Re: Calling All Northern Californians
From: Kallie (anonymous@obgyn.net)
Mon, 16 Apr 2001 22:11:10 -0500 (CDT)
Chapter Coorinator - I am so proud of you! What a wonderful thing you
are doing, reaching out and pulling together women who need you and your
knowledge. Bravo.
Well I responded to this cause I knew you would read it :-) And maybe
not to many others. There is SOOO much pregnancy talk on the board
right now I am afraid someone without fertility concerns will flip out
like that person did after I had the miscarraige. (( I say that like
you will remember... Just cause it had such an impact on me I assume
every one else was effected too..lol )) Anyway - I wanted to let you
know how I was doing but didn't want to risk a blow up as I am feeling a
tad fragile ~(: My tests have all been pretty positive so far --Phewwww.
That was it. Wow, I am still scared to beleive but scared not to
beleive. My 1st OB appointment is Wednesday afternoon and I am alsmost
certain he will want to schedule an ultrasound which scares me TO DEATH
since that was the first sign that something was wrong last time. I am
still getting stuck for blood work every other day (have been since the
5th - I bet my insurance company LOVES me!)
6weeks & the beta's have thus far continued to double and progesterone
is 32.
Keep in touch!
At Mon, 16 Apr 2001, Sonnet wrote:
>
>I sent this out via email to everyone on my list, but I figure maybe
>some of you who read this aren't a part of the local chapter! It's
>important enough that it deserves the attention I think.
>
>>>Hello again!
>
>Many of you have heard about d-chiro-inositol before, a new drug that is
>being developed specifically for the treatment of PCOS. It works on a
>cellular level to correct insulin resistance and thus gets right to the
>core of our problem. So far in studies it has been very promising.
>
>Dr. Richard Weinstein at Diablo Clinical Research is one of the local
>physicians studying the effectiveness of inositol in treating PCOS. He
>is an extremely well known endocrinologist and researcher. One of his
>other current projects is working with the makers of Actos and Avandia
>to engage in studies using these drugs to treat PCOS. I tracked down
>and spoke today with the woman who is assisting Dr. Weinstein in the
>Bay Area studies of d-chiro-inositol. She was quite possibly one of the
>nicest and most knowledgeable people I have ever spoken to in the
>medical field! She gave me the lowdown on what they're doing.
>
>D-chiro-inositol is not only hugely promising in the treatment of
>insulin resistance (and therefore Type II Diabetes and PCOS) but it is
>made from all natural substances, a composite of fruit and nut oils.
>(d-chiro-inositol is a naturally occurring substance.) Because of this,
>they are seeing very few side effects - a huge plus if you have been on
>Metformin recently! They are running several 9 month long studies. You
>would be given either a placebo or one of two dosages of the new drug.
>Before you start the study they will do all the basic blood work on you,
>perform an IGTT, take a urine sample, and give you a trans vaginal
>ultrasound. This may sound overwhelming, but if you have been through
>all of this already in getting your diagnosis (as I know many of you
>have) it is comforting to know that they are being so thorough and in
>all the right ways.
>
>They DO ask that patients have to have been off of both Metformin
>(Glucophage) and birth control pills for at least 3 months prior to
>beginning the exam. There is one more space available (as of this
>afternoon) in the current study, new studies are slated to also start in
>May and June. There will be more to come. They also ask that whether
>you are low carbing or not, your diet must remain stable through the
>entire 9 months; that is, no switching to low carb from high and vice
>versa. If you fit this criteria and wish to be involved in the study,
>drop me an email or give me a call and I will put you in touch with the
>proper people.
>
>Please consider giving your time to be a part of this - the more women
>we can get involved in these studies, the closer we are to having some
>real hope in fighting PCOS!
>
>I also am talking to the assistance about having herself of Dr Weinstein
>speak to us as a group about PCOS. She seemed quite receptive to the
>idea and mentioned letting us in on upcoming events that they had
>already scheduled. Again what a great opportunity - I will keep you all
>posted!
>
>Take care,
>
>--
>Sonnet Fitzgerald
>Chapter Coordinator
>SF Bay Area PCOSA chapter
>
>sonnet_fitz@hotmail.com
>msg. (925) 943-3078
>
>--
>Email always welcome to: sonnet_fitz@hotmail.com
>
--
Kallie
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