Re: Just diagnosed with PCOS after five years of hell...
From: Renee (anonymous@obgyn.net)
Wed, 28 Nov 2001 07:40:41 -0800
Barbra,
Wow. That's a lot to go through.
You can find more information about PCOS, including a quiz to see if you fit
the profile, at http://www.pcosupport.org. If you feel you really don't have PCOS,
then see another doctor.
Renee
> >At Sun, 25 Nov 2001, Barbra wrote:
> >>
> >.Also,I still don't understand and neither does my
> >>specialist-as to why and how I had this rare form of diabetes and then
> >>it corrected it self.
> >
> >--
> >Sonnet Fitzgerald, PCOS Association, Online Community Liaison. Email: sonnet@pcosupport.org
> >
>
> Dear Sonnet,
>
> Thank -you so much for the advice on diabetes insipidus.
> I,myself,new that this was clearly and indication of a side effect of
> the medications that I had taken,which were anti-depressants,,,despite,I
> kept insisting that my condition was not at all depression at that point
> in time,but merely a leg problem.
>
> I understand that this is a water type of thing,where the kidneys
> produce very clear,undiluted urine and that is exactly what happened to
> me.I was just urinating all the time and there seemed to be no end to
> it....and I was not thirsty at all...which is strange.
> Then I was told that when I was quite delerious,,,was brought to the
> hospital by ambulance,,that I had been severely
> dehydrated,,although,even not thirsty,I knew it was important to drink
> plenty of liquids as my doctor had ordered.
>
> They still,at this point,said that I was anorexic.My electrolyes were
> completely out of whack,which in turn caused me to go into a ventricual
> fibrilation and some atrial fibrillation.
> For three consequtive months,I produced nothing but a small amount of
> highly concentrated urine,,but was told that my kidney function was
> fine.
>
> Then told,possibly,with the hair loss(I was loosing in clumps,,had a low
> grade fever and rashes,,boils...that it possibly was my
> thyroid....checked it out many times and results changed almost from one
> test to the next.
> Then these high DHEA's...saying I was stressed,,,,then the liver
> problems,,despite I never touch alchohol(but hey,,just pass the rum
> now,,haha)!
> Just a lol!
>
> This has been one total nightmare for me,that I still cannot believe it
> is happening.
> Now,my diabetes has cleared up....so,,what next,,,I say,,,,I could not
> find any answers out there from the numerous specialist .
> I seeked homeopathic meds when I was down to seventy two pounds with no
> muscle mass,,,,,,skin was oily and acne taboot..She insisted that in her
> terminology,,that it was a blood congestion in my lower abdomen causing
> all the complains and put me on many different homeopathic meds..which I
> must admit...I was a skeptic...but helped me with the nausea and helped
> me gain my weight back and absorb,as it showed that I was unable to
> absorb almost anything.
> Isn't this strange.
> I have been seeing her for a year and a half....now my heart apparantly
> is pumping normal at an ejection fraction of 71...before was
> 30..yes,,for real,,,apparantly,caused by this malabsorbtion
> problem....now,am told that I am insulin resistant,despite that my blood
> sugars are slightly below normal..
>
> I still have these high levels of testosterone.....the endocrinologist
> that I seen this time,said that it was unusual,as I have no hair any
> other place that my head and where it is supposed to be,,,none on my
> face or belly etc.
>
> None of this fits the description of this disease and I am confused...as
> I still have these wierd sensations in my legs....pulsating in my lower
> abdomen all the time....cannot lay on my stomache at all,nor on my side.
>
> sometimes I wonder if I should be on another site,as my symptoms do not
> resemble others posted here,,,but this is my diagnosis,,without an
> ultrasound or anything other than bloodwork.
>
> I feel somewhat relieved when I see how all of you women out there help
> support one another and understand and can relate to each others
> problems..but I cannot seem to find anyone out there with my same
> symptoms and it scares me,as I feel that this may not be the correct
> diagnosis at all.
>
> I have no weight problems...this you may find strange too,,I have grown
> in height two and a half inches,,increase my bone density and muscle
> mass.....I look more like a little wrestler than a woman...used to have
> the petite hour glass figure and now is quite muscular,,but not fat.
> Only problem is my belly swells like bread and feels as if there is a
> pressure inside that is cuttin me off,,,my thoughts,,,possibly a
> big,massive cyst.....wishing it were true and just have it removed and
> all would be well.
>
> I also have difficulty sleeping...sleep during the day and up till the
> wee hours of the morning......feel that adrenaline surge during earlier
> times...like afternoons and then tapers off after midnight.
>
> Affected by certain foods for sure...but the high protein diet did the
> exact opposite for me..I gained weight,,but much needed weight...so,once
> again,,I am so confused.
> I all honesty,,I may be participating in a case study....that is what my
> doctor says,,as I also shown to be growth hormone deficient and now
> producing this in large quantities.
> Anyone else out there have that too?
> I sure hope that I am in the right place..as I find a little peace just
> reading the caring messages that you women post to one another to help
> cope.
> My depression and anxiety is awful and reached levels now,where I am
> suicidal.
> I was not before,,till these meds.
> Also,I never had children and miscarriages...last one shortly before I
> became ill..so possibly a correlation between the two.I was 35,with my
> last miscarriage and then few months after that,,the problems with
> weight loss and my leg and then legs...like pains,nerves in the
> thighs,,,,then this nightmare.
>
> Please someone....or whoever else reads this..I don;t know where to
> turn,as I am in constant discomfort all the time.......weak and
> exhausted from slight exertion....especially when I bend down...still do
> excercises,despite,I can hardly breath....
>
> Okay,,off my soapbox now...am on my adrenaline surge and need a carb
> really badly.....
>
> --
> Sincerely,
> Barbra Camara
>
--
Renee Cordrey, MSPT, MPH, CWS
---
Don't follow in the footsteps of the masters. Seek what they sought.
--Zen saying
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