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Re: My Two Cents on Symptoms (a little long =)
From: Sonnet (anonymous@obgyn.net)
Mon, 26 Mar 2001 17:54:20 -0600 (CST)
Here, here Paula... While I do feel that, as an endocrine disorder,
PCOS affects different women in different ways, I could not agree with
you more. We have a somewhat established list of symptoms (and by that
I don't mean the ones doctors have, I more mean the ones we have created
here by all sharing) and many of the other symptoms attributed to PCOS
are a tenuous connection at best. I would hate to see this disease
being treated like something we dreamt up to excuse our apprearance, or
something. It can be a devastating disease and I do think we need to be
careful!
At Mon, 26 Mar 2001, paula wrote:
>
>i have been wanting to post this for awhile, and finally today i have
>gotton a chance to sit at my computer for more than 3 seconds, so i
>wanted to share my opinion about this. recently we have been discussing
>symptoms a lot, and understandably so. many of us have finally found
>something that sees to explain so many issues we have had our entire
>lives...something that makes us feel validated and FINALLY something
>that makes us realize we are not at fault for many of the things we have
>been blamed for in the past. in light of this revelation i think we
>naturally have a tendancy to attribute all maladies and symptoms to this
>condition. i wanted to take a moment and throw out a word of caution.
>while we are enlightened, many members of the medical community are not.
>when patients begin labeling every ache and pain with a name...and
>especially when we call them all the same condition, we lose
>credability. doctors begin to call this a "catch all" and they start to
>shy away from treating it aggressively. also, there are ones who will
>label it a "non-disease" and refuse to deal with it. this has happened
>with cronic fatigue and many other illnesses that are incredibly
>legetimate. at this stage in the game, PCOS is gaining recognition, we
>are gaining sympathy and assistance from the medical community...we
>cannot afford to take a wrong turn.
>
>PCOS is already so complicated that it is almost (and in some cases
>simply is) mind boggling. there is a lot of things contributing to the
>current conditions our bodies are in. we must try our best to not
>assume everything is a result of IR or PCOS. we must try to be
>rational, even though PCOS can cause an extreme emotional roller
>coasters. we have to take the tact that we are very educated and aware
>of what is going on with our bodies. we have to learn all we can and
>keep up with the latest research in order to gain the respect that we
>need to combat this, not only for ourselves, but also for our children
>who could very well inherit this from us.
>
>i do not want anyone to think that i have any one person in mind while
>writing this, because i do not. i have just been thinking about this
>for awhile and wanted to put it out there to see what you all think. i
>am very concerned about PCOS being seen as a legitimate disorder in the
>eyes of physicians. I really want to see medical research delve into
>the depths of this condition and help us find a cure, and i feel that if
>we begin to attribute everything that happens to us medically to PCOS
>and IR, we will lose the golden opportunity to finally be recognized.
>
>love, paula
>
>--
>feel free to email me anytime at paulam74@hotmail.com (please put PCOS in the subject line =)
>
--
Email always welcome to: sonnet_fitz@hotmail.com
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