Re: To Amy, and any other UK pcos ers.
From: Hannah (anonymous@obgyn.net)
Wed, 11 Apr 2001 11:49:14 +0100
Thanks for your replies Debbie & Cathy. I don't know what you both think
but sharing experiences definitely makes living with this easier on a day to
day basis.
I've now been registered with this site for just over a week and the
information and stories here have spurred me on to find a GP in the area
that will help me. I don't feel comfortable going back to my regular GP and
as a last resort I would have considered going back to my Gy even though he
didn't seem to know too much about PCOS - put symptoms down to my weight -
the usual story.
I'm lucky to have a wonderful mum who I spoke to last night describing my
frustration and not only the physical but also mental conditions of PCOS.
She sympathised because she has experienced something familiar and I'm lucky
as she works for the NHS Trust here in Medway so knows alot about the
different clinics etc. She works with a lady who's daughter was diagnosed
with PCOS and has had children with the help of a GP (a lady) who works at a
family planning clinic in the area and I've been lucky and got an
appointment to see her in 2 weeks.
I'm sure it will help if I can just "vent off" my concerns and
disappointments. I just want to find someone who will offer genuine
professional help not only in TTC but during the early stages to. I intend
to go in with all the info I've learnt and some facts from the books that
I've been researching from but I hope she'll be more clued up then the other
professionals I've already seen.
I've kicked started the Atkins diet again and intend to approach the whole
thing with a new optamisium.
Thanks Debbie & Cathy and everyone else - you've played a huge part. I
can't tell you how I'm looking forward to my appointment already - sad.....
Hannah
Give to your favourite charities and get up to 40% tax relief
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____________________________________________
Hannah Wait, PA to Communications Director
--
____________________________________________
HWait@caf.charitynet.org
+(44) 01732 520177
> -----Original Message-----
> From: debbiemitch@blueyonder.co.uk [SMTP:debbiemitch@blueyonder.co.uk]
> Sent: Monday, April 09, 2001 10:53 PM
> To: Multiple recipients of list PCOS
> Subject: Re: To Amy, and any other UK pcos ers.
>
> Hi Hannah
>
> When I first went to the doctor my symptoms I described were dry skin on
> my face, lack of periods say about 2 - 3 months apart, weight gain. I
> did not know about PCOS and I probably had more of the symptoms but did
> not realise that they were related (skin tags, hair growth, spots) She
> sent me for a blood test for hormone and thyroid. She said it could be
> either PCOS or under active thyroid. She also sent me for a scan. When
> the blood tests came back I did not see my normal doctor and the one I
> did see said they were normal and nothing to worry about end of story. I
> was not happy so I booked an appointment with my doctor and by then the
> scan result had came back showing I had cysts. My doctor also said my
> hormones were ok and my thyroid was ok. She then gave me the choice of
> doing the tests again or being referred to a specialist whom she said
> would probably repeat the tests. I opted for the specialist. When I
> saw the specialist he asked me about my periods, by that time I had lost
> 3 stone by dieting so I explained this I also mentioned my hair growth
> (by this time I knew a little bit about the symptoms of PCOS) He asked
> me if I was trying to conceive and if I wanted to loose more weight. I
> said yes. He then proscribed metformin saying it would help me loose
> weight and stabilise my periods making it easier to conceive.
>
> As far as I know I have not been tested for IR - I will be asking my
> doctor about this on my next visit.
>
> When I first went on Metformin my second period came on exactly 28 days
> I could not believe it, but since then it has slow got worse but only by
> about a week late.
>
> I don't really know a lot about PCOS until the weekend when I started
> looking at this web site but I think you need to talk to your doctor
> about the best way forward as you say armed with all the info. I think
> you have to really push for more to be done. Have you thought about
> changing doctors if you are not happy with his advice? How are you
> trying to loose weight as I know it is difficult - I lost it going to
> slimming world classes on their 'green' (hi carb diet I did not know I
> should have been on low carb) I have now switched to their 'red' diet
> which is low carb.
