Re: My Two Cents on Symptoms (a little long =)
From: Cassandra (anonymous@obgyn.net)
Tue, 27 Mar 2001 09:34:44 -0600 (CST)
I agree cautiously with paula. ;-)
I agree that we shouldn't blame everything on pcos, but sometimes when
people ask out here, it's interesting to see if a lot of people do have
the same symptom. An example I can think of is low body temperature.
Lots of people responded to that one saying they do have a low temp.
Sometimes people post out here with a symptom because they're new and
don't know if the symptom is one that's associated with PCOS.
For the record, after being on this site almost daily for 9 months, it
does seem that the symptoms listed by PCOSupport.org and other reputable
sites really are the most common. I don't think we're going to find
some symptom that the medical community magically has misplaced.
Also, we need to be careful about blaming everything on PCOS in case
there is something else wrong with us, you know?
--
Cassandra
At Mon, 26 Mar 2001, paula wrote:
>
>i have been wanting to post this for awhile, and finally today i have
>gotton a chance to sit at my computer for more than 3 seconds, so i
>wanted to share my opinion about this. recently we have been discussing
>symptoms a lot, and understandably so. many of us have finally found
>something that sees to explain so many issues we have had our entire
>lives...something that makes us feel validated and FINALLY something
>that makes us realize we are not at fault for many of the things we have
>been blamed for in the past. in light of this revelation i think we
>naturally have a tendancy to attribute all maladies and symptoms to this
>condition. i wanted to take a moment and throw out a word of caution.
>while we are enlightened, many members of the medical community are not.
>when patients begin labeling every ache and pain with a name...and
>especially when we call them all the same condition, we lose
>credability. doctors begin to call this a "catch all" and they start to
>shy away from treating it aggressively. also, there are ones who will
>label it a "non-disease" and refuse to deal with it. this has happened
>with cronic fatigue and many other illnesses that are incredibly
>legetimate. at this stage in the game, PCOS is gaining recognition, we
>are gaining sympathy and assistance from the medical community...we
>cannot afford to take a wrong turn.
>
>PCOS is already so complicated that it is almost (and in some cases
>simply is) mind boggling. there is a lot of things contributing to the
>current conditions our bodies are in. we must try our best to not
>assume everything is a result of IR or PCOS. we must try to be
>rational, even though PCOS can cause an extreme emotional roller
>coasters. we have to take the tact that we are very educated and aware
>of what is going on with our bodies. we have to learn all we can and
>keep up with the latest research in order to gain the respect that we
>need to combat this, not only for ourselves, but also for our children
>who could very well inherit this from us.
>
>i do not want anyone to think that i have any one person in mind while
>writing this, because i do not. i have just been thinking about this
>for awhile and wanted to put it out there to see what you all think. i
>am very concerned about PCOS being seen as a legitimate disorder in the
>eyes of physicians. I really want to see medical research delve into
>the depths of this condition and help us find a cure, and i feel that if
>we begin to attribute everything that happens to us medically to PCOS
>and IR, we will lose the golden opportunity to finally be recognized.
>
>love, paula
>
>--
>feel free to email me anytime at paulam74@hotmail.com (please put PCOS in the subject line =)
>
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