PCOS Messages for August, 2001: Re: Disabled from PCOS, have found out there are other rare supersevere

Re: Disabled from PCOS, have found out there are other rare supersevere

From: ALicia (anonymous@obgyn.net)
Mon, 13 Aug 2001 10:33:04 -0500 (CDT)

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Reply: Zowie: "Re: Disabled from PCOS, have found out there are other rare supersevere"

At Sat, 4 Aug 2001, Zowie wrote: >
>Hi there,
>Alicia, in your post you mention "I am getting better medicines and such
>have helped me lose weight". What medications are those and how do they
>work?

Synthroid Aldactone which helps me more then average PCOSers because its being used to block adrenal hormones too. Metformin

I'm having a problem with weight as well (seem to stay within >320-340 lbs) and I keep getting different stories from Dr's. My regular
>PCM tells me I need to eat more because my body is in starvation mode
>(1000-1300 calories a day is the norm for me), but yesterday, a
>different Dr told me to do 1200 calories a day and literally GUARANTEED
>me that I will lose 1-2 lbs. a week----regardless of my medical
>conditions

1200 calories is far too low. Thats nearly starvation and will kick down the metabolism far too low. You do need to eat. I have found for me at 6 feet of height around 2000-is the best. I of course dont do this everyday:) but the best thing is to try.....I gain weight when I diet too severely because I freak out from all the hunger and make up the food and then some!

The content of the diet is important too....though doctors will say not. The Diet Cure and the Shcharwbein Method--I know I have the spelling wrong have helped me big time. You want to eat as little processed foods as possible.

(severe PCOS being the big one right now). He said "there's >no 2 ways about it". I am really 2nd guessing this statement and am
>starting to consider seeing a civilian (I'm a military wife) Dr for a
>2nd opinion. (I also don't think this Dr. knows of PCOS--he's quite
>old and is a nice man---but he gave me NO indication that he understood
>what PCOS is). I am in desperate need of help with my weight, but
>obviously, my problem is NOT overeating. When I diet (eat less than my
>normal 1300 calories/day) I always GAIN weight and feel starved all the
>time.

PCOSers will gain weight on too little food. I notice this phenonmenon when younger, my weight would increase when I was starving. I do think you need to take the path of moderation. it will help by far. pay attention to nutrition as well as the calories.

I never have overate to even be as huge as I got. I maybe ate some things I shouldnt but it was hard for me to try and convince doctors I wasnt home inhaling food or going on binges, that I eat at normal intervals during the day.

I am really interested in knowing what medications you were given >for your weight. Nothing is being suggested to me (let alone offered)
>and I would like to find some assistance in this! Thanks!
>--Zowie

Well in my case, getting off steroids, thyroid meds, the two PCOS ones and moving to a rural area to reduce stress worked to help get the weight off. I also have become a health food junkie. I cant really consider myself a success yet. I am still struggling with severe obesity so its strange that im giving diet advice...LOL when I outweigh everyone here by far...LOL

I am glad to be of help though in what could ever help. >
>>ALicia wrote:
>>
>>> I havent been on here much lately. In 95-97 I had a huge 350lbPLUS
>>> weight gain and have been diagnosed with very severe PCOS as of 2000.
>>> Ive lost 160lbs-170lbs slowly over past three years, but I have 200 more
>>> to go to be at a decent weight...I reached 630lbs after having lived a
>>> normal life @240 at 6 feet of height for 12 adult years before the rapid
>>> gain began. I have hyperadrenalism and even CUshings was suspected but
>>> for now I am diagnosed with a serious case of PCOS and thyroid disease.
>>> I want people to know that there are women who are DISABLED by this
>>> disease. I am. I am getting better medicines and such have helped me
>>> lose weight....however PCOS has caused me major difficulties. I went on
>>> Metformin about 6 months ago and it is helping my health CONSIDERABLY.
>>> Ancothis nigrois disappearing. Anyhow its been a struggle, since my
>>> weight got so high, i am struggling with lymphedema and other health
>>> troubles that are weight related and further endocrine problems--needing
>>> increases in thyroid meds all the time and my doctor is closely watching
>>> my adrenals.
>>>
>>> I called a PCOS person who told me that a doctor who specialized in PCOS
>>> had confronted other cases as severe as mine. I thought I was it, but I
>>> found out, No I am not, there are other women who seem to have PCOS in
>>> this way.
>>> This is not to say that others dont suffer or have troubles...or to try
>>> and do one upmanship. Heck Im mourning my own infertility because Ive
>>> been told NEVER even if I lose all the weight in the world and gain a
>>> great degree of health back. I know that is very painful.
>>>
>>> I dont come to this board very often so I only post to sometimes meet
>>> women who have gone through what I have. I have two good friends as a
>>> result of this from other boards. Support is important in this painful
>>> disorder. Also i want to say Hi to Paula! if she is still here.
>>>

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Previous message: ALicia: "Re: Disabled from PCOS, have found out there are other rare supersevere cases"
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