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Re: D-CHIRO-INOSITOL --buckwheat bran?
From: cat (anonymous@obgyn.net)
Sat, 15 Dec 2001 17:10:11 -0600 (CST)
Hi Celeste, thanks for all the info, I will go and find those articles!
I wish I could join some of those clinical trials but I am in the UK,
which seems to still be in the stone age for pcos treatment, most docs
don't even know about using metformin for pcos!
Take care,
cat
At Thu, 13 Dec 2001, Celeste wrote:
>
>At Wed, 12 Dec 2001, cat wrote:
>>
>Hi Cat, I am not good at bookmarking links, but I can tell you where I
>found out most of the info I have. It is on http://www.soulcysters.com. The
>lead researcher is Dr. John Nestler, and all of his PCOS research
>papers are links on that site. Also he is the lead researcher for the
>drug company Insmed, and their site has a little info at http://www.insmed.com.
>The actual drug name is INS-1.
>
>At http://www.centerwatch.com you can find out about clinical trials for
>d-chiro; be sure to look under PCOS, endocrine disorders, women's
>health, and ob/gyn to make sure you have found all possible ways it can
>be listed; also you may have to do some emailing because they don't
>always mention *which* drug they are testing--it could be Met, Avandia,
>Actos, etc. When you enter a clinical trial you have a 50% chance of
>getting the drug or not. I came very close to getting into a study on
>it locally (there were delays in getting the medication from the
>manufacturer and since you have to be off all meds prior to the start, I
>couldn't live with my symptoms any longer and bowed out). They gave me
>plenty of information on it at the trial clinic. They had already done
>some trials there and it was fascinating to hear how well the stuff
>worked on the ladies who got. Ovulation resumed and they felt a million
>times better; it was not a magic weight loss pill but "normal" methods
>of weight loss seemed to work a whole lot better.
>
>The folks at http://www.minndak.com are marketing the d-chiro aspect of
>farinetta buckwheat bran as healthful in ways beyond PCOS treatment, but
>they will send you a huge supply for free if you want to try it. They
>suggest adding it to hot cereal, pancakes, chili, shakes, and baking
>flours. However any of these are too carby for me since I follow Atkins
>lowcarb dieting, and the product only added more carbs to it.
>
>I have Dr. Nestler's email address at home if you would want that; he
>is very friendly and answers emails, but he truly does not believe you
>can adjust diet to replace d-chiro. I think he really wants to help,
>and I also believe that sometimes holistic measures just aren't enough
>and some of us really do NEED medication. Good luck and email me
>anytime if you want to chat.
>
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