, that did help but
also flushed out the lactic acid. This causes muscle pain, oh i just
remembered magnesium , i took mag because a deficiency causes muscular
tearing, causing pain and a lactic acid build up. I know it is waffled
however even if it helps a little! Lavinder oil is really stinky but
really soothing , watch out for rather odd vivid dreams ( i have found
them to be a little erotic actually if i use lavinder)
If this helps then superb if not i will keep rackng my rather tired
brain!
Keep well and TAKE IT EASY LADY, put you first and have a good cry at
least once a week, i find a good howl clears my head.
You are in my thoughts, take care
((((((( great big hugs))))))
Mel
At Mon, 7 Jan 2002, Barbra wrote:
>
>At Mon, 7 Jan 2002, Melanie wrote:
>>
>>Hi This may be totally unrelated but 2 years after i was diagonsed with
>>psoc i was diagnoised with ME, I have suffered with an' impaired' immune
>>system eversince, 9 years. I too am ill oftain, if there is a bug going
>>around i catch it, and boy is that hard to get accress at work , you
>>know that you ARE actually ill and not just takng time off for the sake
>>of it.
>>I have found that complemeentry medicine does help, pine bark extract
>>and also niastatin ( sorry spelling) an antibiotic in a pure form,
>>evidently the sugar cravings increase the chances of candida which gives
>>you yeast infections and that makes you tired and so on. The niastatin
>>did really help but you can only take it for a limited time as it is an
>>antibiotic.
>>Are you really tired during the day, infact exhausted but find it really
>>hard to gfet to sleep and are therefore even more frustrated and
>>exhausted in the morning, and when you are off work at the weeknd do you
>>find that you can sleep fopr England , well USA in your case. I can
>>easly sleep until 12:00 at the weekend which drives my husband mad at
>>times as the weekend seem to be so waisted, he works ling hours so the
>>weekend is the only Q.T we have together. Ant suggestions.
>>Do you find you have very tender erm breasts? painfull to toach let
>>alone put in a bra?
>>Take care, hope to hear soon
>>Mel
>>At Sun, 6 Jan 2002, Sonnet wrote:
>>>
>>>Barbara, I'd sure appreciate hearing more about what's going on with
>>>your body and how this all ties in with your lupus. I know there have
>>>been a few women on this board with lupus (I am personally convinced
>>>that PCOS is at least in part auto-immune, which is why we all have such
>>>trouble with lupus, Chrohns, some with MS, thyroid problems, etc.)
>>>
>>>I ask because I have had little to no immune system the past 3 years. I
>>>have had glandular fever more than once as well as mono. (All the
>>>Epstein Barr stuff.) I am sick just about constantly, I don't think I've
>>>gone a full week in 3 years without having an infection of one kind or
>>>another, even if it's just a little cold. Does this sound like what you
>>>went through? What sort of problems did it eventually cause for you? How
>>>would you have treated it differently if you could?
>>>
>>>Thanks!
>>>
>>>At Sun, 6 Jan 2002, Barbra wrote:
>>>>
>>>>I,too agree,that if I had been sent to the proper specialist when I
>>>>first had complaints of PCOS..this lupus could have been avoided.
>>>>My lupus was drug induced,as I always had glandular fevers,mono and a
>>>>weakened immune system.The docs thought of me to be just a highly
>>>>stressed woman and to seek the help of a shrink to help me deal with my
>>>>so called 'hypochondriasis'.
>>>>They said my symtpoms were puzzling and didn't fit in to their so called
>>>>book of diseases.
>>>
>>>--
>>>Sonnet Fitzgerald, PCOS Association, Online Community Liaison. Email: sonnet@pcosupport.org
>>>
>Hi Mel,
>
>No,I don't find that we have the same symptoms at the present,possibly
>some.
>By the way,what is ME?Sorry,new to all these medical terms=)
>
>I used to get alot of viral things,colds,flu,etc,and alot of strep
>throat,but since the last year and a half(touch wood),apparantly,my
>immune system is very good.
>This year here in Winnipeg,Manitoba,Canada,we have cold winters,everyone
>in my family had colds and flu and my husband is really sick,but I seem
>now to be immune to the catching the viral thing and or infections
>anymore.I have been around alot of people this year,most having colds
>and flu,that I normally would have caught in a heartbeat in the past,but
>not this year,and possibly too,may be attributed to the
>complimentary,natural meds and alot of chelated vitamin and mineral
>therapy.I too,have used Pine Bark extract and Ecquanecia(sorry bout the
>spelling,,my big downfall here).Also,alot of other immune system
>boosters in herbal form.It is possible that they have made a
>difference,I think that they have,but I still have all the other issues
>to deal with.Wish I could find a remedy for them!=)I don't have sore
>breasts at all,but they do get tender before onset of menses,but that
>was always normal for me.
>
>I do get tired,very tired,it is more of a complete exhaustion at times
>that is awfully draining,but related to my lupus flares,and in all
>probability the PCOS and IR.
>I don't sleep like a normal person,I am dead during the daylight and
>come alive at night,till the wee hours of the morning,That is the only
>time I feel okay.Seems my adrenaline surges go down and my cortisol is
>up during the day and lowers during the nite time.I usually go to sleep
>like the night shift workers....I go to sleep anywhere between five
>a.m-seven a.m and sleep till one in the afternoon or maybe two.
>I am worse upon waking up,whatever time that may be.It takes me four
>hours till I can manage the strength to shower and dress,then I am so
>tired,that I sit in my chair for over an hour with severe heart palps.
>
>Then I get the surges of adrenaline,where I feel that I can go ahead and
>do something,but when I attempt to,I fail and that brings me down.In my
>case,it is not till about after midnight that I get normal energy that
>lets me do things,like clean a little and cook,so I have to take
>advantage of it while I have the energy and not so much pains in my
>legs.
>
>Like today,I had made a tentative plan with a friend to go for lunch.I
>got up as planned,but no way could I even attempt to get ready.I am too
>exhausted.If I did go,I would suffer greatly the day.I have to do when I
>can and stop when I know I cannot.So very hard not to be able to commit
>to anything.I feel so bitter at times when I see how easy my life once
>used to be and now everything is so difficult for me to do.Like now,my
>legs are numb and purple and tingling,,,,,driving me nuts!
>
>Keep in touch,
>(((((((hugs))))))))......p.s. I copied that from Panacea=)
>
>--
>Sincerely,
>Barbra Camara
>
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