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Re: Just diagnosed with PCOS after five years of hell...From: Barbra (anonymous@obgyn.net)Fri, 30 Nov 2001 06:57:21 -0600 (CST)
At Wed, 28 Nov 2001, Melanie wrote: > >Hi This might be way off but when i was in my earlie 20's i suffered >from the same sleep irregularities as yuoi, drastic weight loss and >aching joints, oily skin, food intollerances and i was diagonsed with >M.E along side PCOS. I saw complementry theratists and found them >helpfull but the main help for me was Pine bark extract and niastatin(i >have spelt it as it sounds as i am not sure of the correct spelling i >took it 10 years ago!) it is a really strong antibiotic in its purest >form, evidently the ME had candida tagged on causing bloating and >'firmness' ha ha ha more like cement in the abdominal area, thrush and >nausia as well as compounding the aching muscles(magnesium helps this >with zinc) and the inability to conerntrate. I have lymphatic drainage >treatment which really hurt but after 3 months made a huge difference. >Dont give up hope, where are you based? feel free to mail me privately >if i can be of anymore support. >You are in my thoughts >Mel > >At Wed, 28 Nov 2001, Barbra wrote: >> >>At Mon, 26 Nov 2001, Sonnet wrote: >>> >>>Barbara - >>> >>>I don't have a whole lot of answers for you and I'm sorry for that, but >>>I thought I could offer something on one point you mentioned. >>> >>>Lately I've been doing quite a bit of research on diabetes insipidus as >>>my husband and I are considering adopting a child with this disorder. I >>>always though insipidus just referred to Type I, and I was quite wrong I >>>found out! DI refers to a disorder, usually of the kidneys, sometimes of >>>the pituitary, that causes the frequent urination of diabetes without >>>the blood sugar problems. My father (who has a medical background) >>>called it "water diabetes" as opposed to "sugar diabetes." From what I >>>am reading, it can be caused by medications or insufficient >>>vitamin/mineral uptake sometimes. When that condition stops (you stop >>>the medication or start absorbing more vitamins) the DI stops. Could >>>this be what's going on in your case? >>> >>>I found a great deal of information at >>>http://www.nlm.nih.gov/medlineplus/ency/article/000377.htm >>> >>>At Sun, 25 Nov 2001, Barbra wrote: >>>> >>>.Also,I still don't understand and neither does my >>>>specialist-as to why and how I had this rare form of diabetes and then >>>>it corrected it self. >>> >>>-- >>>Sonnet Fitzgerald, PCOS Association, Online Community Liaison. Email: sonnet@pcosupport.org >>> >>Dear Sonnet, >> >>Thank -you so much for the advice on diabetes insipidus. >>I,myself,new that this was clearly and indication of a side effect of >>the medications that I had taken,which were anti-depressants,,,despite,I >>kept insisting that my condition was not at all depression at that point >>in time,but merely a leg problem. >> >>I understand that this is a water type of thing,where the kidneys >>produce very clear,undiluted urine and that is exactly what happened to >>me.I was just urinating all the time and there seemed to be no end to >>it....and I was not thirsty at all...which is strange. >>Then I was told that when I was quite delerious,,,was brought to the >>hospital by ambulance,,that I had been severely >>dehydrated,,although,even not thirsty,I knew it was important to drink >>plenty of liquids as my doctor had ordered. >> >>They still,at this point,said that I was anorexic.My electrolyes were >>completely out of whack,which in turn caused me to go into a ventricual >>fibrilation and some atrial fibrillation. >>For three consequtive months,I produced nothing but a small amount of >>highly concentrated urine,,but was told that my kidney function was >>fine. >> >>Then told,possibly,with the hair loss(I was loosing in clumps,,had a low >>grade fever and rashes,,boils...that it possibly was my >>thyroid....checked it out many times and results changed almost from one >>test to the next. >>Then these high DHEA's...saying I was stressed,,,,then the liver >>problems,,despite I never touch alchohol(but hey,,just pass the rum >>now,,haha)! >>Just a lol! >> >>This has been one total nightmare for me,that I