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Re: To Barbra re: lupus, immune deficiencies etc. (Was re: test results)From: Barbra (anonymous@obgyn.net)Tue, 8 Jan 2002 04:31:43 -0600 (CST)
At Mon, 7 Jan 2002, Belle wrote: > >Because of the connection with insulin and the genetic links, many >endocrinologists do consider PCOS to be auto-immune even though it has >not officially been classified as such yet. As we know, if you get one >auto-immune disorder, you are more likely to get another. > >Mononucleosis has been linked with auto-immune disorders in itself. Just >last week (Thursday or Friday?) research was completed and a >recommendation was sent out alerting doctors that if a client has a >history of mono, they are more likely to have MS. It has been widely >known that if you had mono, you are more likely to have an auto-immune >disorder. > >Drug-induced lupus is not an auto-immune disorder. It is a symdrome >that closely resembles systemic lupus erythematosus (SLE) but does not >have the same bloodwork results (the absence of anti-nuclear >anti-bodies), the same kidney problems, etc. It will normally end when >the client stops using the drugs which cause the symptoms. The most >common drugs causing the symptoms are hydralazine (a drug for >hypertension), isoniazid (a drug for TB), many anti-convulsants and >procainamide (a drug prescribed for arrhythemias). If the problem is >caused by SLE, treatment or the lack of treatment would not have changed >the course of that since real lupus is a result of the body attacking >itself. Unless you receive one of the drugs that brings on drug-induced >lupus, the misdiagnosis that you possibly received for your PCOS did not >bring it on. > >Not receiving treatment for PCOS can not lead to the development of >auto-immune *or* mental problems. It may lead to the development of >diabetes or heart disease because of the insulin problems. Not >receiving treatment for PCOS may lead to endometrial cancer because of >the lack of periods that is common with women with PCOS. > >When you get a diagnosis that is scary, it is common to want to blame >someone or something but it is not always possible to place blame on >something else. Sometimes, it is just the way things work out. > >At Sun, 6 Jan 2002, Sonnet wrote: >> >>Barbara, I'd sure appreciate hearing more about what's going on with >>your body and how this all ties in with your lupus. I know there have >>been a few women on this board with lupus (I am personally convinced >>that PCOS is at least in part auto-immune, which is why we all have such >>trouble with lupus, Chrohns, some with MS, thyroid problems, etc.) >> >>I ask because I have had little to no immune system the past 3 years. I >>have had glandular fever more than once as well as mono. (All the >>Epstein Barr stuff.) I am sick just about constantly, I don't think I've >>gone a full week in 3 years without having an infection of one kind or >>another, even if it's just a little cold. Does this sound like what you >>went through? What sort of problems did it eventually cause for you? How >>would you have treated it differently if you could? >> >>Thanks! >> >>At Sun, 6 Jan 2002, Barbra wrote: >>> >>>I,too agree,that if I had been sent to the proper specialist when I >>>first had complaints of PCOS..this lupus could have been avoided. >>>My lupus was drug induced,as I always had glandular fevers,mono and a >>>weakened immune system.The docs thought of me to be just a highly >>>stressed woman and to seek the help of a shrink to help me deal with my >>>so called 'hypochondriasis'. >>>They said my symtpoms were puzzling and didn't fit in to their so called >>>book of diseases. >> >>-- >>Sonnet Fitzgerald, PCOS Association, Online Community Liaison. Email: sonnet@pcosupport.org >> >-- >Hope this helps, > >Belle > HI Belle, Yes this did help alot. Thanks a bunch,something to discuss further with my specialist/.MS was what they were looking for in the first place,but only one MRI and proved to be normal brain function-it was a c-spine up scan.Actually,I am scheduled for another one in two months,for what,I am uncertain. Thanks again-your message was very informative indeed.
-- Sincerely, Barbra Camara
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