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Re: Just diagnosed with PCOS after five years of hell...From: Barbra (anonymous@obgyn.net)Wed, 28 Nov 2001 06:12:21 -0600 (CST)
At Mon, 26 Nov 2001, Sonnet wrote: > >Barbara - > >I don't have a whole lot of answers for you and I'm sorry for that, but >I thought I could offer something on one point you mentioned. > >Lately I've been doing quite a bit of research on diabetes insipidus as >my husband and I are considering adopting a child with this disorder. I >always though insipidus just referred to Type I, and I was quite wrong I >found out! DI refers to a disorder, usually of the kidneys, sometimes of >the pituitary, that causes the frequent urination of diabetes without >the blood sugar problems. My father (who has a medical background) >called it "water diabetes" as opposed to "sugar diabetes." From what I >am reading, it can be caused by medications or insufficient >vitamin/mineral uptake sometimes. When that condition stops (you stop >the medication or start absorbing more vitamins) the DI stops. Could >this be what's going on in your case? > >I found a great deal of information at >http://www.nlm.nih.gov/medlineplus/ency/article/000377.htm > >At Sun, 25 Nov 2001, Barbra wrote: >> >.Also,I still don't understand and neither does my >>specialist-as to why and how I had this rare form of diabetes and then >>it corrected it self. > >-- >Sonnet Fitzgerald, PCOS Association, Online Community Liaison. Email: sonnet@pcosupport.org > Dear Sonnet, Thank -you so much for the advice on diabetes insipidus. I,myself,new that this was clearly and indication of a side effect of the medications that I had taken,which were anti-depressants,,,despite,I kept insisting that my condition was not at all depression at that point in time,but merely a leg problem. I understand that this is a water type of thing,where the kidneys produce very clear,undiluted urine and that is exactly what happened to me.I was just urinating all the time and there seemed to be no end to it....and I was not thirsty at all...which is strange. Then I was told that when I was quite delerious,,,was brought to the hospital by ambulance,,that I had been severely dehydrated,,although,even not thirsty,I knew it was important to drink plenty of liquids as my doctor had ordered. They still,at this point,said that I was anorexic.My electrolyes were completely out of whack,which in turn caused me to go into a ventricual fibrilation and some atrial fibrillation. For three consequtive months,I produced nothing but a small amount of highly concentrated urine,,but was told that my kidney function was fine. Then told,possibly,with the hair loss(I was loosing in clumps,,had a low grade fever and rashes,,boils...that it possibly was my thyroid....checked it out many times and results changed almost from one test to the next. Then these high DHEA's...saying I was stressed,,,,then the liver problems,,despite I never touch alchohol(but hey,,just pass the rum now,,haha)! Just a lol! This has been one total nightmare for me,that I still cannot believe it is happening. Now,my diabetes has cleared up....so,,what next,,,I say,,,,I could not find any answers out there from the numerous specialist . I seeked homeopathic meds when I was down to seventy two pounds with no muscle mass,,,,,,skin was oily and acne taboot..She insisted that in her terminology,,that it was a blood congestion in my lower abdomen causing all the complains and put me on many different homeopathic meds..which I must admit...I was a skeptic...but helped me with the nausea and helped me gain my weight back and absorb,as it showed that I was unable to absorb almost anything. Isn't this strange. I have been seeing her for a year and a half....now my heart apparantly is pumping normal at an ejection fraction of 71...before was 30..yes,,for real,,,apparantly,caused by this malabsorbtion problem....now,am told that I am insulin resistant,despite that my blood sugars are slightly below normal.. I still have these high levels of testosterone.....the endocrinologist that I seen this time,said that it was unusual,as I have no hair any other place that my head and where it is supposed to be,,,none on my face or belly etc. None of this fits the description of this disease and I am confused...as I still have these wierd sensations in my legs....pulsating in my lower abdomen all the time....cannot lay on my stomache at all,nor on my side. sometimes I wonder if I should be on another site,as my symptoms do not resemble others posted here,,,but this is my diagnosis,,without an ultrasound or anything other than bloodwork. I feel somewhat relieved when I see how all of you women out there help support one another and understand and can relate to each others problems..but I cannot seem to find anyone out there with my same symptoms and it scares me,as I feel that this may not be the correct diagnosis at all. I have no weight problems...this you may find strange too,,I have grown in height two and a half inches,,increase my bone density and muscle mass.....I look more like a little wrestler than a woman...used to have the petite hour glass figure and now is quite muscular,,but not fat. Only problem is my belly swells like bread and feels as if there is a pressure inside that is cuttin me off,,,my thoughts,,,possibly a big,massive cyst.....wishing it were true and just have it removed and all would be well. I also have difficulty sleeping...sleep during the day and up till the wee hours of the morning......feel that adrenaline surge during earlier times...like afternoons and then tapers off after midnight. Affected by certain foods for sure...but the high protein diet did the exact opposite for me..I gained weight,,but much needed weight...so,once again,,I am so confused. I all honesty,,I may be participating in a case study....that is what my doctor says,,as I also shown to be growth hormone deficient and now producing this in large quantities. Anyone else out there have that too? I sure hope that I am in the right place..as I find a little peace just reading the caring messages that you women post to one another to help cope. My depression and anxiety is awful and reached levels now,where I am suicidal. I was not before,,till these meds. Also,I never had children and miscarriages...last one shortly before I became ill..so possibly a correlation between the two.I was 35,with my last miscarriage and then few months after that,,the problems with weight loss and my leg and then legs...like pains,nerves in the thighs,,,,then this nightmare. Please someone....or whoever else reads this..I don;t know where to turn,as I am in constant discomfort all the time.......weak and exhausted from slight exertion....especially when I bend down...still do excercises,despite,I can hardly breath.... Okay,,off my soapbox now...am on my adrenaline surge and need a carb really badly.....
-- Sincerely, Barbra Camara
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