still cannot believe it >>is happening. >>Now,my diabetes has cleared up....so,,what next,,,I say,,,,I could not >>find any answers out there from the numerous specialist . >>I seeked homeopathic meds when I was down to seventy two pounds with no >>muscle mass,,,,,,skin was oily and acne taboot..She insisted that in her >>terminology,,that it was a blood congestion in my lower abdomen causing >>all the complains and put me on many different homeopathic meds..which I >>must admit...I was a skeptic...but helped me with the nausea and helped >>me gain my weight back and absorb,as it showed that I was unable to >>absorb almost anything. >>Isn't this strange. >>I have been seeing her for a year and a half....now my heart apparantly >>is pumping normal at an ejection fraction of 71...before was >>30..yes,,for real,,,apparantly,caused by this malabsorbtion >>problem....now,am told that I am insulin resistant,despite that my blood >>sugars are slightly below normal.. >> >>I still have these high levels of testosterone.....the endocrinologist >>that I seen this time,said that it was unusual,as I have no hair any >>other place that my head and where it is supposed to be,,,none on my >>face or belly etc. >> >>None of this fits the description of this disease and I am confused...as >>I still have these wierd sensations in my legs....pulsating in my lower >>abdomen all the time....cannot lay on my stomache at all,nor on my side. >> >>sometimes I wonder if I should be on another site,as my symptoms do not >>resemble others posted here,,,but this is my diagnosis,,without an >>ultrasound or anything other than bloodwork. >> >>I feel somewhat relieved when I see how all of you women out there help >>support one another and understand and can relate to each others >>problems..but I cannot seem to find anyone out there with my same >>symptoms and it scares me,as I feel that this may not be the correct >>diagnosis at all. >> >>I have no weight problems...this you may find strange too,,I have grown >>in height two and a half inches,,increase my bone density and muscle >>mass.....I look more like a little wrestler than a woman...used to have >>the petite hour glass figure and now is quite muscular,,but not fat. >>Only problem is my belly swells like bread and feels as if there is a >>pressure inside that is cuttin me off,,,my thoughts,,,possibly a >>big,massive cyst.....wishing it were true and just have it removed and >>all would be well. >> >>I also have difficulty sleeping...sleep during the day and up till the >>wee hours of the morning......feel that adrenaline surge during earlier >>times...like afternoons and then tapers off after midnight. >> >>Affected by certain foods for sure...but the high protein diet did the >>exact opposite for me..I gained weight,,but much needed weight...so,once >>again,,I am so confused. >>I all honesty,,I may be participating in a case study....that is what my >>doctor says,,as I also shown to be growth hormone deficient and now >>producing this in large quantities. >>Anyone else out there have that too? >>I sure hope that I am in the right place..as I find a little peace just >>reading the caring messages that you women post to one another to help >>cope. >>My depression and anxiety is awful and reached levels now,where I am >>suicidal. >>I was not before,,till these meds. >>Also,I never had children and miscarriages...last one shortly before I >>became ill..so possibly a correlation between the two.I was 35,with my >>last miscarriage and then few months after that,,the problems with >>weight loss and my leg and then legs...like pains,nerves in the >>thighs,,,,then this nightmare. >> >>Please someone....or whoever else reads this..I don;t know where to >>turn,as I am in constant discomfort all the time.......weak and >>exhausted from slight exertion....especially when I bend down...still do >>excercises,despite,I can hardly breath.... >> >>Okay,,off my soapbox now...am on my adrenaline surge and need a carb >>really badly..... >> >>-- >>Sincerely, >>Barbra Camara >> Hi Melanie, Thank you so much for responding. I will look into the things that you suggested and keep you posted. God bless all you women.
-- Sincerely, Barbra Camara
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