Re: Totally Confused now - Brandi!! again
From: Beth (anonymous@obgyn.net)
Thu, 6 Dec 2001 08:34:23 -0600 (CST)
Kate,
Have you had your thyroid levels tested?
The other explanation for your 'normal' test results could be this...
Many times a lab's scoring for normal is actually too high. My
testosterone came back 'normal' according to the lab levels. My Endo.
who has quite a bit of experience with 'labs' and PCOS couldn't believe
their range. (he had just started using them) Had I scored 'high'
according to their guidelines I would have been s.o.l..
Everyone reacts differently to hormones. Even if you're on the 'mid' to
'high' level of 'normal' it might not agree with you. I know my body
freaks out at any little hormonal fluctuation even when they are in the
normal range.
Hopefully you and your Dr. will figure everything out soon!!
Good luck,
--
Beth
At Thu, 6 Dec 2001, anonymous@obgyn.net wrote:
>
>I do have PCO (confirmed by the ultrasound), and I did all bloodtests
>required for PCOS (testosterone levels, FSH, LH, DHEA-S, cholestrerol,
>female hormones) -they came back normal. Although a few years ago,
>before Diane 35, I had slightly elevated testosterone. I quit Diane
>almost 1.5 years ago so it can`t be affecting it anymore.
>My symptoms are excess hair (a lot of hair on legs and thighs and a
>little on chin, upper lip, belly), mild acne (usually just on my chin),
>thinning hair.
>So the weird thing is, I have the symptoms but no explanation what`s
>causing them.
>I didn`t do glucose test, so I`ll do it and if it`s normal, I`ll really
>accept that I don`t have PCOS and look for other explanations.
>
>Take care,
>Kate
>
>At Wed, 5 Dec 2001, Belle wrote:
>>
>>This has really struck a nerve with me. So I am responding again.
>>
>>I am still horrified that your doctor lead you to believe that you have
>>PCOS because of an ultrasound.
>>
>>Please let us know what bloodtests were run and what your symptoms are.
>>Did he do a glucose tolerance test with insulin levels for at least two
>>hours, testosterone levels, FSH, LH, DHEA-S, a full female hormone
>>panel? If your weight is a symptom, did he do a thyroid panel?
>>
>>Also at the http:/www.pcosupport.org site, there is a test to help you
>>determine if you may have PCOS. That could be helpful to you.
>>
>>Hopefully, you will be one of the lucky ones who has cystic ovaries but
>>does not have to go through all of the other symptoms that go along with
>>PCOS.
>>
>>At Wed, 5 Dec 2001, Belle wrote:
>>>
>>>NO, no, no. I mean no! Wow. Please go to http://www.pcosupport.org ,
>>>http://www.inciid.org/faq/pcos.html ,
>>>http://blues.fd1.uc.edu/~gartsips/polycyst.htm
>>>
>>>Type in PCOS in any search engine and do some research there.
>>>
>>>The truth is that you do **not** have to have cysts in order to have
>>>PCOS. You do not need an untrasound to determine if you have PCOS. An
>>>ultrasound can help determine if you have cysts, but that **only** means
>>>you have cysts. There is a condition called PCO but it is not the
>>>symdrome. Even if you do have PCOS and cysts they may not turn up on an
>>>ultrasound. You can have over a 100 cysts on each ovary and it not turn
>>>up on an ultrasound. Bottom line is that the name of this syndrome was
>>>set before it was determined that it really has NOTHING to so with the
>>>ovaries.
>>>
>>>If you do have PCOS, I hope your doctor is treating you appropriately
>>>for it. If there is a chance you do not, you should be seeing someone
>>>who is better informed about the diagnostic procedures required for the
>>>diagnosis of PCOS. If something other than PCOS is causing your
>>>difficulties, you need to have that treated to prevent whatever
>>>complications come along with that particular problem.
>>>
>>>At Wed, 05 Dec 2001, Jeffrey wrote:
>>>>
>>>>The only way I know of to really find out if you have pcos is to have an
>>>>ultrasound on your ovaries. blood work came back on me normal but, the
>>>>ultrasound came back saying I have cystic ovaries! which inreturn conformed
>>>>that i do have pcos! good luck, Brandi!
>>>
>>>--
>>>Hope this helps,
>>>
>>>Belle
>>>
>>--
>>Hope this helps,
>>
>>Belle
>>
--
Stay safe and feel free to email me anytime,
Beth
Rockport, MA
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