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Re: Disabled from PCOS, have found out there are other rare supersevere cases
From: ALicia (anonymous@obgyn.net)
Mon, 13 Aug 2001 10:15:25 -0500 (CDT)
Thank you susan. What a sweet email. I have a relative who has told me
working in social security claims--not in my state that many superfat
women have undiagnosed endocrine dieases. it isnt everyone but people
do slip through the cracks. I have to lose more because my health is
still affected but I know that I am getting better now which makes all
the difference in the world.
At Mon, 6 Aug 2001, Susan C. wrote:
>
>Alicia - My heart goes out to you! 160 lbs is an awesome acheivement,
>I'm so impressed! It doesn't seem fair that so much has been piled on
>you. You are right though, this IS a disabling disease, even to women
>who don't have the additional ailments that have been thrown at you.
>Working with medicaid I have seen women come in here that are in
>terrible health, they are very heavy,some have oxygyn tanks or diabetes
>so bad that it's almost too painful for them to walk and as I hear their
>symptoms and the things that they've gone through over the years it
>becomes obvious they have PCOS that has gone untreated. It's really
>scary when I feel like I'm looking at what could be my future. I thank
>God that there are medications that may prevent that and I'm glad they
>seem to be working for you too. I hope you can continue on your road to
>recovery and start enjoying that "normal"life again!
>Susan C.
>
>At Fri, 3 Aug 2001, ALicia wrote:
>>
>>I havent been on here much lately. In 95-97 I had a huge 350lbPLUS
>>weight gain and have been diagnosed with very severe PCOS as of 2000.
>>Ive lost 160lbs-170lbs slowly over past three years, but I have 200 more
>>to go to be at a decent weight...I reached 630lbs after having lived a
>>normal life @240 at 6 feet of height for 12 adult years before the rapid
>>gain began. I have hyperadrenalism and even CUshings was suspected but
>>for now I am diagnosed with a serious case of PCOS and thyroid disease.
>>I want people to know that there are women who are DISABLED by this
>>disease. I am. I am getting better medicines and such have helped me
>>lose weight....however PCOS has caused me major difficulties. I went on
>>Metformin about 6 months ago and it is helping my health CONSIDERABLY.
>>Ancothis nigrois disappearing. Anyhow its been a struggle, since my
>>weight got so high, i am struggling with lymphedema and other health
>>troubles that are weight related and further endocrine problems--needing
>>increases in thyroid meds all the time and my doctor is closely watching
>>my adrenals.
>>
>>I called a PCOS person who told me that a doctor who specialized in PCOS
>>had confronted other cases as severe as mine. I thought I was it, but I
>>found out, No I am not, there are other women who seem to have PCOS in
>>this way.
>>This is not to say that others dont suffer or have troubles...or to try
>>and do one upmanship. Heck Im mourning my own infertility because Ive
>>been told NEVER even if I lose all the weight in the world and gain a
>>great degree of health back. I know that is very painful.
>>
>>I dont come to this board very often so I only post to sometimes meet
>>women who have gone through what I have. I have two good friends as a
>>result of this from other boards. Support is important in this painful
>>disorder. Also i want to say Hi to Paula! if she is still here.
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