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Re: To Amy, and any other UK pcos ers.
From: monica (anonymous@obgyn.net)
Wed, 11 Apr 2001 07:55:35 -0500 (CDT)
hannah,
Can u tell me why the Atkins is good for PCOS. And wuld u recommend it?
thanks
monica
At Wed, 11 Apr 2001, Hannah wrote:
>
>Thanks for your replies Debbie & Cathy. I don't know what you both think
>but sharing experiences definitely makes living with this easier on a day to
>day basis.
>
>I've now been registered with this site for just over a week and the
>information and stories here have spurred me on to find a GP in the area
>that will help me. I don't feel comfortable going back to my regular GP and
>as a last resort I would have considered going back to my Gy even though he
>didn't seem to know too much about PCOS - put symptoms down to my weight -
>the usual story.
>
>I'm lucky to have a wonderful mum who I spoke to last night describing my
>frustration and not only the physical but also mental conditions of PCOS.
>She sympathised because she has experienced something familiar and I'm lucky
>as she works for the NHS Trust here in Medway so knows alot about the
>different clinics etc. She works with a lady who's daughter was diagnosed
>with PCOS and has had children with the help of a GP (a lady) who works at a
>family planning clinic in the area and I've been lucky and got an
>appointment to see her in 2 weeks.
>
>I'm sure it will help if I can just "vent off" my concerns and
>disappointments. I just want to find someone who will offer genuine
>professional help not only in TTC but during the early stages to. I intend
>to go in with all the info I've learnt and some facts from the books that
>I've been researching from but I hope she'll be more clued up then the other
>professionals I've already seen.
>
>I've kicked started the Atkins diet again and intend to approach the whole
>thing with a new optamisium.
>
>Thanks Debbie & Cathy and everyone else - you've played a huge part. I
>can't tell you how I'm looking forward to my appointment already - sad.....
>
>Hannah
>
>Give to your favourite charities and get up to 40% tax relief
>.....plus a 10% bonus from Government
>http://www.allaboutgiving.org
>
>____________________________________________
>Hannah Wait, PA to Communications Director
>____________________________________________
>
>--
>____________________________________________
>HWait@caf.charitynet.org
>____________________________________________
>+(44) 01732 520177
>
>> -----Original Message-----
>> From: debbiemitch@blueyonder.co.uk [SMTP:debbiemitch@blueyonder.co.uk]
>> Sent: Monday, April 09, 2001 10:53 PM
>> To: Multiple recipients of list PCOS
>> Subject: Re: To Amy, and any other UK pcos ers.
>>
>> Hi Hannah
>>
>> When I first went to the doctor my symptoms I described were dry skin on
>> my face, lack of periods say about 2 - 3 months apart, weight gain. I
>> did not know about PCOS and I probably had more of the symptoms but did
>> not realise that they were related (skin tags, hair growth, spots) She
>> sent me for a blood test for hormone and thyroid. She said it could be
>> either PCOS or under active thyroid. She also sent me for a scan. When
>> the blood tests came back I did not see my normal doctor and the one I
>> did see said they were normal and nothing to worry about end of story. I
>> was not happy so I booked an appointment with my doctor and by then the
>> scan result had came back showing I had cysts. My doctor also said my
>> hormones were ok and my thyroid was ok. She then gave me the choice of
>> doing the tests again or being referred to a specialist whom she said
>> would probably repeat the tests. I opted for the specialist. When I
>> saw the specialist he asked me about my periods, by that time I had lost
>> 3 stone by dieting so I explained this I also mentioned my hair growth
>> (by this time I knew a little bit about the symptoms of PCOS) He asked
>> me if I was trying to conceive and if I wanted to loose more weight. I
>> said yes. He then proscribed metformin saying it would help me loose
>> weight and stabilise my periods making it easier to conceive.
>>
>> As far as I know I have not been tested for IR - I will be asking my
>> doctor about this on my next visit.
>>
>> When I first went on Metformin my second period came on exactly 28 days
>> I could not believe it, but since then it has slow got worse but only by
>> about a week late.
>>
>> I don't really know a lot about PCOS until the weekend when I started
>> looking at this web site but I think you need to talk to your doctor
>> about the best way forward as you say armed with all the info. I think
>> you have to really push for more to be done. Have you thought about
>> changing doctors if you are not happy with his advice? How are you
>> trying to loose weight as I know it is difficult - I lost it going to
>> slimming world classes on their 'green' (hi carb diet I did not know I
>> should have been on low carb) I have now switched to their 'red' diet
>> which is low carb.
