Re: Adrenal problems with PCOS
From: ALicia (anonymous@obgyn.net)
Sat, 24 Mar 2001 18:42:12 -0600 (CST)
At Sat, 24 Mar 2001, Christa wrote:
>
>I just started taking the Diane myself for the acne and hirsutism. My
>cortisol levels came back abnormal but nothing else did.
Christa if you have abnormal cortisol levels this means you may have
something besides PCOS, you may be looking at Cushings. Many of the
symptons overlap between the two disorders. I was tested for Cushings
and scanned for adrenal tumors, however I tested normal on the cortisol.
Cushings is very diagnosed badly. Please go to this site and read the
information there, it is good: http://www.cushings-help.com
I thought some
>of the male hormones would be high. I don't understand what the hell is
>going on.
>
>At Sat, 3 Feb 2001, miriam wrote:
>>
>>Hi
>>I was diagnosed as having hypothyrodism and pcos 3 years ago. i took
>>diane35 (bcp) for 2 years. after 2 years that my hair on my face and
>>body didn't get better , i went to a diffrent doctor and he found that i
>>had adrenal hyper plaisa and put me on dexamethazone 0.5 and took me off
>>the diane, now after 8 months i went to a diffrnet doctor and he said
>>that i have both, and i have to take diane35 a-n-d-
>>dexamethazone,,,,,,after 3 years!! it's my first month on both
>>medicantions (actually 3, also for the hypothyrodism).
>>thank g-d i dont have any side affects. if u have more questions, ill
>>be happy to answer,
>>Miriam
>>
>>At Sat, 3 Feb 2001, carol wrote:
>>>
>>>hello,
>>>My daughter has been diagnosed with PCOS. I've been doing much of my
>>>own research on the subject, as the doctors have not given us much
>>>information. There is a new book out that is outstanding and addresses
>>>adrenal problems, how to diagnose, what to do. The name of it is
>>>Polycystic Ovary Syndrome, The Hidden Epidemic. The author is Samuel S.
>>>Thatcher, M.D., Ph.D. It just came out in January 2001. Dr. Thatcher
>>>is a PCOS expert in Tennessee. I got the book at Barnes & Noble.
>>>There is another one out that I thought was very good and addresses
>>>adrenal problems. It's called Androgen Disorders in Women by Theresa
>>>Cheung. She talks about the adrenal disorders also and says they are
>>>more common than ovarian disorders.
>>>Thanks to these two books, my daughter got her adrenal hyperplasia
>>>diagnosed. Unfortunately, the doctor does not want to give her the
>>>low-dose cortisol that we think she needs.
>>>If anybody has tried the low-dose cortisol, please tell us how it worked
>>>for you.
>>>At Fri, 2 Feb 2001, Kim wrote:
>>>>
>>>>Hi~ I just read your message...I know its old but, I have been suffering
>>>>from an underactive thyroud for 2 years now and was just reciently
>>>>tested for adrenal problems. With this new doctor.....he wants to check
>>>>all possible problems. You mentioned you had mestrual problems.....were
>>>>they heavy or light?? Mine are light eventhough I am hypo and I also
>>>>have a low TSH. I'm trying to find answers to these strange results.
>>>>What symptoms did you notice with an adrenal/ thyroid problem??? THANX
>>>>At Sun, 30 Apr 2000, DJ wrote:
>>>>>
>>>>>I just went back to my doc last week to discuss a bunch of bloodwork
>>>>>that I had done a couple weeks ago. He didn't give me the PCOS
>>>>>diagnosis I was expecting, but instead adrenal hyperplasia. My DHEA was
>>>>>really high and another hormone(can't remember) was too low. He gave me
>>>>>Aygestin, a progesterone pill to induce a period and he said that he was
>>>>>going to put me on a progesterone based birth control pill instead of an
>>>>>estrogen based, I guess since my estrogen level was normal. He also
>>>>>told me that the high DHEA level was the reason the excess hair, weight
>>>>>problem, menstrual problems etc. For 2 weeks I had been low-carbing,
>>>>>trying to lose weight, but not even that helped me lose. The doc told
>>>>>me not to even try to lose until I was on the BCP for about a month and
>>>>>hopefully that would straighten my levels out, and that I should see a
>>>>>considerable difference in weight loss success. He said that my
>>>>>hormones are so messed up right now that they won't let me lose any
>>>>>weight.
>>>>>I pray that this doc is right. It is frustrating and I have been messed
>>>>>up for over 8 years now.
>>>>>
>>>>>At Thu, 27 Apr 2000, anonymous wrote:
>>>>>>
>>>>>>Every adrenal test I had at the endos turned out abnormal. I am
>>>>>>diagnosed with hypothyroid and PCOS. The PCOS diagnosis is around two
>>>>>>months old though I stopped having periods 10 years ago at age 21 and
>>>>>>never knew why. I have the weight and other extreme symptons. I have
>>>>>>been tested for cushings and my doc says that is negative however he has
>>>>>>told me I am showing the start of adrenal insuffiencies. He also has
>>>>>>mentioned me having Polyglandular autoimmune disorder so i suppose my
>>>>>>adrenals could be going bad also. Several adrenal hormones were
>>>>>>skyhigh---VMA, Catchonomines(spelling?)aldosterone, these were like 7
>>>>>>times the norm. My cortisol level was 5 and I know this is low. I am
>>>>>>overweight so this makes no sense. I also am wondering about this
>>>>>>stuff. he says its due to the severe case of PCOS I have. Also the
>>>>>>DHEA was high too. I dont know what the ACTH was, Ill have to
>>>>>>ask....but my adrenal scores were so bad, I got an adrenal scan done for
>>>>>>Cushings--adrenal tumor--- which turned out nothing and one more test I
>>>>>>forget the name of for Adrenal hyperplasia that he said turned out
>>>>>>negative. My testosterone is high. He says all these hormones are out
>>>>>>of whack due to severity of my PCOS. I know this is a technical
>>>>>>question so if anyone can help i wll appreciate it.
>>>>>
>>>>>--
>>>>>DJ
>>>>>
>>--
>>miriam
>>
>--
>Christa :-)
>
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