PCOS Messages for November, 2001: Re: 5 years of one specialist after another, then I found this site! Thank God!

Re: 5 years of one specialist after another, then I found this site! Thank God!

From: liz (anonymous@obgyn.net)
Fri, 30 Nov 2001 18:23:51 -0600 (CST)

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In reply to: Kim: "5 years of one specialist after another, then I found this site! Thank God!"

hi kim, in reading your story, i heard SO much of my own. I too am very thin haired on top, i too have started getting these boil type things on my extreme upper inner thighs, and somethimes my arms, but not as large. I too have periods that are so irregular and HEAVY. i have been running to doctors for the past 8 yars os so telling them this "cluster" of symptoms and not getting any help. then i see a magazine article that lists all my symptoms!!! i also suffer from depression (was severe) and have tried many antidepressants beforefinially get releif from one combination,-, but recently at a diabetes seminar it was said that depression is a side effect of diabetes or all the precursers(sp) as i have. i too suffer from extreme fatigue-like my "coma-sleeps" that can last 20 hours, a whole weekend wasted! i have also gained and cannot loose 100 lbs. AND, one more thing, about the raw potatos, did you absolutly crave them? i was HOOKED on ice, like buying bags & bags of it every week, and have heard of people eating raw potatos also. appartently it is something to do with having low iron, and my ice cravings have gone now that i take iron suppliments daily. (no wonder i was low on iron i was donating gallons to kotex each month!) At Wed, 28 Nov 2001, Kim wrote: >
>I have to say this site has been an answer to a prayer. I saw a news
>headline this week for "new link to diabetes" and clicked on it. First
>time I've ever heard of "PCOS" I didn't know whether to laugh or cry.
>
>I always had absolutely horrible periods. I would always miss the 3
>days of school staying home throwing up everthing and in severe pain. My
>poor grandmother thought at times I was dying. I finally went on pill
>at 18 but couldn't tolerate it so came off. I married at 18 and we
>didn't use birth control. In six years I only conceived once and that
>ended in miscarriage. However my periods remained extremely heavy.
>
>I remarried at 24 and the hell began. My periods became almost
>non-existant. I was having 3-4 periods a year. One year I had 2. I
>went to doctor only to be told over and over it was due to stress. Okay.
>Then those weird symptoms started. Fatigue, joint pain, the PMS that
>would send me into absolute rages. I was then referred to a
>gynecologist who recommended a hysterectomy. I was 32 at the time and
>quite frankly at my wits end. The months before my hysterectomy I was
>having excruciating pain in my sides. Finally did a ultrasound and
>found a "leaking cyst". Went ahead with the hysterecomy. Well my
>hormones were screwed up before hysterectomy and stayed that way. But,
>since I had the hysterecomy the doctors began telling me it was all in
>my head. My weight has balooned to a current 230. I've always battled
>my weight even to the point of living off of raw potatoes and water and
>riding a bike for 3 hours a day. (Bulimia I guess) Anyhow, over the
>last two years the fatigue has blasted me along with so many other
>symptoms it's not even funny anymore. I have seen a gynecologist
>(hormones out of whack, I'm not sure which ones, I find out this week
>when I get copies), Opthamologist (dry eyes), Dermatologist (boil like
>cysts in pubic area and "rosacea" (I don't buy that one), Rheumatologist
>(extreme joint pain, swelling hands and feet), Orthodontist (TMJ). My
>hair is so thin you can see my scalp in front, I have horrible insomnia,
>fatigue, joint pain, dry eyes, allergic to nearly everything now
>including the sun, the shakes if I don't eat, the boil like cysts (was
>told they didn't relate to any other symptoms). I have had every kind
>of test imaginable and always told they were normal other than hormones
>which were "all out of whack" I found this site and requested a copy of
>my last two lab results. Lo and behold, a high glucose level. Now I'm
>plain mad. All of this suffering and the answer was right in front of
>their face. I have already made my doctor's appointment and I'm
>standing my ground. No more telling me I'm nuts. (presently seeing a
>psychiatrist AND psychologist because I'm a supposed hypocondriac and
>"depressed) You all have no idea how much your stories have comforted me
>and many others in the future I'm sure. I'll keep you informed. God
>bless you all.

Next message: Emma: "Appointment at womens hospital update and advice request: doctors and posters."
Previous message: Belle: "Re: Scared & Confused (Update)"
In reply to: Kim: "5 years of one specialist after another, then I found this site! Thank God!"

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