>
> Hope this helps and it works out - let me know how you get on.
>
> Debbie.
>
> At Mon, 9 Apr 2001, Hannah wrote:
> >
> >Hi Debbie,
> >
> >I wondered if you could answer a few Q's I have.
> >
> >Brief History:-
> >
> >I was diagnosed by a Gynaecologist back in March (referred to by my Dr
> >because I'd not had a period and my skin and weight was bad). I should
> say
> >my husband and I were/are TTC. The Gyn examined me and booked me for a
> scan
> >to confirm his diagnosis of PCOS which was conclusive. He simply told me
> to
> >go away and lose weight and when I was at a comfortable weight (and not
> at
> >such a heavy weight to carry a baby) I could go back and get the Clomid
> >prescription. That's how it was left back in April last year (2000).
> >
> >I've been taking herbal remedies religiously since September and have had
> >some success: had 2 periods after a gap of 14 months (looking like every
> 3
> >months), skins better (not completely clear) and I've had some success
> with
> >my weight (I struggle with this).
> >
> >I recently read an article about the importance of EFA's and I've
> recently
> >started taking Evening Primrose Oil (Omega 3) and Flaxseed Oil (Omega 6).
> >
> >Questions:-
> >
> >1. Did your specialists do any IR tests on you before prescribing Met?
> >
> > I've read lots of messages here that say they're on this dosage or
> >that dosage but nothing that says what
> > tests, if any, they've had to go through.
> >
> >2. What reason did he give you for prescribing Met?
> >3. Do you have problems with your periods?
> >4. Do you think I should go back to the Gyn or my Dr to try and get the
> >prescription?
> >
> >My Dr's not the most approachable man and I'm worried I'll let him
> dismiss
> >me. I hope you can sympathise knowing the UK Health System. I've had a
> >couple of PCOS books delivered today which I'll start reading at
> lunchtime
> >to see if they recommend any other treatments - it's just that Met sounds
> >like it's as hard to come by in the UK as Gold Dust.
> >
> >I'd appreciate any advice you can give me - I want to make sure I'm clued
> up
> >before even thinking about going to my Dr or Gyn.
> >
> >Thank you.
> >
> >Hannah
> >
> >> -----Original Message-----
> >> From: SusieQ [SMTP:Susiecoug@hotmail.com]
> >> Sent: Sunday, April 08, 2001 9:21 PM
> >> To: Multiple recipients of list PCOS
> >> Subject: Re: To Amy, and any other UK pcos ers.
> >>
> >> Thanks Debbie, I appreciate it!!
> >>
> >> SusieQ
> >>
> >> >
> >> >I think it works different in the UK - I went to see my local GP who
> >> >referred me to a specalist at the Hospital as she said my hormone
> >> >results came back as normal. When I saw the specalist he said that
> they
> >> >were not - confused! I had a scann and there was a small cyst. I also
> >> >have the hair thing. It was the specalist that proscribed metformin.
> I
> >> >now just see my local GP agin for more of the drug. I can't remember
> >> >the specalist's name but the hospital was Frenchay in North Bristol.
> >> >Bristol is in the south west of the country and I think Lancaster is
> up
> >> >north somewhere. Please pass on this information - I will try and
> find
> >> >out what the Specalist's name was.
> >> >
> >> >Good Luck to your sister.
> >> >
> >> >--
> >> >Debbie
> >> >
> >> >At Sun, 8 Apr 2001, SusieQ wrote:
> >> >>
> >> >>Debbie,
> >> >>
> >> >>Who is your doc? My sis married a Brit, and has pcos, and can not
> find a
> >> >>decent doc in the UK. She is in Lancaster - how far is that from
> >> >>Bristol? I would love to give her the name of your doc if you are
> >> >>willing?? Many thanks.
