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Re: To Barbra re: lupus, immune deficiencies from MelFrom: Melanie (anonymous@obgyn.net)Mon, 7 Jan 2002 06:50:01 -0600 (CST)
Hi This may be totally unrelated but 2 years after i was diagonsed with psoc i was diagnoised with ME, I have suffered with an' impaired' immune system eversince, 9 years. I too am ill oftain, if there is a bug going around i catch it, and boy is that hard to get accress at work , you know that you ARE actually ill and not just takng time off for the sake of it. I have found that complemeentry medicine does help, pine bark extract and also niastatin ( sorry spelling) an antibiotic in a pure form, evidently the sugar cravings increase the chances of candida which gives you yeast infections and that makes you tired and so on. The niastatin did really help but you can only take it for a limited time as it is an antibiotic. Are you really tired during the day, infact exhausted but find it really hard to gfet to sleep and are therefore even more frustrated and exhausted in the morning, and when you are off work at the weeknd do you find that you can sleep fopr England , well USA in your case. I can easly sleep until 12:00 at the weekend which drives my husband mad at times as the weekend seem to be so waisted, he works ling hours so the weekend is the only Q.T we have together. Ant suggestions. Do you find you have very tender erm breasts? painfull to toach let alone put in a bra? Take care, hope to hear soon Mel At Sun, 6 Jan 2002, Sonnet wrote: > >Barbara, I'd sure appreciate hearing more about what's going on with >your body and how this all ties in with your lupus. I know there have >been a few women on this board with lupus (I am personally convinced >that PCOS is at least in part auto-immune, which is why we all have such >trouble with lupus, Chrohns, some with MS, thyroid problems, etc.) > >I ask because I have had little to no immune system the past 3 years. I >have had glandular fever more than once as well as mono. (All the >Epstein Barr stuff.) I am sick just about constantly, I don't think I've >gone a full week in 3 years without having an infection of one kind or >another, even if it's just a little cold. Does this sound like what you >went through? What sort of problems did it eventually cause for you? How >would you have treated it differently if you could? > >Thanks! > >At Sun, 6 Jan 2002, Barbra wrote: >> >>I,too agree,that if I had been sent to the proper specialist when I >>first had complaints of PCOS..this lupus could have been avoided. >>My lupus was drug induced,as I always had glandular fevers,mono and a >>weakened immune system.The docs thought of me to be just a highly >>stressed woman and to seek the help of a shrink to help me deal with my >>so called 'hypochondriasis'. >>They said my symtpoms were puzzling and didn't fit in to their so called >>book of diseases. > >-- >Sonnet Fitzgerald, PCOS Association, Online Community Liaison. Email: sonnet@pcosupport.org >
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