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Re: Disabled from PCOS, have found out there are other rare supersevere
From: ALicia (anonymous@obgyn.net)
Sat, 4 Aug 2001 15:48:08 -0500 (CDT)
At S
HI thanks for answering. Actually 280 is my goal weight, thats how
messed up my metabolism is, However I know how hard it is to lose. I
hit plateaus some very long lasting myself. In your case I would set a
goal maybe of being 200lbs or so that would take some of the pressure
off. Some of us with truly hard weight issues and endocrine issues
sometimes do better if we know just becoming smaller is our main goal
for now. Maybe we can continue but it does help the pressure. I will
look into the thyroid books. With the latest increase I dont get those
weird cold spells I used to get thank goodness! Thanks for your
suggestions about Synthroid. Anyhow they are debating whether the doses
are accurate, Ive wondered myself? Maybe it is time for a switch. Ill
ask my doctor. Thanks Donna. Yes I can write you about being weight
loss buddies. It seems I have to eat so weirdly to keep from gaining
weight. maybe I need more tips.
at, 04 Aug 2001, Donna J. Mirabile wrote:
>
>Dear ALicia:
>
>Wow!! Thank you so much for sharing your story with us, and helping us all to
>remember that this can be a very serious disease. My heart goes out to you as you
>struggle to improve your health. I have 200 lbs to lose (weighed 347 in December
>200). I've lost 45 of 'em, but seem to be stuck. If you ever need a weight loss
>buddy (or anyone else here, for that matter) or an encouraging word please feel
>free to email me privately at dmirabile@att.net
>
>You hang in there and take care of yourself. You can do this.
>
>Re: Thyroid meds: I was on Synthroid for 4 years and they had to keep increasing
>the dose and even though we did, it still wasn't working. My doctor switched me
>over to Levoxyl and now I am doing much better re: thyroid results. If you are on
>Synthroid you may want to consider a switch.
>
>A good resource book for thyroid problems is: The Thyroid Solution. I can't
>recall the author, but you can order it from Amazon.com.
>
>Best wishes to you in your quest for good health.
>
>xoxox
>
>Donna in Utah
>
>ALicia wrote:
>
>> I havent been on here much lately. In 95-97 I had a huge 350lbPLUS
>> weight gain and have been diagnosed with very severe PCOS as of 2000.
>> Ive lost 160lbs-170lbs slowly over past three years, but I have 200 more
>> to go to be at a decent weight...I reached 630lbs after having lived a
>> normal life @240 at 6 feet of height for 12 adult years before the rapid
>> gain began. I have hyperadrenalism and even CUshings was suspected but
>> for now I am diagnosed with a serious case of PCOS and thyroid disease.
>> I want people to know that there are women who are DISABLED by this
>> disease. I am. I am getting better medicines and such have helped me
>> lose weight....however PCOS has caused me major difficulties. I went on
>> Metformin about 6 months ago and it is helping my health CONSIDERABLY.
>> Ancothis nigrois disappearing. Anyhow its been a struggle, since my
>> weight got so high, i am struggling with lymphedema and other health
>> troubles that are weight related and further endocrine problems--needing
>> increases in thyroid meds all the time and my doctor is closely watching
>> my adrenals.
>>
>> I called a PCOS person who told me that a doctor who specialized in PCOS
>> had confronted other cases as severe as mine. I thought I was it, but I
>> found out, No I am not, there are other women who seem to have PCOS in
>> this way.
>> This is not to say that others dont suffer or have troubles...or to try
>> and do one upmanship. Heck Im mourning my own infertility because Ive
>> been told NEVER even if I lose all the weight in the world and gain a
>> great degree of health back. I know that is very painful.
>>
>> I dont come to this board very often so I only post to sometimes meet
>> women who have gone through what I have. I have two good friends as a
>> result of this from other boards. Support is important in this painful
>> disorder. Also i want to say Hi to Paula! if she is still here.
>>
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