>>
>> Hope this helps and it works out - let me know how you get on.
>>
>> Debbie.
>>
>> At Mon, 9 Apr 2001, Hannah wrote:
>> >
>> >Hi Debbie,
>> >
>> >I wondered if you could answer a few Q's I have.
>> >
>> >Brief History:-
>> >
>> >I was diagnosed by a Gynaecologist back in March (referred to by my Dr
>> >because I'd not had a period and my skin and weight was bad). I should
>> say
>> >my husband and I were/are TTC. The Gyn examined me and booked me for a
>> scan
>> >to confirm his diagnosis of PCOS which was conclusive. He simply told me
>> to
>> >go away and lose weight and when I was at a comfortable weight (and not
>> at
>> >such a heavy weight to carry a baby) I could go back and get the Clomid
>> >prescription. That's how it was left back in April last year (2000).
>> >
>> >I've been taking herbal remedies religiously since September and have had
>> >some success: had 2 periods after a gap of 14 months (looking like every
>> 3
>> >months), skins better (not completely clear) and I've had some success
>> with
>> >my weight (I struggle with this).
>> >
>> >I recently read an article about the importance of EFA's and I've
>> recently
>> >started taking Evening Primrose Oil (Omega 3) and Flaxseed Oil (Omega 6).
>> >
>> >Questions:-
>> >
>> >1. Did your specialists do any IR tests on you before prescribing Met?
>> >
>> > I've read lots of messages here that say they're on this dosage or
>> >that dosage but nothing that says what
>> > tests, if any, they've had to go through.
>> >
>> >2. What reason did he give you for prescribing Met?
>> >3. Do you have problems with your periods?
>> >4. Do you think I should go back to the Gyn or my Dr to try and get the
>> >prescription?
>> >
>> >My Dr's not the most approachable man and I'm worried I'll let him
>> dismiss
>> >me. I hope you can sympathise knowing the UK Health System. I've had a
>> >couple of PCOS books delivered today which I'll start reading at
>> lunchtime
>> >to see if they recommend any other treatments - it's just that Met sounds
>> >like it's as hard to come by in the UK as Gold Dust.
>> >
>> >I'd appreciate any advice you can give me - I want to make sure I'm clued
>> up
>> >before even thinking about going to my Dr or Gyn.
>> >
>> >Thank you.
>> >
>> >Hannah
>> >
>> >> -----Original Message-----
>> >> From: SusieQ [SMTP:Susiecoug@hotmail.com]
>> >> Sent: Sunday, April 08, 2001 9:21 PM
>> >> To: Multiple recipients of list PCOS
>> >> Subject: Re: To Amy, and any other UK pcos ers.
>> >>
>> >> Thanks Debbie, I appreciate it!!
>> >>
>> >> SusieQ
>> >>
>> >> >
>> >> >I think it works different in the UK - I went to see my local GP who
>> >> >referred me to a specalist at the Hospital as she said my hormone
>> >> >results came back as normal. When I saw the specalist he said that
>> they
>> >> >were not - confused! I had a scann and there was a small cyst. I also
>> >> >have the hair thing. It was the specalist that proscribed metformin.
>> I
>> >> >now just see my local GP agin for more of the drug. I can't remember
>> >> >the specalist's name but the hospital was Frenchay in North Bristol.
>> >> >Bristol is in the south west of the country and I think Lancaster is
>> up
>> >> >north somewhere. Please pass on this information - I will try and
>> find
>> >> >out what the Specalist's name was.
>> >> >
>> >> >Good Luck to your sister.
>> >> >
>> >> >--
>> >> >Debbie
>> >> >
>> >> >At Sun, 8 Apr 2001, SusieQ wrote:
>> >> >>
>> >> >>Debbie,
>> >> >>
>> >> >>Who is your doc? My sis married a Brit, and has pcos, and can not
>> find a
>> >> >>decent doc in the UK. She is in Lancaster - how far is that from
>> >> >>Bristol? I would love to give her the name of your doc if you are
>> >> >>willing?? Many thanks.
>> >> >>
>> >> >>luck and love, SusieQ
>> >> >>
>> >> >>>Hi - I am from the UK and I am on Metformin, when the specalist
>> >> >>>proscribed it he did not say it was being tested. I am from
>> Bristol,
>> >> >>>where are you?