> >> >>
> >> >>luck and love, SusieQ
> >> >>
> >> >>>Hi - I am from the UK and I am on Metformin, when the specalist
> >> >>>proscribed it he did not say it was being tested. I am from
> Bristol,
> >> >>>where are you?
> >> >>>
> >> >>>At Sat, 7 Apr 2001, anonymous@obgyn.net wrote:
> >> >>>>
> >> >>>>Hello fellow UK PCO 'er
> >> >>>>
> >> >>>>I have just asked my gyno about Metformin and he says I can't have
> it
> >> as
> >> >>>>its only just being tested in UK. Sorry!
> >> >>>>
> >> >>>>I'm sticking with Spiro for now- until this comes along.
> >> >>>>
> >> >>>>At Fri, 6 Apr 2001, Clare wrote:
> >> >>>>>
> >> >>>>>Oh, and we were all just getting excited over on this side of the
> >> >>>>>Atlantic! Nevermind....still looking!
> >> >>>>>
> >> >>>>>--
> >> >>>>>Clare
> >> >>>>>
> >> >>>>>At Fri, 6 Apr 2001, Amy wrote:
> >> >>>>>>
> >> >>>>>>Content-Type: text/plain; charset=us-ascii
> >> >>>>>>Content-Transfer-Encoding: 7bit
> >> >>>>>>
> >> >>>>>>Ohhh I am in the U.S., Hun ... I live in Georgia :) Amy
> >> >>>>>>
> >> >>>>>>Clare wrote:
> >> >>>>>>
> >> >>>>>>> Amy - congratulations on getting metformin in the UK! Which
> >> hospital do
> >> >>>>>>> you go to for this?
> >> >>>>>>>
> >> >>>>>>> I had a gynaecology appointment yesterday which only revolved
> >> around
> >> >>>>>>> which Pill I should be on. I asked about insulin resistance,
> but
> >> got a
> >> >>>>>>> vague response about links with type II diabetes later in life.
> >> When I
> >> >>>>>>> asked about any other types of treatment, different Pills were
> >> listed!
> >> >>>>>>>
> >> >>>>>>> I had hoped this would be an opportunity to update my treatment
> >> (which
> >> >>>>>>> is currently Pill + cyproterone acetate) but it wasn't to be.
> >> >>>>>>>
> >> >>>>>>> I'm thinking of asking my GP to refer elsewhere, so would be
> >> interested
> >> >>>>>>> to know who is treating you.
> >> >>>>>>>
> >> >>>>>>> Hope you can help!
> >> >>>>>>>
> >> >>>>>>> Clare
> >> >>>>>>>
> >> >>>>>>> At Fri, 06 Apr 2001, Amy wrote:
> >> >>>>>>> >
> >> >>>>>>> >Content-Type: multipart/alternative;
> >> >>>>>>> > boundary="------------612174460F6655A0626FB36B"
> >> >>>>>>> >
> >> >>>>>>> >Hi Hannah (I love your name)
> >> >>>>>>> >Well apparently PCOS is caused by irregular insulin levels
> which
> >> actually comes
> >> >>>>>>> >around full circle. She put me on met (a form of insulin used
> to
> >> treat mild
> >> >>>>>>> >diabetes) to even keel in insulin levels.
> >> >>>>>>> >I have seen some results .. I have not been as faithful as I
> >> should be with it ..
> >> >>>>>>> >I have always had a problem taking meds long term ..
> >> >>>>>>> >I do have severe PCOS .. both Ovaries are bad and the
> ultrasound
> >> before last found
> >> >>>>>>> >a cyst in my uterus .. the last ultrasound showed that it
> doubled
> >> in size in 6
> >> >>>>>>> >months and I am due for another in 1 month. My Ob/Gyn said
> that
> >> if it has changed
> >> >>>>>>> >at all, then she will want to do surgery. Check this link out
> ..
> >> it will give you
> >> >>>>>>> >more info on meds ...
