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Re: I Got My 'Official' Diagnosis Today!!!!From: Barbra (anonymous@obgyn.net)Fri, 30 Nov 2001 06:44:05 -0600 (CST)
At Thu, 29 Nov 2001, Kim wrote: > >Hi Everyone! I had posted a couple of nights ago about suspecting that I >had PCOS after I found a link earlier today. I had my appointment today >with my Ob-gyn and Yes! I do have PCOS. She said that by looking at my >past hormone levels, my last lab results (high glucose), my history of >leaking or bursting ovarian cysts that it is a classic case. I am so >thankful to finally know that I am not crazy. She gave me a >prescription for Metaformin. (I posted a question on the meds board as >she didn't do any blood work today, and I curious if she should have). >Thank you all so much for this board. You have absolutely NO idea how >much it helped me this week. 5 years of specialists and I find the >answer myself here.
>Oh My god Kim,,,You and I seem to have gone thru exactly some of the identical problems.....I too,see a psychatrist....I,too,was told at one point,before my heart started to fail,that I was a hypochondriac by a little red headed shrink who used to pick his nose when he though I was in my own little world..haha!,,fooled him. My problems started with loosing weight(although,not anoreixic or bulemic)...they thought that I was....and leg problems.....they dismissed multiple sclerosis....they thought that at the beginning,but when the MRI scan proved normal brain function....that was it..I was a nutcase..a crackpot...somatization disorder and others. Yes.going from one doctor to the next,only to be told that simply these problems are in your head,do tend to take a toll on one's mental state.It certainly did mine....not to mention their bedside manner...stinks! Now,I am mad,as this is my so called newest diagnossis,,,and in all honesty,I don't believe it to be true,as I may have some of your symptoms....but not the others. I believe that I need further testing.......I have not had any ultrasound yet,,,so how in the heck can one edocrinologist base my past and present syptoms and illness based upon some bloodtests?That is what concerns me the most. I am not in anyway saying to you that you do not have this disease,as you seem to fit the description to a "T",,,but just that we have been tossed around like a baked potato,told that we are nuts....... It is time for us women to start taking the agressive apporach when it comes to seeing the doctors. Go well prepared ahead of time..tell them straight,that you deserve a half hour of their time to listen to 'Your story without interruptions",then they can put in their part and ask the questions/ Have all your past and present copies of all your tests that you have done and keep a diary to show and also,it does not hurt to keep a little tape recorder on the desk and tell the doctor that you need it ,as later you may forget some things that are of importance,I do now,and it sure helps,as they can no longer pull the wool over my eyes. I feel your pains and I do sympathize with all on this site. If you ever feel the need to talk to anyone..please do not hesitate to contact me personally by email. I am currently seeing a psyciatrist that is well read with these insulin resistant problems and will not put me on any medications other than vitamins and minerals and some herbs,which prove to help my constant panicy state and depression.It does help to talk to a psychatrist......does not mean that we are crazy(I even hate to use the term),but all think that when a woman sees one,,that she is a few cents short of a dime and it is those that will not seek help when they need it,that should take a look in the mirror. We suffer in silence and that is not fair. We have to take a stand for our rights and someone out there has to take the time to help us get thru. I don't know where the joint pains fit in here.....can you tell me about yours? i just read your latest posting this morning...I am a total insomniac...sleep the days,,,as mid days and evening are the worst for me,with my elevated DHEA:S..then as it gets later...past midnight..I seem to cool down somwwhat. I feel rage type of moods as well and am awful till the day of my period,,then once it starts,,I feel somewhat better,as my belly,which swells like bread,,seems to go down and I rid of the severe water retention that drives me crazy...seems as if I have been pregnant and carrying around ten pounds in my belly now for five years...despite I have never carried a baby to term. I had miscarriages too...could never conceive. I can go on and on,,,but I want you and all the other women out there to know that this site is a real inspiraton for me and takescourage to talk about our problems so openly. Now,doesn't that show that we are strong? I say that when a man is confident,he is considered 'strong'.,when a woman is confident she is considered a nutcase". Nothing at all against men,,,I have a wonderful,caring husband,,but I do know that we see the same doctor and if he would have presented with these type of symptoms,,he would have had not had to wait five years to finally get a diagnosis.That is just the way it is. Hoping we do not have to suffer in silence any longer and hoping that more oby/gy get their heads together and the endocrinologists stop playing god with our lives and just testing for diabetes.More to it than that when it comes to a woman. Be well friend and take care. May god bless you all... p.s...had my carbs,,,so I am on a roll!
-- Sincerely, Barbra Camara
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