>> >> >>>
>> >> >>>At Sat, 7 Apr 2001, anonymous@obgyn.net wrote:
>> >> >>>>
>> >> >>>>Hello fellow UK PCO 'er
>> >> >>>>
>> >> >>>>I have just asked my gyno about Metformin and he says I can't have
>> it
>> >> as
>> >> >>>>its only just being tested in UK. Sorry!
>> >> >>>>
>> >> >>>>I'm sticking with Spiro for now- until this comes along.
>> >> >>>>
>> >> >>>>At Fri, 6 Apr 2001, Clare wrote:
>> >> >>>>>
>> >> >>>>>Oh, and we were all just getting excited over on this side of the
>> >> >>>>>Atlantic! Nevermind....still looking!
>> >> >>>>>
>> >> >>>>>--
>> >> >>>>>Clare
>> >> >>>>>
>> >> >>>>>At Fri, 6 Apr 2001, Amy wrote:
>> >> >>>>>>
>> >> >>>>>>Content-Type: text/plain; charset=us-ascii
>> >> >>>>>>Content-Transfer-Encoding: 7bit
>> >> >>>>>>
>> >> >>>>>>Ohhh I am in the U.S., Hun ... I live in Georgia :) Amy
>> >> >>>>>>
>> >> >>>>>>Clare wrote:
>> >> >>>>>>
>> >> >>>>>>> Amy - congratulations on getting metformin in the UK! Which
>> >> hospital do
>> >> >>>>>>> you go to for this?
>> >> >>>>>>>
>> >> >>>>>>> I had a gynaecology appointment yesterday which only revolved
>> >> around
>> >> >>>>>>> which Pill I should be on. I asked about insulin resistance,
>> but
>> >> got a
>> >> >>>>>>> vague response about links with type II diabetes later in life.
>> >> When I
>> >> >>>>>>> asked about any other types of treatment, different Pills were
>> >> listed!
>> >> >>>>>>>
>> >> >>>>>>> I had hoped this would be an opportunity to update my treatment
>> >> (which
>> >> >>>>>>> is currently Pill + cyproterone acetate) but it wasn't to be.
>> >> >>>>>>>
>> >> >>>>>>> I'm thinking of asking my GP to refer elsewhere, so would be
>> >> interested
>> >> >>>>>>> to know who is treating you.
>> >> >>>>>>>
>> >> >>>>>>> Hope you can help!
>> >> >>>>>>>
>> >> >>>>>>> Clare
>> >> >>>>>>>
>> >> >>>>>>> At Fri, 06 Apr 2001, Amy wrote:
>> >> >>>>>>> >
>> >> >>>>>>> >Content-Type: multipart/alternative;
>> >> >>>>>>> > boundary="------------612174460F6655A0626FB36B"
>> >> >>>>>>> >
>> >> >>>>>>> >Hi Hannah (I love your name)
>> >> >>>>>>> >Well apparently PCOS is caused by irregular insulin levels
>> which
>> >> actually comes
>> >> >>>>>>> >around full circle. She put me on met (a form of insulin used
>> to
>> >> treat mild
>> >> >>>>>>> >diabetes) to even keel in insulin levels.
>> >> >>>>>>> >I have seen some results .. I have not been as faithful as I
>> >> should be with it ..
>> >> >>>>>>> >I have always had a problem taking meds long term ..
>> >> >>>>>>> >I do have severe PCOS .. both Ovaries are bad and the
>> ultrasound
>> >> before last found
>> >> >>>>>>> >a cyst in my uterus .. the last ultrasound showed that it
>> doubled
>> >> in size in 6
>> >> >>>>>>> >months and I am due for another in 1 month. My Ob/Gyn said
>> that
>> >> if it has changed
>> >> >>>>>>> >at all, then she will want to do surgery. Check this link out
>> ..
>> >> it will give you
>> >> >>>>>>> >more info on meds ...
>> >> >>>>>>> > Treatment of Polycystic Ovary Syndrome with Insulin Lowering
>> >> Medications
>> >> >>>>>>> >
>> >> >>>>>>> >Keep in touch!! Amy
>> >> >>>>>>> >
>> >> >>>>>>> >Hannah Wait wrote:
>> >> >>>>>>> >
>> >> >>>>>>> >> Hi Amy,
>> >> >>>>>>> >>
>> >> >>>>>>> >> How did you get the Dr to give you Met and have you seen any
>> >> improvements
>> >> >>>>>>> >> with your symptoms?