> >> >>>>>>> > Treatment of Polycystic Ovary Syndrome with Insulin Lowering
> >> Medications
> >> >>>>>>> >
> >> >>>>>>> >Keep in touch!! Amy
> >> >>>>>>> >
> >> >>>>>>> >Hannah Wait wrote:
> >> >>>>>>> >
> >> >>>>>>> >> Hi Amy,
> >> >>>>>>> >>
> >> >>>>>>> >> How did you get the Dr to give you Met and have you seen any
> >> improvements
> >> >>>>>>> >> with your symptoms?
> >> >>>>>>> >> What reason's did you give your Dr for giving it to you -
> I'm
> >> def going to
> >> >>>>>>> >> see my Dr about this and I'd love as much info as possible.
> >> >>>>>>> >>
> >> >>>>>>> >> Thanks.
> >> >>>>>>> >>
> >> >>>>>>> >> Hannah
> >> >>>>>>> >>
> >> >>>>>>> >> Give to your favourite charities and get up to 40% tax
> relief
> >> >>>>>>> >> ....plus a 10% bonus from Government
> >> >>>>>>> >> http://www.allaboutgiving.org
> >> >>>>>>> >>
> >> >>>>>>> >> ____________________________________________
> >> >>>>>>> >> Hannah Wait, PA to Communications Director
> >> >>>>>>> >> ____________________________________________
> >> >>>>>>> >> ____________________________________________
> >> >>>>>>> >> ____________________________________________
> >> >>>>>>> >> ____________________________________________
> >> >>>>>>> >> ____________________________________________
> >> >>>>>>> >> ____________________________________________
> >> >>>>>>> >> ____________________________________________
> >> >>>>>>> >> ____________________________________________
> >> >>>>>>> >> ____________________________________________
> >> >>>>>>> >> HWait@caf.charitynet.org
> >> >>>>>>> >> +(44) 01732 520177
> >> >>>>>>> >>
> >> >>>>>>> >> > -----Original Message-----
> >> >>>>>>> >> > From: Amy Cochran [SMTP:amy.cochran@trism.com]
> >> >>>>>>> >> > Sent: Friday, April 06, 2001 4:50 PM
> >> >>>>>>> >> > To: Multiple recipients of list PCOS
> >> >>>>>>> >> > Subject: Re: Linda and Hannah, and any other UK pcos
> >> ers.
> >> >>>>>>> >> >
> >> >>>>>>> >> > Hi there ... I am on Metformin and Levlite .. :) Amy
> >> >>>>>>> >> >
> >> >>>>>>> >> > Dave and Catherine Smith wrote:
> >> >>>>>>> >> >
> >> >>>>>>> >> > Hi ladies, I was beginning to think that I was the only UK
> >> lady who
> >> >>>>>>> >> > frequented the board. It would be very good if we could
> keep
> >> each other
> >> >>>>>>> >> > upadated with the types of care we are receiving. I have
> >> *fingers crossed*
> >> >>>>>>> >> > just got myself a doctor who is willing to treat me rather
> >> than just
> >> >>>>>>> >> > prescribe bcp and weight loss. I have to wait until May
> 18th
> >> for my
> >> >>>>>>> >> > appointment, but that will soon come around. How did you
> >> convince your
> >> >>>>>>> >> > doctor to prescribe metformin?Please feel free to email me
> >> >>>>>>> >> > dave.cathy.smith@blueyonder.co.uk
> >> >>>>>>> >> > <mailto:dave.cathy.smith@blueyonder.co.uk> I would love to
> >> hear your
> >> >>>>>>> >> > stories and successes. (please put PCOS in the title - I
> am
> >> virus
> >> >>>>>>> >> > paranoid!!!!)Cathy
> >> >>>>>>> >> > "You cannot have a rainbow without first having some
> rain."
