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Re: test resultsFrom: Barbra (anonymous@obgyn.net)Sun, 6 Jan 2002 06:33:03 -0600 (CST)
At Sat, 5 Jan 2002, Amy wrote: > >>Belitting anyone my A##!!!!!! That signature was a simple text line of >>mourning, mourning for my fate and the fate of many other women, young >>and old, who are dealing with this every day and get little if ANY help. >> >>Don't you worry. I'm sure I'll go through just as much sh*t as you or >>anyone else has, before this is over (before I am over). So I suppose >>I'll get more than my fare share. So rest easy. >> >>-- >>Panacea >> >Panacea, > >I am sorry you feel bad. I read this line of posts and it came across >to me that belle was just trying to explain to you that NO ONE has >gotten treatment before about 3 years ago. Sometimes I take things the >wrong way and I have to let my husband read it so I can get a different >opinion. This really helps me a lot. she did not say anything bad >about you. She did not try to say that you had not suffered. Belle has >been trying to help us. I am sure that she spemt a lot of time trying >to help you with your lab results. Your last paragraph made me feel so >sad for you. No one heere wants anyone to have problems, it is not fair >for you to make that kind of a statement. I hope you get the help that >you need to make it through the bitterness that you feel and the PCOS. >This board has been encouragement for so many people. I hope that it >can be for you to. Take care, > >-- >Amy > To All, We are in this together! Whether it be one year or twenty years before diagnosis----and or treatment---all is the same----we all SUFFER,AND SUFFER TOO MUCH! I empathize,sympathize with every single one of you out there. Some have problems worse than others,but none the less,we all suffer so many problems. The drastic mood swings are something that we don't want to have--we just have them. I am in one of my insomniac moments at the time--so bear with me,if I am mis-spelling anything,or even if this makes sense. Please all bear in mind that we all have suffered a great deal. It does not matter when you were diagnosed,in all probability,most of us had this since we began menestrating,as I now have learned so much from this site. I now know that I must have had this since I began menestration when I was ten. That is when I gained weight.then stopped eating and was anorexic at age 11. was anorexic at the time,so when I lost a tremendous amount of weight for no apparant reason back in 1997...no doctor was familiar with how to treat my illness,as of course,I had already have a past experience with being anorexic at age eleven,as I was teased like crazy and called :"miss piggy". Even if someone suffered a day,it is too long! I sympathize so much with Panacea after reading her posts and she is a very caring person.I have learned alot about my illness/syndrome from reading all her posts. Turns out that here in Canada/Winnipeg,Manitoba-there are not really any doctors familiar with the syndrome accept my psychiatrist,for he is studying IR and he is actually the one that referred me to an endo. Now,get this,even tho,I suffer horrible anxiety,panic,I do have heart abnormalities,some vascular problems and lupus taboot....my specialist thinks it is best to not give me any medication at all and that just sucks. I asked about all the meds out there that you women were discussing and he basically shrugged it off,even after I brought him in pages of info about this syndrome.This A whole of a doctor thinks and told me that PCOS is not life threatening.How do you think I feel? I begged him to put me on something for my high androgen,Dhea's and testosterone.....he just walked away. Deal with it,I suppose. My life is a nightmare and I am at a witts end here too. what do I do? In defense of Panacea,I agree that if this would have been taken more seriously when we first started complaining,we could have at least gotten treatment early enough to prevent further problems!I am darn bitter too,,you bet I am! Someone a while ago posted a message that I found to be disturbing-it was something to the effect that with all the maladies out there,doctors don't have the time to find everything>I disagree.They should give us more than a ten minute visit and LISTEN to our complaints. I,too agree,that if I had been sent to the proper specialist when I first had complaints of PCOS..this lupus could have been avoided. My lupus was drug induced,as I always had glandular fevers,mono and a weakened immune system.The docs thought of me to be just a highly stressed woman and to seek the help of a shrink to help me deal with my so called 'hypochondriasis'. They said my symtpoms were puzzling and didn't fit in to their so called book of diseases. Now,I am gaining weight by the minute,,,,,,,when I first started on the forum.I was not overweight,or so I was told.In the last few weeks,I ballooned about fifteen pounds and not eating any differently. So what is the scoop on this? Sorry that I am rambling-but we are all in this together-some worse than others,but all suffering. I also had a biopsy Wednesday,on my ovary! What next? I am willing to try anything to give me relief from this anxiety,exhaustion and depression.I don't think I can get better without treatment. Yeah,when I have a decent day,I can go on and say,"do yogaa,do this,try homeopathy and try aromatherapy....but is this going to help me?I think not. There I go,trying to give hope to others when I think that I have found some relief for a day.Sorry,but some things have cleared up for me on my own and I don't understand why,but I need some meds for my IR. I am certain that all will agree that this illness controls us!We cannot control it without proper medical care and treatment. To all the woman suffering---I send prayers! Maybe this is a time for us to stop and think how WE FEEL,then we will be able to send a kind word of encouragement to others,as we are all angry and depressed about our health and with good right for mourning our losses. I am going to post a poem for all out there to read for some encouragement! Be Well!
-- Sincerely, Barbra Camara
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