>> >> >>>>>>> >> What reason's did you give your Dr for giving it to you -
>> I'm
>> >> def going to
>> >> >>>>>>> >> see my Dr about this and I'd love as much info as possible.
>> >> >>>>>>> >>
>> >> >>>>>>> >> Thanks.
>> >> >>>>>>> >>
>> >> >>>>>>> >> Hannah
>> >> >>>>>>> >>
>> >> >>>>>>> >> Give to your favourite charities and get up to 40% tax
>> relief
>> >> >>>>>>> >> ....plus a 10% bonus from Government
>> >> >>>>>>> >> http://www.allaboutgiving.org
>> >> >>>>>>> >>
>> >> >>>>>>> >> ____________________________________________
>> >> >>>>>>> >> Hannah Wait, PA to Communications Director
>> >> >>>>>>> >> ____________________________________________
>> >> >>>>>>> >> ____________________________________________
>> >> >>>>>>> >> ____________________________________________
>> >> >>>>>>> >> ____________________________________________
>> >> >>>>>>> >> ____________________________________________
>> >> >>>>>>> >> ____________________________________________
>> >> >>>>>>> >> ____________________________________________
>> >> >>>>>>> >> ____________________________________________
>> >> >>>>>>> >> ____________________________________________
>> >> >>>>>>> >> ____________________________________________
>> >> >>>>>>> >> HWait@caf.charitynet.org
>> >> >>>>>>> >> +(44) 01732 520177
>> >> >>>>>>> >>
>> >> >>>>>>> >> > -----Original Message-----
>> >> >>>>>>> >> > From: Amy Cochran [SMTP:amy.cochran@trism.com]
>> >> >>>>>>> >> > Sent: Friday, April 06, 2001 4:50 PM
>> >> >>>>>>> >> > To: Multiple recipients of list PCOS
>> >> >>>>>>> >> > Subject: Re: Linda and Hannah, and any other UK pcos
>> >> ers.
>> >> >>>>>>> >> >
>> >> >>>>>>> >> > Hi there ... I am on Metformin and Levlite .. :) Amy
>> >> >>>>>>> >> >
>> >> >>>>>>> >> > Dave and Catherine Smith wrote:
>> >> >>>>>>> >> >
>> >> >>>>>>> >> > Hi ladies, I was beginning to think that I was the only UK
>> >> lady who
>> >> >>>>>>> >> > frequented the board. It would be very good if we could
>> keep
>> >> each other
>> >> >>>>>>> >> > upadated with the types of care we are receiving. I have
>> >> *fingers crossed*
>> >> >>>>>>> >> > just got myself a doctor who is willing to treat me rather
>> >> than just
>> >> >>>>>>> >> > prescribe bcp and weight loss. I have to wait until May
>> 18th
>> >> for my
>> >> >>>>>>> >> > appointment, but that will soon come around. How did you
>> >> convince your
>> >> >>>>>>> >> > doctor to prescribe metformin?Please feel free to email me
>> >> >>>>>>> >> > dave.cathy.smith@blueyonder.co.uk
>> >> >>>>>>> >> > <mailto:dave.cathy.smith@blueyonder.co.uk> I would love to
>> >> hear your
>> >> >>>>>>> >> > stories and successes. (please put PCOS in the title - I
>> am
>> >> virus
>> >> >>>>>>> >> > paranoid!!!!)Cathy
>> >> >>>>>>> >> > "You cannot have a rainbow without first having some
>> rain."
>> >> >>>>>>> >> > << File: Card for Amy Cochran >>
>> >> >>>>>>> >> >
>> >> >>>>>>> >> Confidential and privileged information may be contained in
>> >> this email: any
>> >> >>>>>>> >> unauthorised access, storing, disclosure, copying,
>> distribution
>> >> or other use
>> >> >>>>>>> >> is prohibited. If you are not the person indicated in this
>> >> message, or
>> >> >>>>>>> >> their authorised agent, please notify the sender by return
>> >> email and kindly
>> >> >>>>>>> >> delete this message from your system. As internet
>> >> communications are not
>> >> >>>>>>> >> fully secure, CAF does not accept legal responsibility for
>> the
>> >> contents of
>> >> >>>>>>> >> this email or any attachment.
