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5 years of one specialist after another, then I found this site! Thank God!From: Kim (anonymous@obgyn.net)Wed, 28 Nov 2001 00:41:56 -0600 (CST)
I have to say this site has been an answer to a prayer. I saw a news headline this week for "new link to diabetes" and clicked on it. First time I've ever heard of "PCOS" I didn't know whether to laugh or cry. I always had absolutely horrible periods. I would always miss the 3 days of school staying home throwing up everthing and in severe pain. My poor grandmother thought at times I was dying. I finally went on pill at 18 but couldn't tolerate it so came off. I married at 18 and we didn't use birth control. In six years I only conceived once and that ended in miscarriage. However my periods remained extremely heavy. I remarried at 24 and the hell began. My periods became almost non-existant. I was having 3-4 periods a year. One year I had 2. I went to doctor only to be told over and over it was due to stress. Okay. Then those weird symptoms started. Fatigue, joint pain, the PMS that would send me into absolute rages. I was then referred to a gynecologist who recommended a hysterectomy. I was 32 at the time and quite frankly at my wits end. The months before my hysterectomy I was having excruciating pain in my sides. Finally did a ultrasound and found a "leaking cyst". Went ahead with the hysterecomy. Well my hormones were screwed up before hysterectomy and stayed that way. But, since I had the hysterecomy the doctors began telling me it was all in my head. My weight has balooned to a current 230. I've always battled my weight even to the point of living off of raw potatoes and water and riding a bike for 3 hours a day. (Bulimia I guess) Anyhow, over the last two years the fatigue has blasted me along with so many other symptoms it's not even funny anymore. I have seen a gynecologist (hormones out of whack, I'm not sure which ones, I find out this week when I get copies), Opthamologist (dry eyes), Dermatologist (boil like cysts in pubic area and "rosacea" (I don't buy that one), Rheumatologist (extreme joint pain, swelling hands and feet), Orthodontist (TMJ). My hair is so thin you can see my scalp in front, I have horrible insomnia, fatigue, joint pain, dry eyes, allergic to nearly everything now including the sun, the shakes if I don't eat, the boil like cysts (was told they didn't relate to any other symptoms). I have had every kind of test imaginable and always told they were normal other than hormones which were "all out of whack" I found this site and requested a copy of my last two lab results. Lo and behold, a high glucose level. Now I'm plain mad. All of this suffering and the answer was right in front of their face. I have already made my doctor's appointment and I'm standing my ground. No more telling me I'm nuts. (presently seeing a psychiatrist AND psychologist because I'm a supposed hypocondriac and "depressed) You all have no idea how much your stories have comforted me and many others in the future I'm sure. I'll keep you informed. God bless you all.
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