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Re: Angry - and need support

From: Amanda (anonymous@obgyn.net)
Fri, 24 Aug 2001 09:23:47 -0500 (CDT)


At Fri, 3 Aug 2001, Kathleen wrote: >
>Thanks for this and the other posts - it is quite incrediable how
>difficult it is to get taken seriously. And it's good to know that
>perhaps there are some alternatives.
>
>I live in the catchment area for Hammersmith hospistal - so I should be
>able to get a referal - thanks for the that
>
>At Fri, 3 Aug 2001, Dave wrote:
>>
>>Hi Kathleen,
>>I am based in Essex, and I know exactly how you feel about our gps being
>>dismissive. I finally found a doctor about three years ago who is ok, but he
>>admits he knows little if anything about it, but has taken a bit of time to
>>learn, so he can help me. He is better about the fertility side of things -
>>but that is a whole long different story!
>>Anyway, I insisted that I was referred privately, so he made me find my own
>>doctor. At the time I was not impressed, but, now I am glad that I did.
>>My recommendation is if you have private medical insurance great - but if
>>not you may be able to afford to go for a consultation anyway - phone
>>Hammersmith Hospital, speak to a secretary about PCOS. She/he will then give
>>you a list of names and telephone numbers of people to go and see. (There is
>>a policy on the board of not naming names - hope I have not broken any rules
>>here.)
>>I went to see this guy - and told him about what I knew, and he filled in
>>the gaps! I was lucky - he presribed met, I am having af about every other
>>month. (better than every other year!) I did not have any side effects at
>>first, but have had a little bit now I am on a higher dose, but that is my
>>own fault for not taking them with food - this hot weather has lost my
>>appetite.
>>Anyway - if you want any more info, please feel free to email me privately.
>>Good luck
>
>>Cathy
>>

>>>>>----- Original Message -----
>>From: "Kathleen" <anonymous@obgyn.net>
>>To: "Multiple recipients of list PCOS" <anonymous@obgyn.net>
>>Sent: Friday, August 03, 2001 12:16 AM
>>Subject: Angry - and need support
>>
>>> i didn't know what PCOS was until 2 friday's ago. I went to a holistic
>>> practioner because I was sick of irregular periods, tiredness,
>>> mirgraines etc. he suggested I get tested for PCOS.
>>>
>>> I looked up on the internet and everything that has ever been wrong with
>>> me is here.
>>>
>>> I'm angry
>>>
>>> When I went to my GP and asked to get tested for PCO the comment was,
>>> well if you had it , it would have picked up by now. (I'm 32)
>>> I said - well I doubt that very much as every GP I've ever had has been
>>> as dismissive as you are being right now.
>>>
>>> Reluctantly I got a referal.
>>>
>>> I'm angry, if I hadn't been dismissed as long as I have been, maybe I
>>> would have been treated, and just maybe I wouldn't be showing symptoms
>>> of type II diabiates - because something would have been done (I can't
>>> get tested for until the tests for the PCOS come back by the way)
>>>
>>> I'm in need of education for treatment. I can not take the pill. I
>>> have a history of depression, among other things. The two times in my
>>> life I took the pill the reaction was bad (weight gain, moodiness, and
>>> no sex drive at all - I'm not dead yet so am not prepared to kill the
>>> drive) - One GP I had said that ultimately it is much of a muchness, and
>>> I could spend years looking for the right pill - as each pill needs a
>>> good six month trial before being dismissed as the wrong one - and he
>>> thought there was little differences and didn't think I should risk
>>> taking the pill with a history of depression.
>>>
>>> What are my alteranatives ?
>>>
>>> What do I do about the potential for diabeties ?
>>>
>>> I'm UK (london) based - who do I insist that my doctor refer my too?
>>>
>>> Thanks
>>>
>>> Kathleen
>>>

--
I have just found out from a scan I have cysts on the ovaries,at this point I do not know if it is both or one ovarie!I have had a blood test and am awaiting the outcome of it all.I am so worried that it may be serious, as I have had a history of depression in the past, but am now feeling better, this problem doesnt help the situation.I think it is a great idea to talk to other sufferers, and try and help each other in times like this.So come on girls lets talk and help each other get over this one!!Feel free to contact me if you have a problem, and maybe have more insight in this Polycystic Ovarian Syndrome.The specialist I saw at the Hospital, really did,nt give me much information.From Amanda.



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