>> >> >>>>>>> >>
>> >> >>>>>>> >--------------06A52DCF724265208ED57DA1
>> >> >>>>>>> >Content-Type: text/x-vcard; charset=us-ascii;
>> >> >>>>>>> > name="amy.cochran.vcf"
>> >> >>>>>>> >Content-Transfer-Encoding: 7bit
>> >> >>>>>>> >Content-Description: Card for Amy Cochran
>> >> >>>>>>> >Content-Disposition: attachment;
>> >> >>>>>>> > filename="amy.cochran.vcf"
>> >> >>>>>>> >
>> >> >>>>>>> >begin:vcard
>> >> >>>>>>> >n:COCHRAN;AMY R.
>> >> >>>>>>> >tel;fax:770-795-4794
>> >> >>>>>>> >tel;work:770-795-4751/ 1-800-666-2445 x-4751
>> >> >>>>>>> >x-mozilla-html:FALSE
>> >> >>>>>>> >url:http://www.trism.com
>> >> >>>>>>> >org:TRISM, Inc.;Pricing Department
>> >> >>>>>>> >version:2.1
>> >> >>>>>>> >email;internet:amy.cochran@trism.com
>> >> >>>>>>> >title:Pricing Analyst
>> >> >>>>>>> >adr;quoted-printable:;;4174 Jiles Road
>> >> >>>>>>> P.O. Box 9000
>> >> >>>>>>> ;Kennesaw;Georgia;30144-9000;USA
>> >> >>>>>>> >fn:AMY R. COCHRAN
>> >> >>>>>>> >end:vcard
>> >> >>>>>>> >
>> >> >>>>>>> >--------------06A52DCF724265208ED57DA1--
>> >> >>>>>>>
>> >> >>>>>>--------------A46E0B6874CEF7EA958CCA24
>> >> >>>>>>Content-Type: text/x-vcard; charset=us-ascii;
>> >> >>>>>> name="amy.cochran.vcf"
>> >> >>>>>>Content-Transfer-Encoding: 7bit
>> >> >>>>>>Content-Description: Card for Amy Cochran
>> >> >>>>>>Content-Disposition: attachment;
>> >> >>>>>> filename="amy.cochran.vcf"
>> >> >>>>>>
>> >> >>>>>>begin:vcard
>> >> >>>>>>n:COCHRAN;AMY R.
>> >> >>>>>>tel;fax:770-795-4794
>> >> >>>>>>tel;work:770-795-4751/ 1-800-666-2445 x-4751
>> >> >>>>>>x-mozilla-html:FALSE
>> >> >>>>>>url:http://www.trism.com
>> >> >>>>>>org:TRISM, Inc.;Pricing Department
>> >> >>>>>>version:2.1
>> >> >>>>>>email;internet:amy.cochran@trism.com
>> >> >>>>>>title:Pricing Analyst
>> >> >>>>>>adr;quoted-printable:;;4174 Jiles Road
>> >> >>>>>P.O. Box 9000
>> >> >>>>> ;Kennesaw;Georgia;30144-9000;USA
>> >> >>>>>>fn:AMY R. COCHRAN
>> >> >>>>>>end:vcard
>> >> >>>>>>
>> >> >>>>>>--------------A46E0B6874CEF7EA958CCA24--
>> >> >>>>>
>> >> >--
>> >> >E-Mails welcome debbiemitch@blueyonder.co.uk
>> >> >
>> >>
>> >Confidential and privileged information may be contained in this email:
>> any
>> >unauthorised access, storing, disclosure, copying, distribution or other
>> use
>> >is prohibited. If you are not the person indicated in this message, or
>> >their authorised agent, please notify the sender by return email and
>> kindly
>> >delete this message from your system. As internet communications are not
>> >fully secure, CAF does not accept legal responsibility for the contents
>> of
>> >this email or any attachment.
>>
>> --
>> E-Mails welcome debbiemitch@blueyonder.co.uk
>>
>Confidential and privileged information may be contained in this email: any
>unauthorised access, storing, disclosure, copying, distribution or other use
>is prohibited. If you are not the person indicated in this message, or
>their authorised agent, please notify the sender by return email and kindly
>delete this message from your system. As internet communications are not
>fully secure, CAF does not accept legal responsibility for the contents of
>this email or any attachment.
>
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