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Re: Adrenal problems with PCOS
From: Christa (anonymous@obgyn.net)
Sat, 24 Mar 2001 13:03:38 -0600 (CST)
I just started taking the Diane myself for the acne and hirsutism. My
cortisol levels came back abnormal but nothing else did. I thought some
of the male hormones would be high. I don't understand what the hell is
going on.
At Sat, 3 Feb 2001, miriam wrote:
>
>Hi
>I was diagnosed as having hypothyrodism and pcos 3 years ago. i took
>diane35 (bcp) for 2 years. after 2 years that my hair on my face and
>body didn't get better , i went to a diffrent doctor and he found that i
>had adrenal hyper plaisa and put me on dexamethazone 0.5 and took me off
>the diane, now after 8 months i went to a diffrnet doctor and he said
>that i have both, and i have to take diane35 a-n-d-
>dexamethazone,,,,,,after 3 years!! it's my first month on both
>medicantions (actually 3, also for the hypothyrodism).
>thank g-d i dont have any side affects. if u have more questions, ill
>be happy to answer,
>Miriam
>
>At Sat, 3 Feb 2001, carol wrote:
>>
>>hello,
>>My daughter has been diagnosed with PCOS. I've been doing much of my
>>own research on the subject, as the doctors have not given us much
>>information. There is a new book out that is outstanding and addresses
>>adrenal problems, how to diagnose, what to do. The name of it is
>>Polycystic Ovary Syndrome, The Hidden Epidemic. The author is Samuel S.
>>Thatcher, M.D., Ph.D. It just came out in January 2001. Dr. Thatcher
>>is a PCOS expert in Tennessee. I got the book at Barnes & Noble.
>>There is another one out that I thought was very good and addresses
>>adrenal problems. It's called Androgen Disorders in Women by Theresa
>>Cheung. She talks about the adrenal disorders also and says they are
>>more common than ovarian disorders.
>>Thanks to these two books, my daughter got her adrenal hyperplasia
>>diagnosed. Unfortunately, the doctor does not want to give her the
>>low-dose cortisol that we think she needs.
>>If anybody has tried the low-dose cortisol, please tell us how it worked
>>for you.
>>At Fri, 2 Feb 2001, Kim wrote:
>>>
>>>Hi~ I just read your message...I know its old but, I have been suffering
>>>from an underactive thyroud for 2 years now and was just reciently
>>>tested for adrenal problems. With this new doctor.....he wants to check
>>>all possible problems. You mentioned you had mestrual problems.....were
>>>they heavy or light?? Mine are light eventhough I am hypo and I also
>>>have a low TSH. I'm trying to find answers to these strange results.
>>>What symptoms did you notice with an adrenal/ thyroid problem??? THANX
>>>At Sun, 30 Apr 2000, DJ wrote:
>>>>
>>>>I just went back to my doc last week to discuss a bunch of bloodwork
>>>>that I had done a couple weeks ago. He didn't give me the PCOS
>>>>diagnosis I was expecting, but instead adrenal hyperplasia. My DHEA was
>>>>really high and another hormone(can't remember) was too low. He gave me
>>>>Aygestin, a progesterone pill to induce a period and he said that he was
>>>>going to put me on a progesterone based birth control pill instead of an
>>>>estrogen based, I guess since my estrogen level was normal. He also
>>>>told me that the high DHEA level was the reason the excess hair, weight
>>>>problem, menstrual problems etc. For 2 weeks I had been low-carbing,
>>>>trying to lose weight, but not even that helped me lose. The doc told
>>>>me not to even try to lose until I was on the BCP for about a month and
>>>>hopefully that would straighten my levels out, and that I should see a
>>>>considerable difference in weight loss success. He said that my
>>>>hormones are so messed up right now that they won't let me lose any
>>>>weight.
>>>>I pray that this doc is right. It is frustrating and I have been messed
>>>>up for over 8 years now.
>>>>
>>>>At Thu, 27 Apr 2000, anonymous wrote:
>>>>>
>>>>>Every adrenal test I had at the endos turned out abnormal. I am
>>>>>diagnosed with hypothyroid and PCOS. The PCOS diagnosis is around two
>>>>>months old though I stopped having periods 10 years ago at age 21 and
>>>>>never knew why. I have the weight and other extreme symptons. I have
>>>>>been tested for cushings and my doc says that is negative however he has
>>>>>told me I am showing the start of adrenal insuffiencies. He also has
>>>>>mentioned me having Polyglandular autoimmune disorder so i suppose my
>>>>>adrenals could be going bad also. Several adrenal hormones were
>>>>>skyhigh---VMA, Catchonomines(spelling?)aldosterone, these were like 7
>>>>>times the norm. My cortisol level was 5 and I know this is low. I am
>>>>>overweight so this makes no sense. I also am wondering about this
>>>>>stuff. he says its due to the severe case of PCOS I have. Also the
>>>>>DHEA was high too. I dont know what the ACTH was, Ill have to
>>>>>ask....but my adrenal scores were so bad, I got an adrenal scan done for
>>>>>Cushings--adrenal tumor--- which turned out nothing and one more test I
>>>>>forget the name of for Adrenal hyperplasia that he said turned out
>>>>>negative. My testosterone is high. He says all these hormones are out
>>>>>of whack due to severity of my PCOS. I know this is a technical
>>>>>question so if anyone can help i wll appreciate it.
>>>>
>>>>--
>>>>DJ
>>>>
>--
>miriam
>
--
Christa :-)
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