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Re: UPDATE on me--whoever wants to know :) (long)
From: Dona (anonymous@obgyn.net)
Sat, 31 Mar 2001 13:27:55 -0600 (CST)
Hi Zowie,
Sounds like your on the right track!! hurray!!I wish you all the luck
and offer my prayors...lol..it's funny about the blood work..i had 7 big
vials when they first diagnosed me. I had never had so much blood drawn
in my life!!!But it was worth it to find out what the heck was wrong
with me.
Dona
>
>Hello everyone,
>Ok, I've returned from my RE visit today. I was at that facility for 4
>HOURS, 2 of which were spent in the RE room. Ok, they did another
>transvaginal u/s--just to double check on the presence of my cysts
>[which surprisingly there were SEVERAL and not just "1" that the last
>u/s last month showed--which the RE said was quite strange], and to also
>check the thickness of my endometrium. I saw the MANY cysts that were
>on my right ovary--don't know if there were some on the left, but the RE
>said it's rather odd to supposedly have "1" last month and have all
>these appear so quickly. (I'm guessint the u/s tech last month wasn't
>very experienced or wasn't too good at his job--the u/s took so long
>that time, and only took about 5 mins. today).
>
>Anyhow, my endometrium is normal, but the RE called in another Dr. who
>said that in that case, my PCOS is "so severe" that I'm stuck in the
>cycle of PCOS due to my forever fluctuating (and heavy) weight and
>therefore there is "absolutely nothing" they can do to help my symptoms
>until I lose weight--about 100 lbs. (I weighed 339 today, went up 7 lbs
>in 2 days--no surprise). Result? They took me off the BCPs, started me
>on Avandia, and gave me a Lupron shot for 3 months. This is to help
>chemically induce an early menopause, which is supposed to get rid of my
>PCOS activity and symptoms, along with the Avandia is supposed to help
>me lose weight, so that THEN I can finally be treated. I'm due to come
>back in 1 month to have my weight counseled to see if the combination is
>working, and if so, to get another refill on Avandia.
>
>They took 6 vials of blood from me--everything from the cortisol test to
>CBC (complete blood count), cholesterol and DHEA (hormone levels). The
>shot was so painLESS that I'd rather come back and have that done than
>the needles for the bloodwork! I hate needles! The shot wasn't even a
>"prick". Big whoop. :) lol Well, the good thing is I won't be
>suffering from PCOS and it's symptoms while this shot is working, and
>that I should be experiencing some weight loss due to that and the
>Avandia. Because they want me to come back in only 1 month, I'm
>assuming we're talking significant weight loss here.
>
>I have mixed feelings right now because I'm not sure what to expect.
>They did agree that there is obviously a problem, but said that my
>weight is causing the prevention of treatment, which is literally why, I
>explained, I was there today. No Dr. has ever suggested this Lupron
>shot to bring on early menopause to help with my symptoms before--which
>will (if all goes well) ultimately make me lose weight so that I CAN be
>treated, if it's still needed. They're hoping the weight loss will get
>me OUT of the PCOS cycle, and therefore my body will be helping itself
>to releave the symptoms, rather than having medications do it. The Dr's
>overall were nice and understanding, although I'm not too sure about the
>other one that was called in (who decided about the shot). Anyhow, I
>knew Christa and some others would be interested in hearing my update,
>so that's why I posted it. I'm SO sorry it's so long, but I wanted to
>review my feelings about this appt. as well. I'm feeling kinda crummy
>right now, don't know if it's because of the shot, or the loss of so
>much blood or BOTH (I NEVER feel good after having any blood drawn), but
>that's why it's taken me so long to write this today--I had to take a
>nap. ;) Well, I hope this will put some hope in the many of us who are
>still trying to get treated for their PCOS. I doubt I have Cushings,
>thanks to the many cysts I did have, but I will update on that and all
>my blood work when I get the results--probably next month at my next
>appt. Take care everyone, and keep fighting to get PCOS treated!!
>That's the only thing that got me to this point, and I'm just STARTING
>OUT! My condition is so severe thanks to all of the Dr's who just
>dismissed me and refused treatment; they neglected me and now thanks to
>that, this is what I'm left with. Do not let this happen to you!!
>Fight!! Peace and God Bless us all! Good luck cysters!!! You CAN do
>it!!!!
>
>--
>-- Zowie :)
>
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