> >> >>>>>>> >> > << File: Card for Amy Cochran >>
> >> >>>>>>> >> >
> >> >>>>>>> >> Confidential and privileged information may be contained in
> >> this email: any
> >> >>>>>>> >> unauthorised access, storing, disclosure, copying,
> distribution
> >> or other use
> >> >>>>>>> >> is prohibited. If you are not the person indicated in this
> >> message, or
> >> >>>>>>> >> their authorised agent, please notify the sender by return
> >> email and kindly
> >> >>>>>>> >> delete this message from your system. As internet
> >> communications are not
> >> >>>>>>> >> fully secure, CAF does not accept legal responsibility for
> the
> >> contents of
> >> >>>>>>> >> this email or any attachment.
> >> >>>>>>> >>
> >> >>>>>>> >--------------06A52DCF724265208ED57DA1
> >> >>>>>>> >Content-Type: text/x-vcard; charset=us-ascii;
> >> >>>>>>> > name="amy.cochran.vcf"
> >> >>>>>>> >Content-Transfer-Encoding: 7bit
> >> >>>>>>> >Content-Description: Card for Amy Cochran
> >> >>>>>>> >Content-Disposition: attachment;
> >> >>>>>>> > filename="amy.cochran.vcf"
> >> >>>>>>> >
> >> >>>>>>> >begin:vcard
> >> >>>>>>> >n:COCHRAN;AMY R.
> >> >>>>>>> >tel;fax:770-795-4794
> >> >>>>>>> >tel;work:770-795-4751/ 1-800-666-2445 x-4751
> >> >>>>>>> >x-mozilla-html:FALSE
> >> >>>>>>> >url:http://www.trism.com
> >> >>>>>>> >org:TRISM, Inc.;Pricing Department
> >> >>>>>>> >version:2.1
> >> >>>>>>> >email;internet:amy.cochran@trism.com
> >> >>>>>>> >title:Pricing Analyst
> >> >>>>>>> >adr;quoted-printable:;;4174 Jiles Road
> >> >>>>>>> P.O. Box 9000
> >> >>>>>>> ;Kennesaw;Georgia;30144-9000;USA
> >> >>>>>>> >fn:AMY R. COCHRAN
> >> >>>>>>> >end:vcard
> >> >>>>>>> >
> >> >>>>>>> >--------------06A52DCF724265208ED57DA1--
> >> >>>>>>>
> >> >>>>>>--------------A46E0B6874CEF7EA958CCA24
> >> >>>>>>Content-Type: text/x-vcard; charset=us-ascii;
> >> >>>>>> name="amy.cochran.vcf"
> >> >>>>>>Content-Transfer-Encoding: 7bit
> >> >>>>>>Content-Description: Card for Amy Cochran
> >> >>>>>>Content-Disposition: attachment;
> >> >>>>>> filename="amy.cochran.vcf"
> >> >>>>>>
> >> >>>>>>begin:vcard
> >> >>>>>>n:COCHRAN;AMY R.
> >> >>>>>>tel;fax:770-795-4794
> >> >>>>>>tel;work:770-795-4751/ 1-800-666-2445 x-4751
> >> >>>>>>x-mozilla-html:FALSE
> >> >>>>>>url:http://www.trism.com
> >> >>>>>>org:TRISM, Inc.;Pricing Department
> >> >>>>>>version:2.1
> >> >>>>>>email;internet:amy.cochran@trism.com
> >> >>>>>>title:Pricing Analyst
> >> >>>>>>adr;quoted-printable:;;4174 Jiles Road
> >> >>>>>P.O. Box 9000
> >> >>>>> ;Kennesaw;Georgia;30144-9000;USA
> >> >>>>>>fn:AMY R. COCHRAN
> >> >>>>>>end:vcard
> >> >>>>>>
> >> >>>>>>--------------A46E0B6874CEF7EA958CCA24--
> >> >>>>>
> >> >--
> >> >E-Mails welcome debbiemitch@blueyonder.co.uk
> >> >
> >>
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>
> --
> E-Mails welcome debbiemitch@blueyonder.co.uk
>
Confidential and privileged information may be contained in this email: any
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